chronic pain

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‘Tis all men’s office to speak patience to those that blog under the load of sorrow

Hello and good morning.

I’m back on the smartphone again today, so hopefully I can at least avoid going on and on and on like I did yesterday.  That ought to be easy enough, but apparently, it is not.  I don’t know why I get so “talkative” here all the time, but it doesn’t seem to be because I have anything important to say.

As I’ve noted before, typing on a QWERTY keyboard feels almost more natural than speaking to me (and I do it far more often now) but that’s definitely not true for using the smartphone, and it probably never will be.

For one thing, I haven’t stopped having arthralgia/tendinopathy in and around the bases of my thumbs related to such use.  It’s not severe discomfort, certainly not compared to my chronic pain, but it is there and it is annoying.  It seems, however, to interfere with playing guitar more than with using my smartphone (or anyone else’s, I would guess).

Yesterday, I wasn’t sure I wanted to play any, so I figured I’d give fate a hand in things.  I carry four dollar coins with me every day‒two Susan B. Anthonys and two Sacagaweas‒and I use them to help make decisions when I feel no particular pull in a given direction.  I also use them to clarify my own inclinations:  if I get a result and dislike it, I know that I really want to do the alternate thing.  I’m told that my son has adopted this sort of habit as well.

Anyway, I flipped all four coins and got a unanimous set of heads*, so I played guitar and sang some.  I did it somewhat reluctantly, but when all four ladies agree, I find it hard to ignore them.

It wasn’t anything fancy, I just mainly went through a series of songs I know by heart, plus I think I played through Desperado using the pdf I have of a printout of the chords.  There were a lot of twinges in both thumbs/wrists while I was playing, though.  Still, I’ve come to realize that I have a decent repertoire of songs that I can do off the cuff, so if I needed to do some busking, I could probably do it.

I also recently realized that the Radiohead song(s) Polyethylene (Parts 1 & 2) ends with the same chord on which their song Fake Plastic Trees begins.  That was too funny a coincidence (given the subject matter/titles of the songs, especially), so I’ve taken to playing them as one combined song, a sort of mini-medley.

Several days ago, I even tried taking a video of me playing and singing (not those songs), using the desktop’s camera, and I discovered something:  if I ever do want to record myself doing music again, then I need a new microphone, probably more than one.  The sound quality was terrible, full of clipping and distortion and such.  Also, I need a new face, but that’s a separate matter.

I have also been working on learning Bach’s Two Part Invention number 13 for the guitar (mainly the right hand part so far‒the left hand had to be restranscribed and brought up an octave and I don’t enjoy it quite as much).  This has long been one of my favorite piano pieces to play, though I am way too rusty to play it now on a keyboard.  I used to like it so much that, whenever I was antsy, I would find a surface with an edge and “play” that Bach piece.  I guess I have always been a “stimmer”.

Anyway, all this crap isn’t really here or there, it’s just silly trivia that I’m spouting in lieu of having anything substantive to say.  I’m sorry if it’s boring or all over the place.  My mind has not been doing well lately, in case you haven’t noticed (or just haven’t read my blog lately).

I was just thinking recently about whether it would be workable for me to start going back to writing fiction maybe say two or three days a week (Monday, Wednesday, Friday for instance) and blogging only on the other days.  I don’t know if that would lose me readers on the blog or perhaps bring more people in, but it’s not as though I ever have more than a few dozen people coming to the blog in the first place.

Then again, no one’s exactly champing at the bit to read any of my fiction, either.  This is mainly just a self-indulgent, foolish exercise, a lab sample of concentrated futility.  Come to think of it, that could actually be said about pretty much my entire life since roughly 2013 (at the latest).  Trying to find any meaningfulness in my life since then is like wandering through the ruins of an ancient Egyptian city, looking for a 7-11.

Anyway, that’s enough of my stupidity for now.  Not that my stupidity will stop, but at least I won’t spew any more of it on you for the moment.  I hope you have a day that improves after you finish reading this; it’s unlikely to be much worse, right?

TTFN

*This is not terribly improbable; it will happen in one out of 2 to the 4th, or 1 in 16, runs of four coin flips.

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Imagine whatever headline you want; I don’t care

Welcome to the Monday of the first full week of July in 2026 CE (or AD if you must).  I hope that those of you in the USA had a nice Independence Day weekend.  There are no more significant holidays (that I recall) until at least September, now.

I didn’t do anything to celebrate the holiday‒unless you count trying to burn some kudzu‒because holiday celebrations generally involve other people, family and friends and such like, and I did not have any such group with whom to celebrate.

It’s probably just as well for such groups that I am not a part of them; I’m a serious downer and an unpleasant person* to be around for very long.  This used not to be the case; in my default or older settings, I’m naturally more hyper and sometimes rather silly (that too can be irritating, I fear).  Since my chronic pain began, however, I have become a much grumpier, angrier, more irritable person.  Things that I would have laughed off in the past, or about which I would have been more “philosophical”, easily get my ire up, even tiny little, minor, innocent things.

Using the seven dwarfs as personal descriptions, I spend most of my time these days Grumpy, rarely if ever Happy, frequently Dopey, quite Bashful almost always, from time to time Sneezy, not Sleepy nearly as often as I would prefer.  But I’m always Doc.  Take that for what it’s worth, which is probably nothing.

Anyway, yeah, I didn’t do anything pleasant on Saturday, nor much on Sunday, though at least I did talk on the phone to my sister.

I toyed with the notion of “celebrating” the 4th by making my way to the front of the Palm Beach County courthouse and making a fireworks display in the style of Thích Quảng Đức.  However, it was not only a Saturday, but it was a federal holiday; no one would have been there.  Also, I don’t know that I would have the courage to go through with it.

I need to do something though.  I cannot keep doing what I’m doing.  But I don’t see many options which I’m capable of embracing, given my dearth of personal energy and motivation.

