chronic pain

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Painfully to pore upon a blog to seek the light of truth

Hello and good morning.  It’s Thursday, which you might be able to tell by my traditional, Thursday-associated “Hello and good morning” style opening.  But, of course, if you’re new to this blog‒I wonder if there are any new people reading this blog today‒then you might not know.

But I’ve been writing a Thursday-based blog for at least 10 years, I think, in case anyone wants to go back and check it out.  It then expanded into an “every workday” blog after my last fiction publication, which I think was my collection, Dr. Elessar’s Cabinet of Curiosities.  Though my last novel ended up being Unanimity Book 1 and Unanimity Book 2.

I have written a novella since then (Extra Body) that’s published here, and I’ve made beginnings on Outlaw’s Mind and The Dark Fairy and the Desperado, which are also available here as far as they’ve gone.

But for the most part, I’ve just been doing this blog.  I initially imagined it to be a kind of promotional entity, intended to help people hear about my books.  As far as I can tell, it utterly failed at that purpose, but whataya gonna do?

Then I decided to try to turn the blog into a sort of mental health thing (for me, not for my readers‒it cannot be good for my readers’ mental health), a kind of talk therapy, to try to help with my ongoing dysthymia and depression.

Well, it’s difficult to assess an intervention’s effectiveness without being able to know how things would be without that intervention, but if this is me with a successful method of intervention, I shudder to imagine what I would be like without it.  Possibly, I would be dead, but that’s really not such a bad thought, to be fair.

I’ve had a few very bad days of pain lately, which is not unusual, but it is frustrating.  For a few days before this, my pain abated a bit, to just a sort of low, background thing, and when that happens, I start to feel stupidly optimistic for a time.  Of course, so far, that optimism has been profoundly misplaced, but what do you want from something as stupid as optimism?

The pain really doesn’t help things, though.  It’s been going on for nearly a quarter of a century so far, and that’s too long for my taste (in case you wondered).  In a few years, I will have reached the halfway point, i.e., I will have been in chronic pain for half my life.  From there, the fraction just gets bigger.  Indeed, if I were to live forever, the limit of the fraction of my life in which I’ve been in chronic pain would be 1.

That’s a pretty horrible thought.

So, yeah, that hasn’t helped with my mental health either.  It’s difficult to know what my mental health would have been like without chronic pain; it’s possible it could have been worse.  But there are decent reasons to doubt that to be the likely case.

Insomnia doesn’t help, either.  I will say one thing about Paxil, for all that it wasn’t great for my depression:  it made me enjoy sleeping, even though it didn’t make a big impact on how long I slept.  I have never really enjoyed sleep, either before or since.  I am not one who eagerly anticipates getting into bed and drifting off.

I know there are people who do seem to enjoy it, quite apart from its necessary function.  Not I.  My need to sleep, as with so many other things, is one purely of necessity; I need to rest, if I can.  And I certainly long for the feeling of actually having adequately rested, though I don’t know if I will ever experience that again.

Anyway, I’m tired‒from lack of sleep, from pain, from depression, presumably from ASD, from being alone with only my own miserable and annoying self all the time, from the fact that the world is so stupid and so pointless*, from general social awkwardness, from innumerable things.  And I have no apparent capacity to do anything creative now, which used to be one of my saving graces.  I haven’t even played guitar (or sang) for weeks now, if I recall correctly.  The black Strat just leans against my desk in the office, gathering dust.

Oh, well.  Like I said (or asked), whataya gonna do?  Although, there is always something I can do, but people don’t like it when I talk about that.  It makes them uncomfortable.  It doesn’t make anyone uncomfortable enough to act, but they don’t like it, and it doesn’t seem to do me any good except to make me feel slightly more hopeless, as well as somewhat guilty for bothering other people with my issues.

Anyway, it’s not like I can blame anyone for not wanting to have anything to do with a creature like me.

Enough.  This is idiotic, like so much else in the universe.  I hope you’re all doing well.

TTFN

*But especially the “stupid” part.  Pointlessness is tolerable, and it can even be rather freeing, but everyone and everything is just so idiotic.  I do not exclude myself from that judgement.

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My morose, meandering Monday musings

It’s Monday again, of course.  I won’t get into any of the usual stuff I discuss about Mondays, except to note that, outside of the minds and artifacts of humans*, Monday doesn’t exist.  It’s just another day, and each day is not fundamentally different from another day.  Wild creatures do not get the weekend off, for they have no such concept.  On the other hand, they don’t exactly have enforced workdays or work weeks and all the many artificial but very real stressors that humans have created.

I am still off NSAIDs except for some limited aspirin, and I am quite stiff and sore, a fact which is particularly difficult to ignore in my thumbs as I write this.  My urinary signs may be improving; certainly I’ve been working on intervening in the issues, not least of which intervention is the aforementioned curtailment of NSAIDs.  I’m not sure how this will go, but I guess I will find out, one way or another.

I haven’t read any books of any kind‒including audio books‒in almost a week now.  There are several processes behind this fact, but a big part of it seems to be a general anhedonia.  Nothing is very interesting to me.  I don’t even feel any particular interest in the new Spider-Man movie, which would normally engender excitement.

Heck, I honestly don’t even feel much about Avengers: Doomsday, and Doctor Doom is probably my very favorite villain (and one of my favorite overall characters).  Podcasts also seem boring, and so do various videos and shows, educational, fictional, or anywhere in between.

I don’t really do anything in my spare time, to be honest, other than try to distract myself, and that’s becoming more difficult.