I’m sorry I’m not being more positive or interesting, or at least quirky and strange in a less negative way, today.  Actually, I don’t really know if I’m ever interesting.  But, anyway, I just don’t have the energy right now to pretend not to be depressed, like I often do.  Maybe I’ve been pretending all my life that way**.  They do talk a lot about “masking” in neurodivergent people, and it has struck me as a very accurate and apposite notion since the first time I encountered it.

But, of course, there’s not necessarily any identity underneath such masks.  There’s certainly nothing very consistent, since “who we are” at any given moment or stage of our lives is but a three-dimensional slice of what is actually a four-dimensional being.

In case that sounds weird, I just mean that who we are at any given moment is true for just a point in time, a snapshot of a being that has not only spatial extent but also has a beginning and an end in time and which changes with every moment of that time, taking in and losing particles, maintaining that roughly constant but always altering configuration from frame to frame of of the movie that is a person’s life.

So, a question like “Who am I, really?” is perhaps best answered by saying, “I am the being who is asking that question.”  There is probably no deeper answer, at least not any much more specific one.  There is no “character description” in some Platonic realm that lays out who we really are, or if there is, I’ve encountered not the slightest intimation of it, and I would be very surprised if it existed.

Anyway, enough gobbledegook.  I’m just tired already, and it’s only the very beginning of Monday morning.  I’m so very tired.  I really ought to go before I spoil the party, to paraphrase a good Beatles song (see below).  I fear that I will just be a black cloud for everyone around me today, and probably in general.

I can’t even seem to find a book I can stick with reading right now; I shuffled through several different genres, let alone books, in my Kindle library a few dozen times in recent days, weeks, whatever, trying to find something interesting.  But after a brief time reading each thing I lose momentum and interest.  Even The Noonday Demon, a well-written book about depression, loses me after a bit.  Even Physics isn’t interesting to me, and that’s a bad sign.  Ditto for music, or movies (or shows) or what have you.

Everything is just a drizzly, insipid gray‒metaphorically, and sometimes also literally.  And I sometimes don’t have the energy to keep pretending that I can see anything else.

Like Ed Deepneau said in Stephen King’s Insomnia, “…sometimes the world is full of colors…but now all the colors are turning black.”

Enough, this has gone on too long already.  I apologize.  I hope you have a good day and a good week and a good remainder of your lives.

*More than one person has told me this, and they did not compare notes.

**Probably not.  It would be very bizarre indeed to be born depressed, though the tendency thereto can certainly be congenital, much like both forms of ASD that I have/had.

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“A distant ship smoke on the horizon”

Well, it’s here at last:  the final day of June in 2026 AD/CE.  You might say it’s the hospice day for the first half of this year.  Let us try to make its passing as peaceful and comfortable as we can.  I recommend high doses of opioids.

I’m kidding.  I don’t actually recommend such a thing unless one is in severe pain that’s simply not responding to anything else, or unless all the other stuff is simply too toxic.

That’s a big part of the conundrum of opioids.  All the other types of pain medications‒aspirin, other NSAIDs, acetaminophen, lidocaine injections, steroid injections and so on‒have significant systemic toxicities, even at relatively moderate doses.  They affect the stomach, the kidneys, the liver, the local tissues, the endocrine system, etc.  Quite often, one cannot adequately control significant pain for long using them without causing actual, serious, perilous damage to some of the most essential parts of the body.

On the other hand, opioids work.  They directly hit the pain centers/processors, and they actually can relieve pain, even very severe pain.  But they don’t just relieve physical pain.

Somewhat ironically, that’s one of the big drawbacks.  Though they do not cause systemic or organ toxicity, and they will not trigger diabetes, and they will not cause you ulcers (though they may well constipate you), they can affect your behavior and even your character.  Their relief of psychical pain‒sometimes the only such relief some people have felt in a long, long time‒is like their relief of more visceral pain:  it doesn’t actually correct any underlying disorders.

Well, I suppose if the disorder is simply a neurological misfiring such as that which leads to chronic pain, you could say they do at least act on the area that is dysfunctional.  But they don’t cure it.  They almost never correct even neuropathic pain; they simply squelch the alarm for a bit.  And the successful squelching of the alarms tends to require increasing doses, and can lead to dependence and various other issues.

So, there are no very good, relatively simple corrections for significant pain.  This is probably not a surprise, if you think about it.  In some form, at least, pain is among the oldest things in nature and among the most crucial (ha ha)* functions of nervous systems‒and even things that aren’t quite nervous systems, like the internal communication systems in hydra and jellyfish or the analogous systems of plants.

Living bodies don’t readily give up on pain, and they have good reasons.  Pleasure is nice, and is useful, of course, but it’s like having a pretty picture on your wall or having nice, scented candles in your living room or what have you.  No matter how pretty your decorations, you want to have your fire alarms in good working order.  You want them sensitive enough to go off even in situations without real fires‒the classic case of burnt toast, say‒rather than take the chance that they will not to go off in the case of a real fire.  The first error causes annoyance, perhaps requiring you to wave towels at the sensors and open a lot of windows and so on.  The second error can lead to your house burning down, perhaps with you in it.

Of course, these weighted preferences are not absolute.  If one’s smoke alarms were always going off‒or even going off a significant fraction of the time‒one might very well want to wipe out the whole system, to pull all the plugs, to remove all the batteries,  to flip all the breakers to “off”.  Or, indeed, one might simply want to abandon the house entirely, if there were no way to get the alarms to shut the f*ck up.  One might even be tempted to burn the stupid place down, just as a form of petty revenge against it.

There’s a metaphor in all this, I would imagine.  I’ll leave it as an exercise for you to discern it.  I won’t say it’s particularly clever, but it’s not terrible, and it works pretty well.  Anyway, I’ve dealt with this subject before, many times, I’m sure.  It’s fairly tedious, but it does seem to stick in my mind for some inexplicable reason.  I don’t, however, know how to solve the associated problems.

Ah, well.  There are some things humans aren’t meant to know.

Ha ha ha ha!  Sorry, I couldn’t keep a straight “face” while writing something so very stupid.  Humans aren’t “meant” to know (or not to know) anything, anymore than any particular foodstuff “belongs” on a pizza.  People can try to learn and understand anything, even everything, and ultimately, in the long run, as far as I can tell, the more one knows and understands, the better.

If you want to do your best in a game, you would do well to learn the rules as well as you can.  Because, to quote an old car commercial, in real life there is no reset button.  You are the avatar and you are the player, and when you get blasted into nothingness by the depredations of the game’s limitless antagonists, then for the character and for the player, the game is done.  There is no respawning, there are no experience points, there is no starting again at the last save point.

Game over.

*I say “ha ha” because the word “crucial”, related to the Latin for cross (apparently evolving into its modern usage from a metaphor for arriving at a crossroads), is also related to the word “excruciating” which derives from the Latin use of torturing as if crucifying someone.  And that, of course, relates pretty clearly to the topic of pain.

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I forgot to give this a title at first

This is another lapcom post.  That’s three in a row!

It’s Wednesday now, though why today is named after the “Allfather” is far from clear to me.  Maybe because it’s the “middle” of the week, and Odin (AKA Wodin  AKA Wotan, etc.) supports the weight of time or some such.  I don’t know.  That sort of sounds good, at least.

Anyway, of course, I’m going to work.  It’s payroll day, and the boss should be back from a brief vacation.  It’s remarkable to me how often some people take vacations and so forth.  I’m not against vacations, don’t get me wrong.  But it’s quite annoying when someone takes a vacation while everyone else is working after having asked us to work on days when other people are taking a day off (e.g., Memorial Day).

It doesn’t really matter, I guess.  I have nothing to do on days off, let alone during any prolonged vacation, anyway.  I certainly have no one with whom to spend my time off, whatever it may be, except in rare snippets.

I don’t know.  I suppose some people out there might think I ought to do something about that, but the fact is, I don’t feel good about myself, whatever that might mean, and it is hard to try to inflict myself upon other people; this blog alone already feels presumptuous and probably annoying.

It is a persistent aspect of my experience of myself and the world that I feel strong self-disgust and self-contempt.  This is quite contrary to the concept of “self-compassion” often touted in discussions of getting an autism diagnosis as an adult and learning about it and some of why your experience in life has been the way it has been.

Getting diagnosed and learning more hasn’t given me any more generous attitude toward myself, at least not so far.  Maybe if there were more resources and support available, I might be doing better with it*.

I have also read suggestions about finding discussion or support groups or online meetups or even in person meetups.  This seems a slightly contradictory suggestion for people who are, as part of the very description of the disorder, socially troubled.  I even get tense whenever new people come to work in the office, until I get used to them.  I certainly don’t see myself trying to interact with groups of strangers, even if they are neurodivergent.

I had a little bit of connection on Instagram with some sort-of communities.  At least, there were other people there with some degree of similar experiences, though interaction was minimal and artificial.  Anyway, Meta arbitrarily kicked me off their platforms without telling me why, so fuck them to death.

I used to be better at this socialization sort of thing.  I probably would be better at a lot of it if not for chronic pain, but it’s rather futile to dwell on that very much.  In this, I try to follow the recommendations of the Stoics.  But sometimes I dwell on it, nevertheless.  Sue me, Marcus Aurelius.

Anyway, I don’t think I have anything productive to discuss today—not that yesterday’s weird, meandering post, which ended up focusing on prime factorizations somehow, was productive—and I don’t know that anything is likely to spill out of me at this point that’s going to be of any use to anyone, even for entertainment.  Sorry.

I did a brief audio recording yesterday about something that was nagging me relating to Sean Carroll’s answer to a listener question on his Mindscape podcast.  He does an “Ask Me Anything” podcast every month; it’s usually more than 3 hours long and is a real treasure trove of thoughts and insights about many things, since he’s a smart guy and a professional physicist and philosopher.  I was somewhat disappointed and therefore annoyed by his mentioning of Sam Harris and free will, because he somewhat misrepresented the arguments Sam has made.  I also thought he didn’t quite give adequate serious thought to the existential threat posed by AGI, though he certainly recognizes many potential drawbacks.

Anyway, I just recorded aloud my thoughts in response.  They may or may not be coherent to anyone else, let alone be very interesting.  Nevertheless, I’ll include the recording below.  I think it’s about ten minutes long.

In the past, I’ve been known to turn these audio recordings into “videos” to be posted on YouTube, but I don’t know how many people, if any, ever watch any of them.  But if any of you, listening to these audio files, think I should make them into “videos” too, please let me know.

I did get at least one person replying to a comment I made on another site that they miss my YouTube channel.  That surprised me.  It still exists, of course, but I haven’t added to it in a long time.

Maybe I will.  But it’s so hard to summon the will to do very much.  Maybe my will can become stronger, I don’t know.  Much of my effort and energy in that area is spent just getting through the day while dealing with pain and being alone and anxiety/stress and depression, frankly.

Oh, well, enough moaning.  My apologies.  I’ll try to make tomorrow’s post better, assuming I do one.  I hope you all have an excellent day by your own standards.

*I am diagnosed as Level 2, which is supposed to mean “requiring moderate support”, rather than level 1, which says someone only needs minimal support or some such.  So I’m not even expected to be able to make it very well on my own.

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Tir’d with all these, for restful death I cry, as, to behold desert a blogger born

Hello and good morning.  It’s Thursday.  Further bulletins as events warrant.

I don’t know what to write today.  I’m really, really mentally fatigued.  I feel as if I’ve been working for forty days straight instead of just four.