My boss, on Saturday, suggested that maybe after work, before I go “home”, I should stop somewhere and get the urinary stuff checked out, and I said, “Yeah, I don’t see that happening.”  The prospect of taking care of such things in my “spare” time is about as natural a feeling as the prospect of spontaneously levitating.

It’s not in my nature to be much good at taking care of myself.  I’m not really inclined to take care of much of anything administrative in my life, to be honest**.  I pay rent and electric and water and cable/internet bills, because not doing so would be a great and immediate inconvenience, but other things are not in my wheelhouse.  They are not salient to me, and I don’t know how to make them salient without them already being salient.

So, yeah, if the issues I’m having are precursors to, or symptoms and signs of, some more serious problem, well…that’ll be that, won’t it?  As I said to my boss a few sentences after my above reply about seeking help, “Basically, I’m just waiting for something to kill me, anyway.”

That’s the state of my life now, and it has been that way to varying degrees for quite some time.  I believe this qualifies for the term “passive suicidal ideation”.  I don’t just experience the passive form, of course, but it is more common, or more frequent, and slightly more persistent than the active version.

Make no mistake, though:  for the last dozen years or so, not a day has gone by, as far as I can remember, that I didn’t have at least some moments of active SI.  And, of course, I have many methods available; I make sure to keep things that way.

So, yeah, one of these days my blog may just stop, and if it does, there’s a good probability that it will have been because I stopped being so passive.

I make no predictions, and I certainly don’t engage in threats or warnings.  I’m just trying to clear the air, and explain why, left to my own devices, I’m not liable to seek any medical help for anything unless it is so acutely painful as to be impossible to ignore, like a kidney stone.

I figure that sooner or later, some infection or maybe some malignancy will come along and take everything out of my hands‒at least unless I take matters into my own hands before that time, which is eminently possible.  I’ve said before that it would be nice if I got some kind of final crisis that at least allowed me to say goodbye to the people I love, but I recognize that nature doesn’t promise nor owe me any such convenience.

It doesn’t matter.  Quite possibly‒probably‒no one would want to come say goodbye to me anyway.  It would not surprise me, I’ll admit.  It would be sad, but I would probably consider it entirely appropriate.  Why should anyone care if I am going to die, anyway?

Okay, well, on that chipper, cheery note, I’ll bring this post to a close.  It’s already too long, honestly.  But I do hope that you all have a good week collectively and good weeks individually.

*And humanoids, I suppose.

**That’s a weird expression, isn’t it?  Does it imply that if I don’t say it, you cannot assume that I am ever honest?  But surely, claims of honesty are just the sorts of things that liars would make, just as religious texts will claim to be true and infallible.  “You have to be trusted by the people that you lie to, so that when they turn their backs on you, you’ll get the chance to put the knife in.”

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The Emperor of Silence reaps no relief from pain…or something like that

Welcome to August, everyone.  For today is August 1st, 2026 (AD/CE).  How exciting.  Huzzah.  Yippee ki yay motherf…

…or goodness sake, we certainly have a rather Roman day today, don’t we?  The month is named after a Roman emperor (the first “official” one, though I wish he’d just kept the name Octavian, since Augustus has too much of a try-hard vibe), and the day is named after the Roman god, Saturn.  Sailor Saturn is also my favorite sailor soldier*.  Though, that last thing doesn’t have anything to do with Rome.

I’m working today, just to confirm what would probably be your conclusion if you were even thinking about the question.

It’s not an absolute correlation, by any means; it’s possible, and not even unreasonably unlikely, that I might write a blog post but not go to work, or that I might go to work but not write a blog post.  The latter has happened more times than not (by far) throughout my life, but we need not worry about that likelihood, since it is ruled out by the fact that I am indeed writing a blog post.  You can tell, because you’re reading it (albeit not while I’m writing, as far as I know).

I am still quite sore all over, especially in my thumbs, back, hips, knees, ankles, shoulders, middle back and right side and flank***.  So, yeah, I don’t feel very great.  I also still have some residua of my apparent middle respiratory inflammation, but I think that’s improving.

Maybe it will be good for me to go through a bit of time with basically no NSAIDs in my system‒they’ve been there a lot, for a long time, and cannot fail to have had unintended effects.  We’ll see how the lack thereof even for a few days impacts my health.

On the other hand, NSAIDs can reduce some kinds of depression, and I think they did at least some of that for me.   Still, I am using Tylenol, and that seems possibly to help not merely with physical pain, but also with psychical pain (a little bit).

Weird, right?  And it doesn’t do that by decreasing inflammation in the brain, as NSAIDs appear to do.  It definitely works differently than NSAIDs, though it is not entirely unrelated.

It’s interesting how modules in the nervous system became repurposed (or added-purposed) for later mental functions in larger brains and especially in social animals.  The mental processes associated with physical revulsion and disgust/avoidance toward potential toxins and infectious materials became tied to our moral emotions of judgement, condemnation, and contempt.

Physical processes of fear became connected with anxiety about social opprobrium‒though, in a species like humans, social ostracism really was a serious danger to one’s life in the ancestral environment, to say nothing of being a rather obvious impediment to reproduction.

Anyway, the point is, it shouldn’t be too very surprising that a substance that attenuates physical pain can also ease psychological torment, at least a bit.  We know that opioids do this as well, and to a much greater degree than acetaminophen.

That’s one issue they have.  If a person has a lot of psychic pain‒and many of us do, which is predictable given that we are creatures adapted to hunting and gathering in the savannahs of Africa but are now living in the nightmare/fever dream/bad acid trip that is the modern world‒and has no better, more available, way to assuage it, they’re going to be tempted to reach for the tools they have, however blunt.

If we can figure out better ways of easing those pains, ones that are available and usable by everyone who needs them and which have acceptably few side-effects, that would be nice.

Okay, well, I don’t know if I’ve written anything coherent here, but I’m going to keep this relatively short, because I am still feeling poorly.  I hope you all have a good day and a good remainder of the weekend.

*Not counting Sailor Moon, who has the same unfair advantage over the others that the Beatles have over other bands.  Sailor Saturn is my Radiohead**/Pink Floyd sailor soldier.

**Heck, on one of my favorite songs by Radiohead, No Surprises, the chorus is followed by the invocation, “Silent.  Silent.”  And Sailor Saturn is the sailor soldier of silence, wielding the Glaive of Silence, with the power to end the world and bring about…well…silence.

***This makes me nervous considering my urinalysis strangeness, but I haven’t yet checked that today.  It feels like it is improving.

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‘Tis all men’s office to speak patience to those that blog under the load of sorrow

Hello and good morning.

I’m back on the smartphone again today, so hopefully I can at least avoid going on and on and on like I did yesterday.  That ought to be easy enough, but apparently, it is not.  I don’t know why I get so “talkative” here all the time, but it doesn’t seem to be because I have anything important to say.

As I’ve noted before, typing on a QWERTY keyboard feels almost more natural than speaking to me (and I do it far more often now) but that’s definitely not true for using the smartphone, and it probably never will be.

For one thing, I haven’t stopped having arthralgia/tendinopathy in and around the bases of my thumbs related to such use.  It’s not severe discomfort, certainly not compared to my chronic pain, but it is there and it is annoying.  It seems, however, to interfere with playing guitar more than with using my smartphone (or anyone else’s, I would guess).

Yesterday, I wasn’t sure I wanted to play any, so I figured I’d give fate a hand in things.  I carry four dollar coins with me every day‒two Susan B. Anthonys and two Sacagaweas‒and I use them to help make decisions when I feel no particular pull in a given direction.  I also use them to clarify my own inclinations:  if I get a result and dislike it, I know that I really want to do the alternate thing.  I’m told that my son has adopted this sort of habit as well.

Anyway, I flipped all four coins and got a unanimous set of heads*, so I played guitar and sang some.  I did it somewhat reluctantly, but when all four ladies agree, I find it hard to ignore them.

It wasn’t anything fancy, I just mainly went through a series of songs I know by heart, plus I think I played through Desperado using the pdf I have of a printout of the chords.  There were a lot of twinges in both thumbs/wrists while I was playing, though.  Still, I’ve come to realize that I have a decent repertoire of songs that I can do off the cuff, so if I needed to do some busking, I could probably do it.

I also recently realized that the Radiohead song(s) Polyethylene (Parts 1 & 2) ends with the same chord on which their song Fake Plastic Trees begins.  That was too funny a coincidence (given the subject matter/titles of the songs, especially), so I’ve taken to playing them as one combined song, a sort of mini-medley.

Several days ago, I even tried taking a video of me playing and singing (not those songs), using the desktop’s camera, and I discovered something:  if I ever do want to record myself doing music again, then I need a new microphone, probably more than one.  The sound quality was terrible, full of clipping and distortion and such.  Also, I need a new face, but that’s a separate matter.

I have also been working on learning Bach’s Two Part Invention number 13 for the guitar (mainly the right hand part so far‒the left hand had to be restranscribed and brought up an octave and I don’t enjoy it quite as much).  This has long been one of my favorite piano pieces to play, though I am way too rusty to play it now on a keyboard.  I used to like it so much that, whenever I was antsy, I would find a surface with an edge and “play” that Bach piece.  I guess I have always been a “stimmer”.

Anyway, all this crap isn’t really here or there, it’s just silly trivia that I’m spouting in lieu of having anything substantive to say.  I’m sorry if it’s boring or all over the place.  My mind has not been doing well lately, in case you haven’t noticed (or just haven’t read my blog lately).

I was just thinking recently about whether it would be workable for me to start going back to writing fiction maybe say two or three days a week (Monday, Wednesday, Friday for instance) and blogging only on the other days.  I don’t know if that would lose me readers on the blog or perhaps bring more people in, but it’s not as though I ever have more than a few dozen people coming to the blog in the first place.

Then again, no one’s exactly champing at the bit to read any of my fiction, either.  This is mainly just a self-indulgent, foolish exercise, a lab sample of concentrated futility.  Come to think of it, that could actually be said about pretty much my entire life since roughly 2013 (at the latest).  Trying to find any meaningfulness in my life since then is like wandering through the ruins of an ancient Egyptian city, looking for a 7-11.

Anyway, that’s enough of my stupidity for now.  Not that my stupidity will stop, but at least I won’t spew any more of it on you for the moment.  I hope you have a day that improves after you finish reading this; it’s unlikely to be much worse, right?

TTFN

*This is not terribly improbable; it will happen in one out of 2 to the 4th, or 1 in 16, runs of four coin flips.

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Imagine whatever headline you want; I don’t care

Welcome to the Monday of the first full week of July in 2026 CE (or AD if you must).  I hope that those of you in the USA had a nice Independence Day weekend.  There are no more significant holidays (that I recall) until at least September, now.

I didn’t do anything to celebrate the holiday‒unless you count trying to burn some kudzu‒because holiday celebrations generally involve other people, family and friends and such like, and I did not have any such group with whom to celebrate.

It’s probably just as well for such groups that I am not a part of them; I’m a serious downer and an unpleasant person* to be around for very long.  This used not to be the case; in my default or older settings, I’m naturally more hyper and sometimes rather silly (that too can be irritating, I fear).  Since my chronic pain began, however, I have become a much grumpier, angrier, more irritable person.  Things that I would have laughed off in the past, or about which I would have been more “philosophical”, easily get my ire up, even tiny little, minor, innocent things.