I guess that’s at least slightly biblical, if you care about such things.  You know, raining forty days (and forty nights) or wandering in the desert for forty days while occasionally getting tempted by the devil and whatnot.

It’s all rather silly, of course, but it is memorable.  Anyway, I write stories about supernatural entities attacking college towns or trapping the spirit of a dead addict in a train station or about whole universes potentially colliding or teenagers becoming demi-vampires.  I can hardly complain if other people’s stories aren’t realistic.  Though, at least I don’t claim, let alone believe, that mine really happened.

Anyway, I haven’t written any new fiction in quite a while, and that is severely demoralizing.  I also haven’t played my guitar or even listened to any music this week.

I have listened to/am listening to Sean Carroll’s Mindscape podcast, because the first one of every month is his “Ask Me Anything” podcast, which lasts over 3 hours and is almost always very interesting.  If you like physics with a bit of philosophy thrown in, you might enjoy it.

Of course, what I should be doing‒or, rather, what I want to want fervently to be doing‒is reading Professor Carroll’s General Relativity textbook, Spacetime and Geometry, as well as other similar sources.  Or I want to wish to go on Brilliant dot org and work through their mathematics and physics and CS courses as completely as I can.  Or I want to yearn to get to work on the Babbel app, learning some German or some Russian or some French‒it doesn’t seem to have any Asian languages (last time I checked), so I can’t use it to bone up on my Japanese, nor to try to learn Cantonese or Mandarin or what have you.

But my mind is so tired.  I don’t even do any singing, let alone playing, like I said.

I know why I’m so tired, or at least, I know a big part of it:  chronic pain.  For just about a quarter of a century‒nearly half of my life‒I have been in pain every day, all day, except for those brief moments when I have had enough medications on board to do their own damage to my mind and my body (depending on which of the many medications it is that I’ve taken).

I’m also always grumpy nowadays, which is really disappointing.  This probably goes back to when my chronic pain really became chronic and exacerbated my depression and everything, but it’s become more persistent over time, and now it seems to be my default state.

The people who know me now just think of me as a grumpy and ornery person by nature; it’s even a bit of a joke, since I know that I am grumpy* and at least retain the capacity to be self-deprecating and not to hold it against people.

But that’s not the way I used to be!  That’s not who I was before my chronic pain started.  I did have trouble with depression (and I was, apparently, always autistic), and that probably sometimes made me irritable, but not like now.  I think‒I recall‒that I was usually a fairly upbeat and enthusiastic person, reasonably friendly and kind whenever I could be.

Anyone reading who knew me in the past, feel free to disabuse me of that notion if it’s wrong.  In some weird way, it might be comforting to learn that I’ve always been just an asshole, I simply didn’t know it back then.

Oh, and teeth; I used to have great teeth.  I took good care of them, flossed all the time and everything.  I had dentists tell me that I was a very boring patient.  But various of the meds I’ve taken (and the mental states into which I’ve fallen, to say nothing of the state prisons into which I’ve fallen) since my chronic pain started have more than decimated my oral hygiene, despite regular, frequent brushing and flossing.

I am a shambles.  I’m a twisted wreck of what I used to be, with only just enough in common with that self to remind me of it.  Or so it seems to me.

I don’t think I’m going to last much longer.  I do not want to last much longer‒not like this.  Every day is a trial by endurance, like the stupid “touch the truck” thing, but as far as I can see, there’s no prize…not even a stupid truck.

It’s more like Space Invaders:  see how long you can keep shooting down all the things that are trying to destroy you, but as you succeed, the onslaught becomes more and more difficult, and it never lets up except for brief seconds when it’s about to send a new, harder wave at you.

And then, once you finally, inevitably fail, it’s just…game over.  It might as well not have happened.  Maybe you can put your initials up if you lasted unusually long (thereby scoring more points than others), but no one really cares, and your mark will be displaced very soon anyway.

It reminds me of the final words of my story Solitaire, which you can get as a stand-alone story or in Kindle format or hard cover in Dr. Elessar’s Cabinet of Curiosities.  Now that’s a story that’s not silly, but it is very dark and horrifying.  It’s also short, so if you’re interested, it won’t take much of your time.

Okay, well, that’s it for now.  Unless you’re lucky, I’ll write a post tomorrow and also on Saturday.

TTFN

*I sometimes say that I am an amalgam of the Seven Dwarves:  I’m occasionally happy, I am sometimes sneezy, I’m quite bashful in many situations, I’m frequently sleepy but rarely enough to stay asleep for long, I’m definitely often dopey, I’m usually grumpy…but I’m always Doc.

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“Shell smashed, juices flowing, wings twitch, legs are going…”

It’s Tuesday now, and I’m going to work again, despite‒as the Beatles song puts it‒feeling low down.  My trouble is, I more or less feel low down almost every day.  What am I supposed to do about it by staying at the house?  That’s likely just to make me feel worse, because then I’ll just be alone with one of my least favorite people‒me‒and feeling non-productive and useless.

At least I wouldn’t feel “hysterical and useless”.  I don’t know if I’ve ever been what would be called “hysterical” in my life‒I tend to bottle things up and slash and burn my own figurative innards (and sometimes my literal skin) rather than outwardly flipping out‒but if I have, it’s been quite a long time.

I guess I was probably close to hysterical the time I called the old version of “the hotline” and got picked up by a few undertrained Palm Beach County deputies who did nerve damage to my left wrist with a poorly applied handcuff before dropping me at a clearly underfunded emergency mental health facility.  But I think my hysteria was at least somewhat justified at the time.

That was when I was out on bail, had already lost everything, was effectively homeless, and had very few hopes for much good happening ever again in my life.