Using the seven dwarfs as personal descriptions, I spend most of my time these days Grumpy, rarely if ever Happy, frequently Dopey, quite Bashful almost always, from time to time Sneezy, not Sleepy nearly as often as I would prefer.  But I’m always Doc.  Take that for what it’s worth, which is probably nothing.

Anyway, yeah, I didn’t do anything pleasant on Saturday, nor much on Sunday, though at least I did talk on the phone to my sister.

I toyed with the notion of “celebrating” the 4th by making my way to the front of the Palm Beach County courthouse and making a fireworks display in the style of Thích Quảng Đức.  However, it was not only a Saturday, but it was a federal holiday; no one would have been there.  Also, I don’t know that I would have the courage to go through with it.

I need to do something though.  I cannot keep doing what I’m doing.  But I don’t see many options which I’m capable of embracing, given my dearth of personal energy and motivation.

I’m sorry I’m not being more positive or interesting, or at least quirky and strange in a less negative way, today.  Actually, I don’t really know if I’m ever interesting.  But, anyway, I just don’t have the energy right now to pretend not to be depressed, like I often do.  Maybe I’ve been pretending all my life that way**.  They do talk a lot about “masking” in neurodivergent people, and it has struck me as a very accurate and apposite notion since the first time I encountered it.

But, of course, there’s not necessarily any identity underneath such masks.  There’s certainly nothing very consistent, since “who we are” at any given moment or stage of our lives is but a three-dimensional slice of what is actually a four-dimensional being.

In case that sounds weird, I just mean that who we are at any given moment is true for just a point in time, a snapshot of a being that has not only spatial extent but also has a beginning and an end in time and which changes with every moment of that time, taking in and losing particles, maintaining that roughly constant but always altering configuration from frame to frame of of the movie that is a person’s life.

So, a question like “Who am I, really?” is perhaps best answered by saying, “I am the being who is asking that question.”  There is probably no deeper answer, at least not any much more specific one.  There is no “character description” in some Platonic realm that lays out who we really are, or if there is, I’ve encountered not the slightest intimation of it, and I would be very surprised if it existed.

Anyway, enough gobbledegook.  I’m just tired already, and it’s only the very beginning of Monday morning.  I’m so very tired.  I really ought to go before I spoil the party, to paraphrase a good Beatles song (see below).  I fear that I will just be a black cloud for everyone around me today, and probably in general.

I can’t even seem to find a book I can stick with reading right now; I shuffled through several different genres, let alone books, in my Kindle library a few dozen times in recent days, weeks, whatever, trying to find something interesting.  But after a brief time reading each thing I lose momentum and interest.  Even The Noonday Demon, a well-written book about depression, loses me after a bit.  Even Physics isn’t interesting to me, and that’s a bad sign.  Ditto for music, or movies (or shows) or what have you.

Everything is just a drizzly, insipid gray‒metaphorically, and sometimes also literally.  And I sometimes don’t have the energy to keep pretending that I can see anything else.

Like Ed Deepneau said in Stephen King’s Insomnia, “…sometimes the world is full of colors…but now all the colors are turning black.”

Enough, this has gone on too long already.  I apologize.  I hope you have a good day and a good week and a good remainder of your lives.

*More than one person has told me this, and they did not compare notes.

**Probably not.  It would be very bizarre indeed to be born depressed, though the tendency thereto can certainly be congenital, much like both forms of ASD that I have/had.

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“A distant ship smoke on the horizon”

Well, it’s here at last:  the final day of June in 2026 AD/CE.  You might say it’s the hospice day for the first half of this year.  Let us try to make its passing as peaceful and comfortable as we can.  I recommend high doses of opioids.

I’m kidding.  I don’t actually recommend such a thing unless one is in severe pain that’s simply not responding to anything else, or unless all the other stuff is simply too toxic.

That’s a big part of the conundrum of opioids.  All the other types of pain medications‒aspirin, other NSAIDs, acetaminophen, lidocaine injections, steroid injections and so on‒have significant systemic toxicities, even at relatively moderate doses.  They affect the stomach, the kidneys, the liver, the local tissues, the endocrine system, etc.  Quite often, one cannot adequately control significant pain for long using them without causing actual, serious, perilous damage to some of the most essential parts of the body.

On the other hand, opioids work.  They directly hit the pain centers/processors, and they actually can relieve pain, even very severe pain.  But they don’t just relieve physical pain.

Somewhat ironically, that’s one of the big drawbacks.  Though they do not cause systemic or organ toxicity, and they will not trigger diabetes, and they will not cause you ulcers (though they may well constipate you), they can affect your behavior and even your character.  Their relief of psychical pain‒sometimes the only such relief some people have felt in a long, long time‒is like their relief of more visceral pain:  it doesn’t actually correct any underlying disorders.

Well, I suppose if the disorder is simply a neurological misfiring such as that which leads to chronic pain, you could say they do at least act on the area that is dysfunctional.  But they don’t cure it.  They almost never correct even neuropathic pain; they simply squelch the alarm for a bit.  And the successful squelching of the alarms tends to require increasing doses, and can lead to dependence and various other issues.

So, there are no very good, relatively simple corrections for significant pain.  This is probably not a surprise, if you think about it.  In some form, at least, pain is among the oldest things in nature and among the most crucial (ha ha)* functions of nervous systems‒and even things that aren’t quite nervous systems, like the internal communication systems in hydra and jellyfish or the analogous systems of plants.

Living bodies don’t readily give up on pain, and they have good reasons.  Pleasure is nice, and is useful, of course, but it’s like having a pretty picture on your wall or having nice, scented candles in your living room or what have you.  No matter how pretty your decorations, you want to have your fire alarms in good working order.  You want them sensitive enough to go off even in situations without real fires‒the classic case of burnt toast, say‒rather than take the chance that they will not to go off in the case of a real fire.  The first error causes annoyance, perhaps requiring you to wave towels at the sensors and open a lot of windows and so on.  The second error can lead to your house burning down, perhaps with you in it.

Of course, these weighted preferences are not absolute.  If one’s smoke alarms were always going off‒or even going off a significant fraction of the time‒one might very well want to wipe out the whole system, to pull all the plugs, to remove all the batteries,  to flip all the breakers to “off”.  Or, indeed, one might simply want to abandon the house entirely, if there were no way to get the alarms to shut the f*ck up.  One might even be tempted to burn the stupid place down, just as a form of petty revenge against it.

There’s a metaphor in all this, I would imagine.  I’ll leave it as an exercise for you to discern it.  I won’t say it’s particularly clever, but it’s not terrible, and it works pretty well.  Anyway, I’ve dealt with this subject before, many times, I’m sure.  It’s fairly tedious, but it does seem to stick in my mind for some inexplicable reason.  I don’t, however, know how to solve the associated problems.

Ah, well.  There are some things humans aren’t meant to know.

Ha ha ha ha!  Sorry, I couldn’t keep a straight “face” while writing something so very stupid.  Humans aren’t “meant” to know (or not to know) anything, anymore than any particular foodstuff “belongs” on a pizza.  People can try to learn and understand anything, even everything, and ultimately, in the long run, as far as I can tell, the more one knows and understands, the better.

If you want to do your best in a game, you would do well to learn the rules as well as you can.  Because, to quote an old car commercial, in real life there is no reset button.  You are the avatar and you are the player, and when you get blasted into nothingness by the depredations of the game’s limitless antagonists, then for the character and for the player, the game is done.  There is no respawning, there are no experience points, there is no starting again at the last save point.

Game over.

*I say “ha ha” because the word “crucial”, related to the Latin for cross (apparently evolving into its modern usage from a metaphor for arriving at a crossroads), is also related to the word “excruciating” which derives from the Latin use of torturing as if crucifying someone.  And that, of course, relates pretty clearly to the topic of pain.

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I forgot to give this a title at first

This is another lapcom post.  That’s three in a row!

It’s Wednesday now, though why today is named after the “Allfather” is far from clear to me.  Maybe because it’s the “middle” of the week, and Odin (AKA Wodin  AKA Wotan, etc.) supports the weight of time or some such.  I don’t know.  That sort of sounds good, at least.

Anyway, of course, I’m going to work.  It’s payroll day, and the boss should be back from a brief vacation.  It’s remarkable to me how often some people take vacations and so forth.  I’m not against vacations, don’t get me wrong.  But it’s quite annoying when someone takes a vacation while everyone else is working after having asked us to work on days when other people are taking a day off (e.g., Memorial Day).

It doesn’t really matter, I guess.  I have nothing to do on days off, let alone during any prolonged vacation, anyway.  I certainly have no one with whom to spend my time off, whatever it may be, except in rare snippets.

I don’t know.  I suppose some people out there might think I ought to do something about that, but the fact is, I don’t feel good about myself, whatever that might mean, and it is hard to try to inflict myself upon other people; this blog alone already feels presumptuous and probably annoying.

It is a persistent aspect of my experience of myself and the world that I feel strong self-disgust and self-contempt.  This is quite contrary to the concept of “self-compassion” often touted in discussions of getting an autism diagnosis as an adult and learning about it and some of why your experience in life has been the way it has been.

Getting diagnosed and learning more hasn’t given me any more generous attitude toward myself, at least not so far.  Maybe if there were more resources and support available, I might be doing better with it*.

I have also read suggestions about finding discussion or support groups or online meetups or even in person meetups.  This seems a slightly contradictory suggestion for people who are, as part of the very description of the disorder, socially troubled.  I even get tense whenever new people come to work in the office, until I get used to them.  I certainly don’t see myself trying to interact with groups of strangers, even if they are neurodivergent.

I had a little bit of connection on Instagram with some sort-of communities.  At least, there were other people there with some degree of similar experiences, though interaction was minimal and artificial.  Anyway, Meta arbitrarily kicked me off their platforms without telling me why, so fuck them to death.

I used to be better at this socialization sort of thing.  I probably would be better at a lot of it if not for chronic pain, but it’s rather futile to dwell on that very much.  In this, I try to follow the recommendations of the Stoics.  But sometimes I dwell on it, nevertheless.  Sue me, Marcus Aurelius.

Anyway, I don’t think I have anything productive to discuss today—not that yesterday’s weird, meandering post, which ended up focusing on prime factorizations somehow, was productive—and I don’t know that anything is likely to spill out of me at this point that’s going to be of any use to anyone, even for entertainment.  Sorry.

I did a brief audio recording yesterday about something that was nagging me relating to Sean Carroll’s answer to a listener question on his Mindscape podcast.  He does an “Ask Me Anything” podcast every month; it’s usually more than 3 hours long and is a real treasure trove of thoughts and insights about many things, since he’s a smart guy and a professional physicist and philosopher.  I was somewhat disappointed and therefore annoyed by his mentioning of Sam Harris and free will, because he somewhat misrepresented the arguments Sam has made.  I also thought he didn’t quite give adequate serious thought to the existential threat posed by AGI, though he certainly recognizes many potential drawbacks.