I wasn’t wrong, either.  Even the psychiatrist whom I saw for the follow up to that 24-hour hold admitted that he thought there was no way someone wouldn’t be depressed if they were going through what I was experiencing.  He knew I was a doctor, as was he, of course, so he had a certain amount more personal sympathy than he might have had for someone else, but I think it was the shape of the situation, not the specifics, that he thought worthy of despondency if not outright despair.

Anyway, that was a horrible stretch of time, and when I was offered a plea bargain I took it, not because I was actually guilty, but because I saw no way of fighting the whole stupid thing with no money and no real allies in the process.  I hoped at least to have it done in a relatively short amount of time (three years minus gain time) so I would be able to see my kids again before I had missed too much of their lives*.

This highlights how utterly, damnably inadequate our criminal “justice” system is.  The fact that a person who can afford a private attorney can consistently expect fewer convictions, lighter sentences for lesser “crimes”, and even often doesn’t serve time despite having been convicted (see The Donald) than people who don’t have the capacity to hire private lawyers is an absolute and inexcusable travesty.

The word “justice” should not be allowed within a hundred lightyears of that system.  I would say it’s a joke, but jokes are more worthy of respect.  It is, instead, a low-flying, long-term catastrophe, and no one who would like to live in a just society should support it as it is.  No one should be allowed to have private representation in criminal trials unless everyone gets it.  Otherwise those with more money are effectively not subject to the same laws as everyone else, and that includes everything from petty shit up to murder (see OJ), which at the very least in practice violates the Constitutional guarantee of equal protection under the law.

Don’t even get started on sex crimes.  I think we all know how rarely and haphazardly they are punished, let alone prevented.

It would be amusing if someone set up a service whereby they would provide assistance to women (and, yes, men) who were the victims of unpunished sexual assault by helping to get rid of the bodies of their assailants (if they killed them themselves) or just helping to delete the perpetrators from start to finish.  Of course, this could easily run afoul of the crucially important notion of due process, without which laws might as well not really exist, but our government(s) are failing miserably in that crucial area anyway.

Enough fantasizing.  I barely have the energy to get up and live my own so-called life, let alone to set up illicit vigilante services.  I am very tired and I am in continuous pain, and I have very little notion of anything good happening in my future.  A few things in my life now are wonderful, of course‒my youngest, my sister, my brother, and yes, my son, since at least I know that he is doing well, and of course, you readers are pretty darn great‒but I know that I am not wonderful.

I am not much more charming or beneficial than a growth of black mold or a teratoma (or even a less benign tumor).  Maybe tumors and mold growths have rights of some sort in an idealized world, if any living thing does.  But they cannot expect to be welcomed or loved or supported.  They are generally only worthy of removal and destruction if anything at all.

I don’t know what the point of this post is, but then again, I don’t know what the point of much of anything is, least of all the point of me.

Whatever.  Never mind.

*That turned out to be a pipe dream.  I also stayed in Florida instead of remaining with my parents up north after getting out of prison for basically the same reason.  I was severely and devastatingly disappointed when my kids themselves asked me not to pursue my legal right to visitation once I was out, because it would be too disruptive of their lives.  I could not in good conscience selfishly force myself upon their time‒not after I had screwed everything up so much and hurt them thereby‒so I acquiesced.  I can easily sympathize when people don’t want me around.  Anyway, now at least I am interacting regularly with my youngest, and that’s a wonderful thing‒it’s better than I surely deserve‒but my oldest still doesn’t want to have anything to do with me.  Most of you reading this blog post have read my stuff before and have some acquaintance with my mind; can you blame my son for not wanting me around?

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In nature’s infinite blog of secrecy a little I can read.

Hello and good morning.

I may be brief today*, because I am mentally fairly exhausted.  Yesterday was a bad day for me, pain-wise and mood-wise.  I’ve had large amounts of more than one kind of pain medicine on board, and I felt…well, I felt somewhat less pain in some places, but I’ve started to get some broader symptoms that I sometimes get when I’m taking too many NSAIDs for too long.

My thumbs and my knees and ankles and such are actually feeling wobbly and unstable as well as being generally a bit puffy and plenty sore.  This isn’t really like an inflammatory kind of swelling; that would indeed be a failure of the Non-Steroidal Anti-Inflammatory Drug(s) I take, would it not?  No, this feels more like a sense of having excess fluid in each joint, as well as in between them, and less tautness, less stability, and somewhat ironically, more pain, albeit of a slightly different character that usual.  It’s quite frustrating.

Also, my back and hips and shoulders don’t feel much, if any, better than usual.

I’ve been wondering lately if I might have some form of relatively mild hypermobility syndrome, which often goes along with ASD it seems (some of the causative genes are probably the same, or at least tend to travel together through the genome).

I have long had certain slightly atypical flexibility issues or attributes**.  For instance, I’ve always been able, with a bit of a pull, to put one or the other of my feet behind my head from a seated position.  I can also scratch pretty much any part of my own back, and I have always been able to do this, though I sometimes need to pull one arm a bit with the other.  Also, I have a hard time holding my head straight upright for very long at a time; it’s uncomfortable, and I need to lean it to one side or another pretty much constantly.  Maybe that’s just a weird habit, I don’t know.

Of course, hypermobility can be associated with various kinds of chronic pain, and can certainly make other things worse.  Unfortunately, it’s not something that can be cured, any more than autism can be cured (or any more than having a particular color of eyes or hair can be cured, though they can be masked, as by dyes or contact lenses).

I am far from sure about this tentative self-diagnosis, and I’m always leery of “second year med student syndrome”, but I think I am being reasonably objective here.  Genetic testing would be required to confirm something like Ehlers-Danlos Syndrome, but I don’t meet the criteria for full-blown EDS***, and less full-blown syndromes may not easily (nor cheaply) be testable, or testable at all.