Anyway, I just recorded aloud my thoughts in response.  They may or may not be coherent to anyone else, let alone be very interesting.  Nevertheless, I’ll include the recording below.  I think it’s about ten minutes long.

In the past, I’ve been known to turn these audio recordings into “videos” to be posted on YouTube, but I don’t know how many people, if any, ever watch any of them.  But if any of you, listening to these audio files, think I should make them into “videos” too, please let me know.

I did get at least one person replying to a comment I made on another site that they miss my YouTube channel.  That surprised me.  It still exists, of course, but I haven’t added to it in a long time.

Maybe I will.  But it’s so hard to summon the will to do very much.  Maybe my will can become stronger, I don’t know.  Much of my effort and energy in that area is spent just getting through the day while dealing with pain and being alone and anxiety/stress and depression, frankly.

Oh, well, enough moaning.  My apologies.  I’ll try to make tomorrow’s post better, assuming I do one.  I hope you all have an excellent day by your own standards.

*I am diagnosed as Level 2, which is supposed to mean “requiring moderate support”, rather than level 1, which says someone only needs minimal support or some such.  So I’m not even expected to be able to make it very well on my own.

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Tir’d with all these, for restful death I cry, as, to behold desert a blogger born

Hello and good morning.  It’s Thursday.  Further bulletins as events warrant.

I don’t know what to write today.  I’m really, really mentally fatigued.  I feel as if I’ve been working for forty days straight instead of just four.

I guess that’s at least slightly biblical, if you care about such things.  You know, raining forty days (and forty nights) or wandering in the desert for forty days while occasionally getting tempted by the devil and whatnot.

It’s all rather silly, of course, but it is memorable.  Anyway, I write stories about supernatural entities attacking college towns or trapping the spirit of a dead addict in a train station or about whole universes potentially colliding or teenagers becoming demi-vampires.  I can hardly complain if other people’s stories aren’t realistic.  Though, at least I don’t claim, let alone believe, that mine really happened.

Anyway, I haven’t written any new fiction in quite a while, and that is severely demoralizing.  I also haven’t played my guitar or even listened to any music this week.

I have listened to/am listening to Sean Carroll’s Mindscape podcast, because the first one of every month is his “Ask Me Anything” podcast, which lasts over 3 hours and is almost always very interesting.  If you like physics with a bit of philosophy thrown in, you might enjoy it.

Of course, what I should be doing‒or, rather, what I want to want fervently to be doing‒is reading Professor Carroll’s General Relativity textbook, Spacetime and Geometry, as well as other similar sources.  Or I want to wish to go on Brilliant dot org and work through their mathematics and physics and CS courses as completely as I can.  Or I want to yearn to get to work on the Babbel app, learning some German or some Russian or some French‒it doesn’t seem to have any Asian languages (last time I checked), so I can’t use it to bone up on my Japanese, nor to try to learn Cantonese or Mandarin or what have you.

But my mind is so tired.  I don’t even do any singing, let alone playing, like I said.

I know why I’m so tired, or at least, I know a big part of it:  chronic pain.  For just about a quarter of a century‒nearly half of my life‒I have been in pain every day, all day, except for those brief moments when I have had enough medications on board to do their own damage to my mind and my body (depending on which of the many medications it is that I’ve taken).

I’m also always grumpy nowadays, which is really disappointing.  This probably goes back to when my chronic pain really became chronic and exacerbated my depression and everything, but it’s become more persistent over time, and now it seems to be my default state.

The people who know me now just think of me as a grumpy and ornery person by nature; it’s even a bit of a joke, since I know that I am grumpy* and at least retain the capacity to be self-deprecating and not to hold it against people.

But that’s not the way I used to be!  That’s not who I was before my chronic pain started.  I did have trouble with depression (and I was, apparently, always autistic), and that probably sometimes made me irritable, but not like now.  I think‒I recall‒that I was usually a fairly upbeat and enthusiastic person, reasonably friendly and kind whenever I could be.

Anyone reading who knew me in the past, feel free to disabuse me of that notion if it’s wrong.  In some weird way, it might be comforting to learn that I’ve always been just an asshole, I simply didn’t know it back then.

Oh, and teeth; I used to have great teeth.  I took good care of them, flossed all the time and everything.  I had dentists tell me that I was a very boring patient.  But various of the meds I’ve taken (and the mental states into which I’ve fallen, to say nothing of the state prisons into which I’ve fallen) since my chronic pain started have more than decimated my oral hygiene, despite regular, frequent brushing and flossing.

I am a shambles.  I’m a twisted wreck of what I used to be, with only just enough in common with that self to remind me of it.  Or so it seems to me.

I don’t think I’m going to last much longer.  I do not want to last much longer‒not like this.  Every day is a trial by endurance, like the stupid “touch the truck” thing, but as far as I can see, there’s no prize…not even a stupid truck.

It’s more like Space Invaders:  see how long you can keep shooting down all the things that are trying to destroy you, but as you succeed, the onslaught becomes more and more difficult, and it never lets up except for brief seconds when it’s about to send a new, harder wave at you.

And then, once you finally, inevitably fail, it’s just…game over.  It might as well not have happened.  Maybe you can put your initials up if you lasted unusually long (thereby scoring more points than others), but no one really cares, and your mark will be displaced very soon anyway.

It reminds me of the final words of my story Solitaire, which you can get as a stand-alone story or in Kindle format or hard cover in Dr. Elessar’s Cabinet of Curiosities.  Now that’s a story that’s not silly, but it is very dark and horrifying.  It’s also short, so if you’re interested, it won’t take much of your time.