I suppose it doesn’t really matter much.  I do not expect my baseline previous health to be recoverable in any reasonable sense.  This is one reason I’m not too terribly worried about things like heart disease and infections and so on.  Why would I want to live a longer life of the kind I now live?  It’s like asking someone if they want the massive street construction project on their block, that’s slowing traffic and making terrible noise all day and into most nights, to be extended‒not by the workers doing more improvement, but just by working more slowly and being less efficient.

At least yesterday, in between doing payroll, processing deals on an unusually busy day, and trying to discourage my body from committing war crimes against itself, I remembered and indulged in a resource I haven’t used in a while:  I got on bioarXiv and skimmed through the abstracts of some of the more recently uploaded papers in general biology, neuroscience, genetics, molecular biology, and such like.  It can be kind of fun.

I don’t enjoy it as much as I do going to the original arXiv (hosted at my alma mater), which deals in physics, mathematics, computer science and the like.  But the bio site requires less mental effort and is simpler in many ways.  This is at least partly due to the fact that I am an MD, and I got my degree from one of the more research-oriented medical schools (we were required to do a publishable medical science research project as part of our degree) so the terminology is more or less at my fingertips.  This probably would apply even more at medrXiv, at which I spend less time than the latter two.

ArXiv, the physics/maths/CS site, has oodles of interesting articles always up‒I have, for instance, downloaded a PDF of a paper by David Deutsch from there‒but most require more mental effort than on the other sites, because I don’t have as good a handle on some of the jargon, and I often need to review the mathematics involved, or more often try to absorb it for the first time.  Still, it’s very cool, though it’s a real embarrassment of riches; it’s like being in the biggest candy store in the world,  but having only three dollars to your name, and having to choose what to buy with it.

The potential opportunity costs are staggering, but I guess that’s a good problem to have.

Speaking of reviewing mathematics, I found a nice little YouTube channel by a woman from MIT who does good reviews of basic integration and more advanced techniques like integration by parts and trig substitutions and such like.  I find her stuff much less sleep-inducing than the videos on 3Blue1Brown, though Grant has oodles of great videos, well-produced and in-depth but clear, about many topics in mathematics.  Unfortunately, his voice is if anything too calm for me, and his animations, though superb, are if anything too smooth.

I think, also, that I learn better by seeing someone writing the stuff out‒possibly this engages my mirror neurons and thus makes more of my whole brain focused on what’s happening.

Incidentally, the lady mentioned above is not officially affiliated with MIT, she just went there.  But you can actually “attend” lecture courses in various subjects in Physics, in Mathematics, in Economics, in Computer Science, and so on, from MIT at their YouTube channel.  It’s truly remarkable, and if you’re just after learning the stuff but aren’t seeking an Official Piece of Paper™, it’s a tremendous resource!  Stanford also has similar online lecture courses, as I think does CalTech.

I’m pretty sure Harvard does this also, but there’s no need for any of you to go slumming there.  Why not just watch Baby Shark or something‒and Gangnam Style is actually pretty enjoyable.  I know, I know, Steven Pinker is at Harvard, and he’s one of the most enjoyable (and thought-provoking) public thinkers in the world, but I don’t think he gives any of their online lectures.

Although, given the notorious grade inflation known to be rampant at Harvard, you might just get an official “A” from them simply by clicking on one of their videos.

Okay, I’m at the stage of taking cheap shots at Harvard (they do not deserve such disrespect, even though there really is a problem with grade inflation), so I’ll call this post to a close.  I hope you’re all having a better week, year, decade, and life than I am having.  Though, really, if you’re not reading preprint scientific papers for free online, how good can your life be?

TTFN

*I was not.  Perhaps this is analogous to the situation that led to the famous quote about not having time enough to write a short letter‒only in this case, it is not time but mental energy that limits my concision.

**Some of these things are slightly curtailed now because I am too plump, but that’s a different issue.

***No, I do not refer to Ross Perot’s old company, Electronic Data Systems.

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“You look so tired, unhappy…”

I don’t think I’m going to write anything interesting or thought provoking today, as I sort of did deliberately earlier this week (Monday more than Tuesday).  I certainly don’t expect to write anything profound.  I’m actually just very mentally and emotionally* tired right now, which is nothing new, but which is more onerous sometimes than others.  Such is the case with all things, I guess.

Yesterday, for most of the day, I felt extremely grumpy, by which I mean that basically everything was bothering me.  Part of this is no doubt due to my recent exacerbation and complication of my chronic pain:  I did something to injure my right knee, and it’s still very stiff and sore, especially when I first try to rise after being seated for a while.

It eases a bit after I walk a little; the stiffness seems to work itself out some.  But then it just re-seizes up as I sit, and it’s quite painful once I move again.  It certainly isn’t enough to distract from my chronic pain, but it does add extra highlights to it.  I guess at least it keeps things from being too dull (though the pain still often feels extremely boring‒in the “drill bit” sense, not the “tedious” sense**).

I’m sure it’s all plenty boring for you to read, probably in more than one sense.  I apologize.  You come to my blog in good faith, expecting to find something at least tolerably worth reading, and I keep spewing my vitriol and discomfort all over your minds.  Again, I am sorry.

I’m so tired of my life, though.  Yesterday, I don’t know how many times, or in how many ways, I fantasized about…well, you know.  I’m just very drained, and I feel as though there are always new setbacks.  I suppose that’s true, in a sense.  It’s probably true for almost everyone, in some fashion or other.  That doesn’t make it better or easier to bear, though.  If anything, it just reinforces my sense of despondency about the world and the universe.

Ordinarily, I can be philosophical about such things, embracing the apparent lack of meaning partly because it means that people can create and choose the meanings of their own lives.  But chronic pain and chronic insomnia just chew away at one’s sense of optimism or even one’s sense of acceptance.  Chronic pain tends to make one hostile and even spiteful, especially when one is dealing with it all by oneself.

Also, my thumbs are sore, despite the fact that I’m trying to find ways to give them a rest.  And the stupid rash on my right hand that seems to have started (years ago) due to some kind of contact hypersensitivity to something in the “rubberized” grip of those Pilot® gel-roller pens (which I love but, alas, must avoid) continues to act up, and as a consequence the skin near the crook of my right thumb is dry and splitting open, which can sting quite a bit.

Oh, and I’d also like to register a complaint about this parrot what I bought not half an hour ago from this very boutique.

You want to complain?  Look at these shoes!  I’ve only had them three weeks, and the heels are worn right through.  If you complain, nothing happens, you might as well not bother.

Something like that, anyway.  It is terribly annoying.  O that this too, too solid flesh would melt, thaw, and resolve itself into a dew.  Fie on’t!  O fie! ‘Tis an unweeded garden that grows to seed; things rank and gross in nature possess it merely.

And if the cloudbursts thunder in your ear‒you shout and no one seems to hear‒and if the band you’re in starts playing different tunes, I’ll see you on the dark side of the moon.

Sorry about that hodgepodge of quotes from various brilliant British artists from different times and very different genres.  Such are my go-tos, as they say.

What is it about Britain that has led to everyone from Shakespeare to Newton, to Darwin, to Maxwell, to Monty Python, to Tolkien, to Orwell, To Kipling and Wells, to Byron and both Shelleys, to the Beatles and the Stones and Pink Floyd and Led Zeppelin and Radiohead and the Police and so on and so on?  Maybe it’s the chronic emotional repression, which leads to the build-up of thoughts and feelings that have to burst out somewhere?

Except I don’t think that’s how such things as feelings actually work.  Maybe it’s just that it’s not culturally “acceptable” there to express one’s deepest feelings and concerns except through formal art.  Keep a stiff upper lip, everyone‒unless you’re making an embouchure to play an instrument.  Then you can blow away!

Speaking of which, that’s probably what many of you wish you could do to me right now.  With that in mind, and since I don’t think I’ve something more to say, I will draw to a close.  I hope you all have a very good day.

*Aren’t those really just part of the same thing, though?  I think so.  Emotions are a kind of thought, or at least a state of mind.

**Though it is all but unbearably tedious, believe me.

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A brief post for the end of the week

First off, I’m sorry about not writing a post yesterday, in case anyone was significantly disappointed.  I had a very bad night on Wednesday night, both with respect to pain and with respect to sleep‒the latter having been at least somewhat influenced by the former, of course.  In any case, come yesterday morning, I was too wiped out to be able to get up and go to the office.  In fact, I was still in pretty bad pain all day, even though I stayed at the house, and on through last night.

I’m actually still in pain now, of course.  But at least I’ve been physically and mentally resting as much as I can, so I can make it through today‒though I have been maxing out on my medications pretty much across the board, so hopefully at least things don’t get worse.  I don’t really know what I’ll do if they do.

That, I’m afraid, about as interesting as my life tends to get at this point, and I’m sure it’s quite boring to read.  That’s got to be one of the ultimate insults:  your experiences are unpleasant enough to be worthy of the proverbial curse, “may you live in interesting times”, and yet they’re still not interesting.  I guess that’s sort of ironic, at least.  Irony is perhaps the last, desperate refuge for squeezing some narrative value out of pointless events.

I don’t remember what my posts from earlier this week entailed.  I do recall freaking out not long ago about the changes WordPress had made, without warning and without option.  That was really frustrating, let there be no doubt about that.  Peculiarly, I’ve tended to be much better at handling matters of life and death‒and I’ve dealt with quite a few‒than with changes to my routine and to things to which I’ve become accustomed.

I haven’t been reading much this week, not nearly as much as I usually do.  I even have a couple of new hard copy books‒by which I mean they are physical, printed books instead of e-books, not that they have anything to do with that idiotic old tabloid TV show‒but I haven’t taken one out of its package, and I’ve read about a paragraph of the other.  I also haven’t read any of the several hundred Kindle books I have.  I’m just finding it very difficult to concentrate even on my greatest lifelong pleasure/pastime* (reading).  I certainly haven’t written any fiction.

I did play a bit of guitar and sang on Wednesday morning, for the first time in over a week (I think).  My heart wasn’t really in it, though, and I made a lot of mistakes I don’t usually make.  My singing was okay, though.

At least I am off this weekend.  I wish that meant I would be likely to get a good rest, but at least I’ll get some relative rest.  That’s got to be worth something.  All rest is relative rest in some sense, anyway; one could, in principle, always have rested even better than one really did.  So I certainly don’t wish to  belittle or disrespect the amount of rest I am going to be getting.  I just know that it’s going to be inadequate to make me ready to face the week next week.  And I know from experience that whatever little mental energy I restore will be gone by the end of Monday, let alone the rest of the week.

Obviously, I’ll be able to get through the week literally‒or, well, I expect to be able to, though I suppose I could be wrong‒but that’s merely because it’s a matter of habit.  It can be harder to break a habit than to continue it, even when the habit requires energy.  That just seems to be how these nervous system things are set up.

Okay, I think I’m going to call it good now, for today and for this week.  I don’t have any interesting thoughts at the moment, and so I’m just wasting my readers’ time shuffling through my moans and complaints.  I’m sure you have better things to do.  I hope you have a very good day and a very good weekend.

*I originally wrote the typo “pastome” which I think is pretty great as typos go, especially given the subject.

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Wotan can KEEP this day as far as I’m concerned

Okay, first off, to begin with‒or should it be “with which to begin”?‒it is the 6th of May today (a Wednesday, though that fact is not terribly relevant) and to continue the Star Wars related references, I will note that today is the date of the Revenge of the Sixth.

Get it?  It’s a bit tortured, I’m afraid.  I don’t think anyone would have come up with the notion had it not been for “May the 4th be with you”.  That, at least, is a more straightforward play on words, and is specific to this month and that day.  “Revenge of the Sixth” doesn’t specify the month; one could, in principle, use that line on any 6th of a month.  But one would not, because this day is “celebrated” only in reaction to Star Wars Day on May 4th.