Okay, well, that’s it for now.  Unless you’re lucky, I’ll write a post tomorrow and also on Saturday.

TTFN

*I sometimes say that I am an amalgam of the Seven Dwarves:  I’m occasionally happy, I am sometimes sneezy, I’m quite bashful in many situations, I’m frequently sleepy but rarely enough to stay asleep for long, I’m definitely often dopey, I’m usually grumpy…but I’m always Doc.

by

“Shell smashed, juices flowing, wings twitch, legs are going…”

It’s Tuesday now, and I’m going to work again, despite‒as the Beatles song puts it‒feeling low down.  My trouble is, I more or less feel low down almost every day.  What am I supposed to do about it by staying at the house?  That’s likely just to make me feel worse, because then I’ll just be alone with one of my least favorite people‒me‒and feeling non-productive and useless.

At least I wouldn’t feel “hysterical and useless”.  I don’t know if I’ve ever been what would be called “hysterical” in my life‒I tend to bottle things up and slash and burn my own figurative innards (and sometimes my literal skin) rather than outwardly flipping out‒but if I have, it’s been quite a long time.

I guess I was probably close to hysterical the time I called the old version of “the hotline” and got picked up by a few undertrained Palm Beach County deputies who did nerve damage to my left wrist with a poorly applied handcuff before dropping me at a clearly underfunded emergency mental health facility.  But I think my hysteria was at least somewhat justified at the time.

That was when I was out on bail, had already lost everything, was effectively homeless, and had very few hopes for much good happening ever again in my life.

I wasn’t wrong, either.  Even the psychiatrist whom I saw for the follow up to that 24-hour hold admitted that he thought there was no way someone wouldn’t be depressed if they were going through what I was experiencing.  He knew I was a doctor, as was he, of course, so he had a certain amount more personal sympathy than he might have had for someone else, but I think it was the shape of the situation, not the specifics, that he thought worthy of despondency if not outright despair.

Anyway, that was a horrible stretch of time, and when I was offered a plea bargain I took it, not because I was actually guilty, but because I saw no way of fighting the whole stupid thing with no money and no real allies in the process.  I hoped at least to have it done in a relatively short amount of time (three years minus gain time) so I would be able to see my kids again before I had missed too much of their lives*.

This highlights how utterly, damnably inadequate our criminal “justice” system is.  The fact that a person who can afford a private attorney can consistently expect fewer convictions, lighter sentences for lesser “crimes”, and even often doesn’t serve time despite having been convicted (see The Donald) than people who don’t have the capacity to hire private lawyers is an absolute and inexcusable travesty.

The word “justice” should not be allowed within a hundred lightyears of that system.  I would say it’s a joke, but jokes are more worthy of respect.  It is, instead, a low-flying, long-term catastrophe, and no one who would like to live in a just society should support it as it is.  No one should be allowed to have private representation in criminal trials unless everyone gets it.  Otherwise those with more money are effectively not subject to the same laws as everyone else, and that includes everything from petty shit up to murder (see OJ), which at the very least in practice violates the Constitutional guarantee of equal protection under the law.

Don’t even get started on sex crimes.  I think we all know how rarely and haphazardly they are punished, let alone prevented.

It would be amusing if someone set up a service whereby they would provide assistance to women (and, yes, men) who were the victims of unpunished sexual assault by helping to get rid of the bodies of their assailants (if they killed them themselves) or just helping to delete the perpetrators from start to finish.  Of course, this could easily run afoul of the crucially important notion of due process, without which laws might as well not really exist, but our government(s) are failing miserably in that crucial area anyway.

Enough fantasizing.  I barely have the energy to get up and live my own so-called life, let alone to set up illicit vigilante services.  I am very tired and I am in continuous pain, and I have very little notion of anything good happening in my future.  A few things in my life now are wonderful, of course‒my youngest, my sister, my brother, and yes, my son, since at least I know that he is doing well, and of course, you readers are pretty darn great‒but I know that I am not wonderful.

I am not much more charming or beneficial than a growth of black mold or a teratoma (or even a less benign tumor).  Maybe tumors and mold growths have rights of some sort in an idealized world, if any living thing does.  But they cannot expect to be welcomed or loved or supported.  They are generally only worthy of removal and destruction if anything at all.

I don’t know what the point of this post is, but then again, I don’t know what the point of much of anything is, least of all the point of me.

Whatever.  Never mind.

*That turned out to be a pipe dream.  I also stayed in Florida instead of remaining with my parents up north after getting out of prison for basically the same reason.  I was severely and devastatingly disappointed when my kids themselves asked me not to pursue my legal right to visitation once I was out, because it would be too disruptive of their lives.  I could not in good conscience selfishly force myself upon their time‒not after I had screwed everything up so much and hurt them thereby‒so I acquiesced.  I can easily sympathize when people don’t want me around.  Anyway, now at least I am interacting regularly with my youngest, and that’s a wonderful thing‒it’s better than I surely deserve‒but my oldest still doesn’t want to have anything to do with me.  Most of you reading this blog post have read my stuff before and have some acquaintance with my mind; can you blame my son for not wanting me around?

by

In nature’s infinite blog of secrecy a little I can read.

Hello and good morning.

I may be brief today*, because I am mentally fairly exhausted.  Yesterday was a bad day for me, pain-wise and mood-wise.  I’ve had large amounts of more than one kind of pain medicine on board, and I felt…well, I felt somewhat less pain in some places, but I’ve started to get some broader symptoms that I sometimes get when I’m taking too many NSAIDs for too long.

My thumbs and my knees and ankles and such are actually feeling wobbly and unstable as well as being generally a bit puffy and plenty sore.  This isn’t really like an inflammatory kind of swelling; that would indeed be a failure of the Non-Steroidal Anti-Inflammatory Drug(s) I take, would it not?  No, this feels more like a sense of having excess fluid in each joint, as well as in between them, and less tautness, less stability, and somewhat ironically, more pain, albeit of a slightly different character that usual.  It’s quite frustrating.

Also, my back and hips and shoulders don’t feel much, if any, better than usual.

I’ve been wondering lately if I might have some form of relatively mild hypermobility syndrome, which often goes along with ASD it seems (some of the causative genes are probably the same, or at least tend to travel together through the genome).

I have long had certain slightly atypical flexibility issues or attributes**.  For instance, I’ve always been able, with a bit of a pull, to put one or the other of my feet behind my head from a seated position.  I can also scratch pretty much any part of my own back, and I have always been able to do this, though I sometimes need to pull one arm a bit with the other.  Also, I have a hard time holding my head straight upright for very long at a time; it’s uncomfortable, and I need to lean it to one side or another pretty much constantly.  Maybe that’s just a weird habit, I don’t know.

Of course, hypermobility can be associated with various kinds of chronic pain, and can certainly make other things worse.  Unfortunately, it’s not something that can be cured, any more than autism can be cured (or any more than having a particular color of eyes or hair can be cured, though they can be masked, as by dyes or contact lenses).

I am far from sure about this tentative self-diagnosis, and I’m always leery of “second year med student syndrome”, but I think I am being reasonably objective here.  Genetic testing would be required to confirm something like Ehlers-Danlos Syndrome, but I don’t meet the criteria for full-blown EDS***, and less full-blown syndromes may not easily (nor cheaply) be testable, or testable at all.

I suppose it doesn’t really matter much.  I do not expect my baseline previous health to be recoverable in any reasonable sense.  This is one reason I’m not too terribly worried about things like heart disease and infections and so on.  Why would I want to live a longer life of the kind I now live?  It’s like asking someone if they want the massive street construction project on their block, that’s slowing traffic and making terrible noise all day and into most nights, to be extended‒not by the workers doing more improvement, but just by working more slowly and being less efficient.

At least yesterday, in between doing payroll, processing deals on an unusually busy day, and trying to discourage my body from committing war crimes against itself, I remembered and indulged in a resource I haven’t used in a while:  I got on bioarXiv and skimmed through the abstracts of some of the more recently uploaded papers in general biology, neuroscience, genetics, molecular biology, and such like.  It can be kind of fun.

I don’t enjoy it as much as I do going to the original arXiv (hosted at my alma mater), which deals in physics, mathematics, computer science and the like.  But the bio site requires less mental effort and is simpler in many ways.  This is at least partly due to the fact that I am an MD, and I got my degree from one of the more research-oriented medical schools (we were required to do a publishable medical science research project as part of our degree) so the terminology is more or less at my fingertips.  This probably would apply even more at medrXiv, at which I spend less time than the latter two.

ArXiv, the physics/maths/CS site, has oodles of interesting articles always up‒I have, for instance, downloaded a PDF of a paper by David Deutsch from there‒but most require more mental effort than on the other sites, because I don’t have as good a handle on some of the jargon, and I often need to review the mathematics involved, or more often try to absorb it for the first time.  Still, it’s very cool, though it’s a real embarrassment of riches; it’s like being in the biggest candy store in the world,  but having only three dollars to your name, and having to choose what to buy with it.

The potential opportunity costs are staggering, but I guess that’s a good problem to have.

Speaking of reviewing mathematics, I found a nice little YouTube channel by a woman from MIT who does good reviews of basic integration and more advanced techniques like integration by parts and trig substitutions and such like.  I find her stuff much less sleep-inducing than the videos on 3Blue1Brown, though Grant has oodles of great videos, well-produced and in-depth but clear, about many topics in mathematics.  Unfortunately, his voice is if anything too calm for me, and his animations, though superb, are if anything too smooth.

I think, also, that I learn better by seeing someone writing the stuff out‒possibly this engages my mirror neurons and thus makes more of my whole brain focused on what’s happening.

Incidentally, the lady mentioned above is not officially affiliated with MIT, she just went there.  But you can actually “attend” lecture courses in various subjects in Physics, in Mathematics, in Economics, in Computer Science, and so on, from MIT at their YouTube channel.  It’s truly remarkable, and if you’re just after learning the stuff but aren’t seeking an Official Piece of Paper™, it’s a tremendous resource!  Stanford also has similar online lecture courses, as I think does CalTech.

I’m pretty sure Harvard does this also, but there’s no need for any of you to go slumming there.  Why not just watch Baby Shark or something‒and Gangnam Style is actually pretty enjoyable.  I know, I know, Steven Pinker is at Harvard, and he’s one of the most enjoyable (and thought-provoking) public thinkers in the world, but I don’t think he gives any of their online lectures.

Although, given the notorious grade inflation known to be rampant at Harvard, you might just get an official “A” from them simply by clicking on one of their videos.

Okay, I’m at the stage of taking cheap shots at Harvard (they do not deserve such disrespect, even though there really is a problem with grade inflation), so I’ll call this post to a close.  I hope you’re all having a better week, year, decade, and life than I am having.  Though, really, if you’re not reading preprint scientific papers for free online, how good can your life be?

TTFN

*I was not.  Perhaps this is analogous to the situation that led to the famous quote about not having time enough to write a short letter‒only in this case, it is not time but mental energy that limits my concision.

**Some of these things are slightly curtailed now because I am too plump, but that’s a different issue.

***No, I do not refer to Ross Perot’s old company, Electronic Data Systems.