It’s sort of funny and fun, but it reduces the Sith to merely a perverse notion, existing only in reaction to the Jedi, like a whole order of Force users acting out the parts of rebellious teenagers.

Of course, probably that was sort of what happened in George Lucas’s mind when he came up with the Sith:  They were the anti-Jedi, a parity-violating, distorted reflection of the “good guys”.  But, of course, a whole philosophical movement that sprang up only as an enemy to another is intellectually and narratively vacuous.

It’s somewhat reminiscent of the moronic religious people who seem to think that if one does not believe in God, then one must worship Satan.  It can be very hard for some people to get around the whole “if you’re not with me, then you’re my enemy” notion.  Only in this case it’s not even a philosophical enmity, but is merely a reactive enmity.  Also, it doesn’t take too much thought to realize that such a situation would seem to imply that whichever of the two sides came first would be assumed to be the “good guys”.

But one doesn’t look at any random patch of spacetime and think, “if there’s no electron in this spot then there must instead be a positron”, or vice versa.  As a matter of physics and of logic, this is a pretty glaring error.  Just as indifference, not hate, is the complete absence of love, the default state of reality is not the opposite of some particular presence, it is simple absence.  In physics, that means all the quantum fields being in their vacuum states, with minimal energy (it’s not zero because of the uncertainty principle).

In the Star Wars extended universe, the Sith have a background that is separate in origin (I think) from the Jedi.  I think they began as a race of Force users.  I could be wrong about this; I’m not all that much of a Star Wars nerd.

Ask me questions about the backgrounds of things in the universe(s) of my stories and I could share some serious lore with you.  But no one is going to ask me about those because essentially no one has read them.

Boy, it would be cool to have someone write fanfiction based in the worlds of my stories.  I remember reading a lot of Harry Potter fanfiction while waiting for the next book(s) to come out, back in the day.  Some of it was bad, of course, but not much of it, and some of it was really quite good.  People who love to read and feel the urge to write an homage out of love for a work and its characters tend to be at least somewhat okay at it.

Some of it was downright brilliant.

Of course, humans being what humans are, some of it was smut.  There’s nothing really wrong with that, when you get right down to it.  Members (ha ha) of a sexually reproducing species are going to tend to find sex…engaging, to say the least.  Every human alive (and that has ever lived) comes from a long, unbroken line of ancestors who had sex at least once*.  That includes your parents and your grandparents, by the way.  You’re welcome.

In a species like humans, those who are more into sex and more driven toward it and obsessed with it are, ceteris paribus, going to have more offspring.  It won’t take very many generations for any genes that make one less interested in sex to fade out of the gene pool‒again, and very importantly, ceteris paribus.

All other things are essentially never equal, of course, and there are complex tradeoffs in all such behavioral tendencies, but that’s a can of bees I really don’t have the energy to open right at this moment.

I’m in a truly terrible amount of pain this morning, I’m afraid, continuing from last night and yesterday and so on. and it’s making it a bit hard to write, though that somehow doesn’t keep me from running off at the figurative mouth.

I think it would be harder for me not to write right now, though.  I don’t know for sure.  I haven’t tried.

Even thinking about not writing at all makes me feel squirmy and cringey and quite strange.  It’s not quite as bad not to play or listen to or sing any music‒which I haven’t done for weeks now, alas‒but that does also feel bad.

But I think if I were to stop writing, and at least every week sharing my writing‒particularly now that I don’t have access to Facebook or Threads‒I would pretty rapidly feel that I didn’t even exist.

I have no real life here from day to day.  There is no joy, there is only (attempted) distraction.  Other than my episodic interactions with my youngest child (which are distinctly good and real and joyful to me, a real oasis in the desert) everything in my life from day to day feels less real than the events of the most banal video game.

Yesterday, I started searching eBay and other online sources for used ECT devices (they are out there) and looking up whether one can legally buy insulin over the counter (one can, to some degree), or what medications are prone to produce seizures.  The idea was to see if it would be possible for me to induce a seizure in myself and hopefully treat my depression.

I know it can’t help my underlying ASD, but ECT and other kinds of induced seizures have consistently been shown to work against even highly treatment-resistant depression.  I have tried every class of (legal) medication and many different types of therapy for my dysthymia/depression.  I think most regular readers can tell just how well that arsenal has worked.

Of course, pain complicates everything.  It taints everything, it erodes everything, it corrodes everything, it corrupts and desecrates everything.  I really want it to stop.  Sometimes I want it to stop at nearly any cost (at least to me, though I can’t in good conscience invoke avoidable costs upon other people).

If I thought inducing seizures would help my pain, I would probably just do it.  I know how to make such things happen‒the research I did yesterday was just to indulge myself so I could more realistically fantasize about the outcome if it were to work.  It was one of those distractions I mentioned above.  But having seizures would probably make my physical pain worse, since seizures are not easy on the body.

They could also kill me, but that would be far from the worst outcome.

Death‒not necessarily seizure-related death, but death generally‒will probably be the only thing that relieves my pain.  Well, “relieves” is not really the right word.  But could death be what ends it?  Yes.  And thankfully, no one is dependent upon me or is very close to me or is really used to having me around, so the collateral damage would be minimal, no matter what all the simple-minded (but well-meaning) Instagram videos try to tell you.

Maybe I’m just as well off not to be able to go to that site anymore.  Everything there would be irritating.  Though, that’s just like more or less everything else in the world, to be fair.  Right now, I could almost wish for everything else in reality to cease to exist so I could just enjoy some silence.  But that would be unkind and terribly presumptuous.  It would be better to go back to the nidus of the pain and pluck that out.

Have a good day.

Though I suspect Mr. Smear would disagree with me: