ASD

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“Is this the region, this the soil, the clime…?”

First of all, Happy Birthday to Bilbo and Frodo Baggins, who shared the same birthday (albeit 78 years apart) in Tolkien’s world, September 22nd by Shire reckoning.  I’m not absolutely sure that Shire reckoning would align its dates exactly with ours, but it’s not really necessary to nitpick.

Also, it is the day of the Autumnal Equinox, the beginning of Fall/Autumn in the northern hemisphere (and Spring in the southern hemisphere, but I don’t think they call it the Vernal Equinox down there).   From now until the next equinox, the nights will be longer than the days (in the northern hemisphere‒in the southern hemisphere the days will dominate).

It’s also the beginning of a new work week, which ought to be auspicious given that it’s the beginning of Autumn, but honestly, there’s nothing to which to look forward, whether in the short term or the long term.  It’s just the persistence of pointlessness and futility, like every day has been for the last 12 years (at least!) for me.

I’m writing this on my smartphone today, by the way.  This was not a surprise or a mistake this time; I deliberately did not bring the lapcom back to the house with me on Friday.  I didn’t have the energy.

It was a sloppy, crappy weekend, weather-wise.  It felt very much like a tropical rainforest down by me, and not in a good way.  It’s been a pretty lame hurricane season around here so far this year, and hitherto we’ve had much less rain than usual, but it seems to be trying to make up for lost time now these past few weeks.

Perhaps climate change has led to a slight shifting of the weather patterns, making the rainy season come slightly later here than usual.  In any case, it’s muggy and hot and wet and fairly disgusting in Florida…and that’s just the politics!!

Ha ha.  I’m kidding.  It’s not just the politics that’s disgusting here.  Still, if it weren’t for the fact that my youngest was born here in Florida, I would be inclined to say that, overall, Florida has been a worse than worthless place for me to live, and I wish I had never moved here.

For all I know, being in Florida could have been the trigger for my chronic pain problem.  I doubt it‒it was a physical, structural, fairly severe injury in my L5-S1 disk that started the problem, and it’s not too easy to conjure a Florida-specific explanation for that.  But I’m nearly certain that I wouldn’t have foolishly gotten into the medical practice that led to my legal troubles in New York, say.  They take better care of both patients and doctors in New York.  Indeed, in most states‒certainly in the ones in which I’ve lived‒they seem to have better healthcare systems than Florida.

That’s not a very high bar to clear, of course.  Just look at the corrupt politics and the sorts of disgusting worms we’ve sent to the Senate and the House, and to the Governor’s mansion, for that matter.  I don’t know why Florida is so fertile for self-serving shit-heads on a scale that dwarfs even the overrepresented shit-heads involved in politics in most states.  But it surely must be telling that Donna Tramp’s main house is down here.  Florida is America’s syphilitic penis, and the Palm Beach Cheeto is a genital wart on its upper surface.  If only Florida had embraced the HPV vaccine early enough…

I came to Florida because my then-wife was tired of living in cold climates.  She is uniquely susceptible to the cold for unclear reasons; her body does not seem to hold in heat but instead radiates it away.  She always kept the thermostat set at something like 78 Fahrenheit, even in the summer.

I wish she’d wanted to go to Arizona or something along those lines, but I guess politically it has its issues, too.  New Mexico might’ve been better‒the Santa Fe Institute is there, at least.  It might have been nice to be able to be near that, and to perhaps even take in a lecture or two from time to time.  Florida is certainly not a hotspot for cutting edge science and philosophy, despite Cape Canaveral.  We barely even have a space program anymore; we need Russia or Elon Musk to get us into low Earth orbit nowadays.  Look how the mighty have fallen.

Once I got done with work release, I could’ve lived with my parents and my sister; my father invited me to stay when I went to visit upon my release, making it clear he was happy with me working on my writing there.  I elected to come back here, though, because my children live here, and I was hoping to be able to see them on the regular and be a real part of their life again before I had missed the rest of their childhoods entirely.

Boy was that a miscalculation.  What a joke.  I might as well have hoped to capture a wild panther with my bare hands.

Well, one cannot change what has already happened.  And one cannot change what will happen or what is happening once it is happening.  One can only try to surf on the chaos as best one can.  But it loses its charm, that chaos surfing, over time, at least when there are very few good moments involved, and no positive outcomes to which to look forward, and nothing productive or creative to do anymore that grabs one’s attention.

I can’t seem to motivate myself to write fiction or to write music or to draw or to work on honing my physics and math skills and knowledge.  Being in chronic pain and having ASD level 2, but without actually having any social or other supports of significance*, really takes the wind out of one’s sails, more so every day.  I need something‒a break, an escape, rescue, relief, or just for everything to be over.

What else is new, right?  And on top of everything else, my train is running late.  It’s par for the crookedly run course down here.

It doesn’t matter, I guess.  Nothing does.  So, you might as well have a good first day of Autumn.  And, of course, enjoy celebrating Bilbo’s and Frodo’s birthdays.

*I don’t mean to be dismissive about my sister or my youngest child; they are wonderful and I love them and appreciate my connection with them.  But I am referring to regular, daily, local, literal support, of which I have none.  I don’t even have any friends (other than “work friends”) within a thousand miles.

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“…the mystery which binds me still…”

I’m using the “lapcom” to write this today, so I clearly remembered to bring it back to the house with me yesterday.  It’s definitely better overall for typing upon than the smartphone is.

I wish it had backlit keys; you don’t see that very often on mini-lapcoms, unfortunately, and it does mean that the smartphone has an advantage over this computer in truly dark conditions, since its entire working surface is lit.   With the lapcom, only the screen is lit, which makes it slightly harder to see the keys, since the eyes adjust to the light level from the screen.  Still, I don’t really need to see the keyboard to be able to type; I’ve been doing it for a really long time.

By the way, in case anyone is curious and in case I think I haven’t explained it before—I think I might have, but I’m far from certain—it may seem odd that I say things like “bring it back to the house with me” instead of, for instance, “bring it back home with me”.  The reason is that I don’t consider the place where I live to be home.

I certainly don’t consider the previous place I lived to be home, nor the one before that.  In fact, ever since I’ve stopped living in any dwelling where my kids ever stayed, I consider myself homeless.  For a certain amount of that time, I was literally homeless.  I survived (obviously) but there have been quite a few unpleasant years since I last saw my children regularly; it’s been about 13 years since I’ve seen or spoken with my son.  I guess I really am difficult to endure.

I don’t try to be, of course.  Honestly, I don’t, especially not for the people I love.  You could even say that I try not to be difficult.  But I guess I am atypical to enough of a degree that I’m hard to endure for too long at a stretch.  According to my autism evaluation, I have ASD level 2, which means I have “moderate support needs” (as opposed to level 1, minimal support needs, and level 3, significant support needs).  So I’m not just “entry level” but pretty advanced, as it were.

My evaluator gave me the level 2 assessment because though I have a full-time job, it is clear that I am not thriving nor keeping up with many typical requirements of living (there’s more to it than just that, but that’s a summation).  I guess that probably means that sooner or later, my ad hoc, slipshod edifice will crumble.  But this is no surprise to me.  I’ve been crumbling for a long time.

I’m one of those houses built on sand, so to speak, without a foundation, and so it is fundamentally unstable and prone to breakage.  I don’t really have the wherewithal to repair it myself, though.  I’ve never been very good at taking care of myself.  I can take care of other people quite well, or at least I can take care of other people in certain ways.  But I’m not very good for me.

This poor self-care is not something I can correct with just an attitude or perspective adjustment; believe me, I’ve tried for decades in a great number of ways.  It appears just to be part of how my mind works.

So, don’t be surprised if, at some point, I just completely fall apart and implode or explode and am gone.  I know that I don’t have it in me to save myself; if I did, I would have done so long ago.  I’m smart and capable and have many abilities, but I do not have much of a capacity to bring them to bear on practical matters—or, well, on certain kinds of practical matters.  There are some such things I’m quite good at, but other important things have no hold in my mind.

I’m not sure what to do about all this.  Maybe I should start playing the Powerball™ or whatever it is.  I have never done so other than on occasion in the distant past as part of a group purchase of a ticket or some such.  I’ve always known that the math is such that there is essentially zero chance of any person winning the lottery, at least the big ones.

I used to tell my patients, if you’re in the store anyway, and you’ve got a couple of bucks that you might otherwise spent on candy or chips, then sure, go ahead, play the lottery.  It’s a bit of fun, and supposedly the proceeds or profits go to educational purposes (I have my doubts, but never mind).  But I always said to them that they should never take a special trip driving to the store to get a lottery ticket, because they were more likely to die in a car crash on the trip to get their ticket than they were to win.

Of course, if dying is a kind of winning for you, that may not be too much of a disincentive.  Anyway, I don’t have a vehicle of any kind, so I’m unlikely to get in a car crash on such a trip; I’m more likely to twist my ankle.

I’m sorry, I know there’s been no real reason or rhyme to this blog post.  I’m just allowing randomly firing neurons to express themselves.  I don’t know for sure if this is even intelligible to anyone but me (though I would give high credence that it is, based on past experience and as objective an assessment of my writing as I can make).  Thanks for reading, in any case.  I hope you have a good day.

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“With your feet on the air and your head on the ground…”

TBIF*!

Unusually for me, I am looking forward to this weekend, even though I don’t have any wonderful outings with my youngest in the offing.  I just need to rest, because in case you can’t tell, I’ve really been all over the place mentally this week.  I guess that’s not so unusual for me, at least not from outside (but it’s been atypically bad from the inside).  I’m sure it’s quite tedious and repetitive and depressing for you to keep reading about it.  Honestly, why in the world are you wasting your time with this bullshit?!?!?

I’m being a bit facetious just now‒or, rather, I was being a bit facetious.  I don’t really want you all to stop “wasting your time” with my blog.  No, indeed, I would rather you not only read all of my posts but also all of my books, and to spread the word and “like” and “share” them with everyone you know (and even those you don’t) on social media and elsewhere.

Speaking of liking and sharing, hey, why not share all of my songs and shit?  Put ‘em on your Spotify playlist or your iTunes or YouTubeMusic or Pandora or whatnot.  They’re there on all of those, supposedly.  Actually, I know they’re on YouTube and I know they’re on Spotify.  I have them on my own playlists, and I even occasionally sneak them into the background music playlist at work, though it’s slightly embarrassing.

Actually, come to think of it, the hold music for our office VOIP phones is a slightly edited version of Like and Share with a shorter intro.  We’ve even received compliments from people about it from time to time, and these are people who were on hold during discussions with salespeople!

All that bouncing around above of things I would want to promote can serve to highlight one of the big problems I have with myself:  I have too many “special interests”.

If I only had one focus, or just one main focus, I think I could become really good at it and maybe even contribute significant things.  If I were a full-time musician, for instance, I think I would become very good at that.  If I were able to focus on physics/mathematics I think I could really learn a lot of it quite deeply, and maybe even make contributions to science.

And we know that, when I committed to writing just for an hour or so a day, I wrote a lot of stories over the course of a few years, even while in stir.

Unfortunately, after focusing on one thing or mostly one thing for a while, I start missing the other stuff, or I just get distracted by the other stuff.  Every minute is an opportunity cost.  Of course, that’s true for everyone‒we all have to choose one path, and in choosing it, we must therefore not choose others, and that chosen path will determine future options that might have been otherwise.

I think maybe I just dwell on such facts more than most people do.  I suppose that’s one side-effect of having difficulty socializing:  I spend a lot of time with my own thoughts (or reading the thoughts of others, of course).

I also have a tendency to move back and forth between many books at one time.  Back when I was married, it used to irritate my (now ex) wife because I’d have seven or eight books at a time on my bedside table, many with more than one bookmark stuck in them.  To be fair to her, she was never very critical of it; she was (and still is, presumably) a very avid reader herself.  Anyway, that’s the sort of stuff I do.

It all means that I do know at least superficially about an awful lot of stuff, and of widely varying genres and contexts and subjects and topics and various other synonyms and near-synonyms**.  Currently, my non-fiction reading is bouncing between Lisa Randall’s Warped Passages, a physics book, which I mentioned before, and Cass Sunstein’s new book On Liberalism: In Defense of Freedom.

In my recent books alone (on Kindle) I have Japanese light novels, a book on political philosophy (see above), two physics books, a book about geometry applied to the real world in surprising ways***, a book about autism, a book about the Beatles and the recording of their songs, a book on a current issue in sociology/psychology, and so on.  This should give you a locally scaled example of how my mind goes all over the place.

For the most part, I cannot complain about having many interests.  It would be nice if I had someone with whom to share at least some of them, as used to be the case, but if wishes were horses we’d all need to carry manure shovels with us everywhere we go (and not just metaphorically, as we already do).

So, anyway, my mind is all over the place, but this week there have been several stretches in which I had no interest in any subject.  When that happens to me, I know I’m really spiraling down deep into the depression thing.  Hopefully, though, if I can truly get some extra mental rest this weekend, it will regress a bit.

I hope you all have as good a weekend as it’s possible for you to have‒and if you’ve been here for a while, you know that my take is that you always have the best weekend you could possibly have, because as soon as things happen, they become inevitable, since you cannot undo events that have already taken place.

This also means you always have the worst weekend possible, of course, by logical necessity.  But that’s not horrible‒after all, if you consider most weekends, you can realize, “Hey, if this really has been the worst my weekend could possibly have been, well that’s pretty cool, because it hasn’t really been that bad.”

I’ll talk to you on Monday, barring (as always) the unforeseen.

*Thank Batman it’s Friday, for those of you who have not yet seen this from me.

**Could you call those “perisynonyms”?  Well, I know you could call them that, but I mean, does anyone think it might catch on, and is the meaning fairly obvious?

***Jordan Ellenberg’s Shape.  I strongly recommend this and his previous book How Not To Be Wrong if you want to kindle (no pun intended) or rekindle a love of mathematics.  He narrates the audiobook versions of his books, and he is an excellent teacher.

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“Or play the game ‘existence’ to the end…of the beginning”

You’d think that people would have had enough of silly blog posts.  But I look around me and I see…well, nothing particularly revealing in any direction.  For all I can tell, the people reading this blog may be the last people in the world who read blog posts, and everyone else is sick of them (the blog posts, not the people who read blog posts).

Perhaps the people reading this are sick of them, too, but have some peculiar masochistic streak, some deep need for punishment in the form of inane reading material that must be satisfied once a day whenever possible.  It’s a  big world; there could, in principle, be such people, and enough of them to account for almost everyone who reads my blog with any regularity.

On the other hand, blog posts could be more like the silly love songs mentioned in Paul McCartney’s tune.  They may not be everybody’s cup of tea*, but maybe a lot of people really love them and enjoy them and are moved by them.  In which case, it may be that the only reason that my blog only gets a few readers every day is that I write weird stuff about weird stuff a lot, and I often come across as nihilistic and/or pessimistic**, and I certainly I have much trouble with my chronic issues.

Not that being a downer or focusing on difficult (or even quite odd) things is necessarily going to make people not want to read a blog.  Quite apart from the possible cliché that misery loves company (which I doubt would have much influence on blog posts) it is a fact that people who have their own troubles will often try to find others with similar issues, perhaps to see if they have different insights, perhaps just to share solidarity or even inspiration.

Maybe the only reason that my blog isn’t the most read thing in the history of the world is that not enough people know about it.  We do know that PR campaigns can make a huge difference, can turn mediocre stories into international bestsellers, or can bring an entirely unqualified (indeed, an antiqualified) person into high political office.  When the promotion is promoting something that’s actually good, and the promotion itself is good enough, truly amazing results can happen.

What a crime it would be if I were writing the best writing ever known to humanity and only a few dozen people ever regularly read it, just because I’m no good at promoting myself due to low self-esteem and/or ASD.  Thank goodness I’m not writing the best writing ever, right?  That’s a real load off, as they say.

But I am writing, it seems, and I will try to continue to write every morning when I’m going to work.  I don’t know for certain whether I will be working tomorrow—watch this space and see if I write a post, I guess.  I hope I’m not working.  Though I’ve been trying hard to present the façade of upbeatness, I am very mentally fatigued, as I tend to be.

I don’t know, maybe I’ve been mentally fatigued for years, or even decades, now.  I know I don’t ever tend to give my mind or myself a break if I can help it.  And apparently, for those with ASD, just the process of daily living among humans is draining, partly because of masking (pretending to be normal, pretending to be fine, pretending to understand nonverbal social cues, or even just tolerating the inanities of primate social dominance displays and rituals among the naked house apes), partly because of having to deal with sensory assaults, partly from just not being able naturally to connect with those around them.

So, maybe through this blog I might connect with—or at least provide connection for—people who have similar issues, at least if they are similar enough.  Though, even the thought of making connections with new people, or of people even wanting to connect with me, has made me feel suddenly tense and defensive—anxious, you might say—even as I write about it.

It’s so strange, isn’t it?  Just an imaginary social encounter, even through the medium of a blog, feels like a potential, literal attack.  And yet, I’ve had friends before—very good friends—and I always enjoyed my time with them, and I never wanted to be away from my wife and kids any more than I had to be.

Of course, that didn’t pan out; like most things that really matter to me, I managed to screw it up in various ways.  Not all of it was my doing, of course—back injuries and chronic pain, along with congenital neurodevelopmental conditions, are difficult to blame on anyone, or on any particular thing, though some morons try—but events often do seem to go against my dearest, most heartfelt, wishes.

Maybe I should find a way to wish that I was not an internationally famous, hugely best-selling author with hundreds of millions of devoted fans and good relationships, real and virtual, with people who make sense to me, and vice versa, and even potentially some strong romantic relationship of some kind.  If I could come to really want to avoid those things, then they would, for me, seem more likely to come to pass.

Either way I would be unhappy of course—in a kind of Twilight Zone style inversion of expectations delivering what someone thought they wanted but really didn’t—but at least one way I would be someone whose writing reached out and touched*** millions of people.

Whatever.  If wishes were horses, we’d all be neck deep in horseshit—and not just in the figurative way we already are.

I hope you have a good day, and that you have a good weekend as well.  If I write on Saturday, it shall be here.  If not, it will likely mean I am not working.  If something happens and I never write here again…well, it’s been nice writing to you.

*But then again, even tea isn’t everyone’s cup of tea.

**An accurate impression, to be fair.

***Not in an inappropriate way.

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Six songs to try to express a little bit of how I am doing

I don’t have the energy or will or “spoons” to write much today.  I’m just about ready to tap out.  My “executive function” is so low that I think the only thing I’m capable of executing is myself, and even that is difficult.  I certainly don’t have the capacity to act to save myself.  I keep trying to express just how fucking horrible I am doing, but I don’t think it’s coming across.  I guess it doesn’t matter much.

Anyway, today I figure I’ll embed some songs I’ve recorded myself performing that do something to convey my difficulties.  Some are originals, some are covers.  I don’t know if they will work, either.

It doesn’t really matter.  I don’t have the will to take any action about anything.  I can only do what I do every day, automatically, and I am getting closer and closer to being unable to do even that.  I think I’m pretty nearly completely out of gas, and I am basically only a burden to the world.  It doesn’t help that we’re moving offices this month, which I hate, but that’s just a little insult to add to the injuries that are leading to the end of things.

Anyway, here are the songs.

It’s not a perfect expression or set of expressions, but it’s about all I’m capable of, even after a weekend “off”.  It doesn’t matter.  I’ve basically given up.  I’m so tired already and it’s just Monday morning.

I hope you each have a great day, individually, and that you all have a great day, collectively.

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It’s the end of the month as we know it

It’s the last day of April in 2025, which means tomorrow is the beginning of May.  This is also the last day of the official Autism Awareness Month, and tomorrow begins the official Mental Health Awareness Month.

That last term is a bit odd.  If mental health is the norm, we don’t really need to be aware of it, except perhaps to be thankful if we have it (I certainly don’t).  It’s the lack of mental health‒you know, mental illness or even mental injury‒that we would like to be aware of and make better.  But I guess some people feel that’s too stigmatic or negative or something.

I think that’s silly.  Do we euphemize cancer?  Not really, not when we’re dealing with it seriously.  All the cancer awareness things slap you in the face, and they more or less say, it’s cancer, take it seriously, we want to fight it.  But what does it mean to be aware of mental health?  We don’t want to fight that, we want to fight for it.

I’m aware of mental health as a concept, of course, though even there, things can be a bit nebulous.  I guess health in general is just the notion that things are functioning more or less as they are supposed to function.  But that allows a fair bit of leeway.  It’s also somewhat relative.  If it were “normal” to be as healthy as Captain America, for instance, Usain Bolt might be considered a bit sickly, and most of the rest of us would be functionally disabled.

It’s hard to convince oneself that the average person, in America, at least, is as mentally healthy as one would like them to be.  I suppose that shouldn’t be too surprising.  Mental health (or the relative lack thereof) is measured largely by its interactions with the surrounding civilization, and that has been changing quite rapidly, from any kind of evolutionary standpoint, especially in the last few centuries, and especially in the last few decades.

Small wonder our brains/nervous systems often don’t function optimally in this realm.  The human (and humanoid/replicant/changeling/alien) brain is remarkably adaptable, but it is not a blank slate upon which just anything can be written at will.  There’s plenty of hardware that’s specific to certain kinds of functions, and there are read-only aspects of the operating systems and even the user interface (which we call consciousness when it’s combined with something akin to the Windows task manager).  We can’t rewrite the firmware yet, and we may never be able to do so.  We have trouble even changing current programs or loading new ones.

Well, that was an unplanned digression…which may be a redundant term.  Are planned digressions even truly digressions?

I was mostly just thinking this morning about what such a pair of months might mean to me.  Both of them are pertinent, since I have issues relating to both “awareness” subjects.  But so many of the things I see shared, particularly about “mental health”, are things I already know, but which have obviously not been adequate to improve my mental health.

Heck, I remember paying real attention in high school in our psychology lessons, reading all the abnormal psychology stuff, knowing that there was something off about me, but not seeing any good answers.  Of course, this was in the 80s, in a public high school, so the material was pretty simplistic and out of date even for the time.

I also used to own books about psychology, self-hypnotism, self help, lots of related stuff.  I didn’t know what it was with me, but I knew that I was strange.  I was pretty good at pretending to be “normal” in a sense, but a lot of even that was just me owning and sometimes exaggerating my odd habits as if they were normal things.

It helped that I was known to be smart, and also that I was raised to be polite and not to be mean or cruel or condescending to people.  That was pretty easy; while I was good at some things, there were many things with which I had difficulty, and I knew that only too well.  I still don’t feel very comfortable riding a bike, for instance, and many athletic pursuits requiring agility have always been hard*.  I also was truly abysmal at dealing with girls/relationships.  I had no idea how really to interact in any kind of would-be romantic way, nor to recognize if someone liked me, nor to let anyone know that I liked them.  I’ve not grown out of that problem.

Anyway, so I’ve been dealing with issues of mental health for as long as I can remember, including a time when I was really quite young and I almost made myself unable to talk after getting upset about some interaction and telling myself that I just wouldn’t talk anymore.  When I finally (after several hours) decided to talk again…I almost couldn’t do it!  I really had to force myself, and almost panicked before I finally was able to squeeze out some words.  That was frightening.

I don’t know if I’ve ever mentioned that to anyone before.

So, anyway, I’ve been weird my whole life, and I’m no less weird now, but now I am alone, and I have lost pretty much everything I worked very hard to get or be or create as well as nearly everyone I care about most**.  I recognize that it’s not impossible that good things will happen for me in the future.  But I can see pretty clearly that it’s really unlikely.  What could lead me to think otherwise?  Only some profound delusions could do that, and though I cannot rule out delusions in myself, if I have them, they are not of the optimistic variety.

Geez Louise, this is such a pointless post‒just like my pointless life.  I need to wrap it up and be done already.  I hope you have a good day.

*It turns out at least some of this was related to my congenital heart defect, which was discovered when I was 18, and for which I had open heart surgery in the summer after my freshman year in college.

**By this I mean they’re not around, and most of them don’t want to be around me, not that they’ve died‒except my parents, of course, but that was basically natural.  Still, there was a long stretch when I didn’t even interact with them.  It wasn’t as long as the time since I last saw my own children, but it was still very painful.

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No April foolishness in this post

I am not making any jokes or or otherwise messing about in an “April Fools” sense here today.  I despise “pranks” of the sort that people tend to pull on April Fools’ Day, and think people who do them should be castrated/spayed/neutered immediately.  No, I’m not kidding.  Maybe I wouldn’t ever actually carry out that sort of penalty‒I am a bit of a softy sometimes‒but that is my urge when even merely contemplating such deliberate, quasi-malicious trickery.  Actually, that’s my restrained, milder response.  Most of the time I feel murderous at pranks, even when I’m not the target.

It’s the start of a new month, and I am not enthusiastic about it.  Still, it’s not as though I can do much to avoid it.  It’s one of those stupid, inexorable things in the world that make it so often so repugnant.

I think I’m going to try to avoid discussing updates about my ongoing “plan” from now on.  It just seems to make other people upset or sad or concerned, but it doesn’t actually motivate any kind of active response of any kind.  It’s like the memes say, when someone’s mental illness‒especially suicidal thoughts‒is made open and discussed, such people are avoided, they are called “attention-seeking”, they are told to toughen up or stop complaining, to smile, to get out and exercise, to seek support of friends and those who love you‒as if those weren’t the very people you want to avoid burdening or inconveniencing.

It’s only after someone actually commits suicide that people start saying things like “I wish I could have done something,” or saying that they didn’t know, that they didn’t see it coming and so on.  But of course, they had warning, they had information, if not awareness, and they could have done something.  But they figured it was up to the person having the trouble to seek help.  As if someone whose brain is not functioning properly has the wherewithal to help themselves, especially when they are on their own and have no local support system whatsoever, and other issues including chronic pain, insomnia, and neurodevelopmental issues.

They might as well tell someone with liver failure to just buck up and for crying out loud get back to using that liver to cleanse the various toxins from their blood and to process their food and maintain the biliary system and all that goes with the liver, when it’s the liver that is failing.

I’m not saying that all people are like that, of course.  There are people who definitely try to do what they can.  They are few and far between, however.

It doesn’t matter, I guess.  Nothing does.  And I am certainly no one’s idea of a worthy cause, to be honest.  So I guess I shouldn’t feel snippy about the fact that there’s no way for me to be rescued.

I don’t know what else to write about, otherwise.  Maybe I shouldn’t write about anything.  Maybe I should just quit writing.  Maybe I should quit trying to pretend that anything I say or do is of any importance or even interest.  It’s a bit pathetic.

I’m just tired.  I’m tired of trying to “fit in”, tired of trying to pretend to be positive, tired of trying to pretend to be healthy so that I don’t inconvenience other people too much.  It’s all bullshit.  I’m not healthy, I’m not happy, and I haven’t been in years.  I see no positive future for me.  There is only an ongoing stretch of years, decades, who knows how long, alone, depressed, in pain, an outsider, an alien, a stranger, who will die alone in the end.

I have often been the one providing support for others throughout my life.  I always tried to be there for people.  I volunteered in various places, tutored and helped out first other kids and then younger people, and of course, I went to medical school and became a doctor.  Even in prison I worked in education, trying to help other prisoners get their GEDs.  Maybe some part of me was thinking that was an investment‒that if I tried to be and do good, to help others, when it was my time to need help, I would be worthy of getting it, worthy of rescue.

Of course, that’s not how the universe works.  If anything, when left to its own devices, the universe rewards selfish assholes, at least in the short term.  In the long term, everyone dies anyway, good or bad, and how much a person suffers in the meantime is in no way dependent upon how good or evil a person is.  And there is no credible reason I have ever encountered to suspect that matters will be set right in some form of afterlife.  It’s all just futile and maddening.

Anyway, that’s enough for now.  Obviously I’m very grumpy, and I’m still sick (though maybe slightly less so than yesterday), and I don’t want to deal with anything!  I want to rest.  I want to escape.  There’s nothing for me here.  “I don’t want to spoil the party, so I’ll go.”  Or at least, I ought to go.

I don’t know.  I am at a loss.

I hope you all are doing and feeling far better than I am and do.  Please try to have a good day and a good month.

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It seems appropriate that coughin’ and coffin sound alike.

It’s Monday again, though I know of no one who asked it to be.  I am not going to write much today (I suspect) because I am quite under the weather‒I’ve been dealing with some form of bronchitis that started Friday, and I’m not feeling much better yet, though my oxygen saturation seems good, and I have no fever (but then again, I am always on NSAIDS and acetaminophen, so it’s hard to be sure I haven’t just suppressed a fever).  By rights, I should probably not be going into the office today, but my coworker is out of town until tomorrow, so basically, I’ve got to keep the office running.

I do have masks to wear, and I don’t just mean fun and/or scary ones.  Neither do I refer to “autistic masking” which is what many autistic people do to fit in with other, neurotypical people.  Lord knows I’ve always tried to fit in, and I definitely put on “masks” and tried to shape myself to please those around me.  I feel almost that my autism presented a little more the way it does in girls than in “traditional” autistic boys, at least as discussed by other people with autism.

Anyway, I’m not really doing this blog as a venue via which to discuss ASD.  That must be the case, since I didn’t even consider the possibility before the last few years, and this blog has existed for much longer.  I suppose it might be interesting for someone (but not me!) to look back at my older posts and see if there are any hints about ASD in the way I write or discuss things.  I doubt that I’m interesting enough for anyone ever to do that, though‒I certainly don’t find myself interesting enough.

It may go without saying that I did not play guitar or go for any walks except to the convenience store this weekend.  I was mostly just laying around and trying to rest.  It’s a bit annoying that I still didn’t sleep well, and only stayed asleep for a while under the effects of delta 9 gummies and 2 Benadryl.  I slept a little more than usual, but of course, it’s not really restorative sleep.

I wonder what it is about the autistic brain that leads to the tendency to sleep poorly.  Is it atypia in the hypothalamus, or are the effects on the amygdala leading to hypervigilance which is consistent with my tendency?  I don’t know for sure how well the neuroscience of autism is progressing, but I guess I could get on Google Scholar and/or check the preprint servers.

Anyway, I think I’m pretty much done for right now.  I’m really very tired and worn down.  I guess I’ll be talking to you all tomorrow, though it’s less likely that you’ll be talking to me.  In the meantime, if you’re able, please try to have a good day.

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When we fight reality, reality always wins.

It’s Tuesday morning now‒which, fortunately, as far as I know, has never been described as “never-ending”.  Alas, the same cannot be said of Tuesday afternoon.  However, since we are not still stuck in the last Tuesday afternoon‒or indeed in the very first Tuesday afternoon‒then we have to conclude that the line “Tuesday afternoon is never-ending” from the Beatles song Lady Madonna is a poetic figure of speech.

That’s weirdly frustrating for me.  It reminds me a bit of how I remember reading that Tolkien was frustrated with the play Macbeth because Birnam Wood didn’t actually come to Dunsinane, signaling Macbeth’s imminent defeat*.  Tolkien didn’t see why, in a play that clearly involved the supernatural, the wood could not literally come to Dunsinane.

Of course, in the fullness of time, in his own work, the Forest of Fangorn really did come to Isengard, and to Helm’s Deep.  It’s one of the best moments in The Lord of the Rings.

How did I get onto that subject?  Or, as Théoden asked, “How did it come to this?”

Now I’m suddenly thinking about the moment when Théoden, despairing, asks (in the movie) “What can men do against such reckless hate?”  It’s a real moment of doubt and pain, but Aragorn is there to support his spirit.

And that makes me think of doing a “parody” version of Sympathy for the Devil, in which we would have the line, “I was ‘round when Théoden had his moment of doubt and pain / Made damn sure that the uruk hai met our swords and sealed their fate.”  It could be called, perhaps, Sympathy for the Ranger or Sympathy for the Strider or something like that.

We could have lines like “Just as every Noldor is a kinslayer, and all the Nazgul slaves / as East is West just call me…Aragorn, ‘cause Minas Tirith I will save,” or something along those lines.  It’s a bit silly and cheesy, I guess, but that’s okay; it’s a parody.  Anyway, I don’t think I’m actually going to try to produce a whole set of lyrics for it, but who knows?  I’ve done weirder things for more frivolous reasons.

As for what to do about relatively more serious things‒i.e., my diagnosis of ASD level2‒I still don’t know.  I don’t know how I’m going to go about following the recommendations in the report, such as they are.  Knowing at least some of the explanations for many of the difficulties I’ve had in my life, including my relatively intractable troubles with depression and with insomnia and social anxiety, is a good thing in and of itself, but it doesn’t necessarily give me any idea how to approach things from here.

In some sense, it is a little discouraging, especially regarding my depression and insomnia, since there is no cure for neurodevelopmental disorders; they are a product of the fundamental structure and function of the brain.  At best, they can be managed.  This also explains why many traditional or typical treatments for such things do not work well in those with ASD; evidently, for instance, cognitive behavioral therapy doesn’t tend to work as well for people with autism as it does for “neurotypical” people.  And I know that antidepressants have more limited efficacy as well.

This makes sense.  We commonly hear of how many of the treatments and scientific understanding of major illness were for a long time only studied in men, and women were treated the same way as males, until slowly, gradually, the medical community realized that many diseases present differently in women, and respond differently to treatment.

Well, autistic and other “neurodivergent” people are a much smaller portion of the population than women are, and we don’t know as much as we would like about psychiatric and related disorders and their treatment even in the neurotypical.  It makes sense that we should be somewhat behind the curve in even understanding, let alone knowing how to treat, psychological and neurological disorders in those with underlying neurodevelopmental conditions.

The universe is complicated.  Any attempt to make it seem or feel less so, as by following the “ideas” of demagogues and demonizing those who might disagree, is just going to leave one vulnerable to underlying, actual reality‒which is not merely a matter of perception.

The universe at large does not care what you believe.  You can definitely be killed by forces and things that you not only don’t understand, but in which you don’t believe, or about which you have not the slightest inkling.  As a particularly gruesome example, it didn’t matter whether JFK ever knew he was being shot at, let alone that he had been hit.  A person can die before they even know that anything is happening; they can be just snuffed out and gone.  Probably most people, and nearly all other animals, die not understanding at all what is killing them or how or why or what death is.

Such is the evenhanded dealing of the world, to paraphrase Ebenezer Scrooge.  The only thing we can do to armor ourselves is to try to understand as much about the universe as we can.  For one never knows what knowledge will be useful or even essential before one has that knowledge.  Greater knowledge is always worthwhile, all other things being equal.

Of course, all other things never really are equal, but that’s why it pays to learn how to solve partial differential equations.

That’s enough for now.  Have a good day if you can, please.

*Macbeth’s reaction when he receives the news that, apparently, Birnam Wood really has come to Dunsinane Hill, is to hit the messenger and yell “Liar and slave!”  I know I’m not the only one who thinks it’s kind of funny and also is an instance of one of the cardinal failures of literary and dramatic (and real life) villains:  they discourage their own people from giving them information by punishing them for delivering accurate but bad news.

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(ASD 2) x 2

It’s Monday morning now, and it’s a new month, and I’m writing a new blog post, one that will‒or should‒not be like the old post.  Though, of course, superficially it will look like most of the others, and for someone perusing a bunch of them who does not happen to read English, there will almost certainly be no distinguishing characteristics.  Certainly there will be no meaningful ones.

Be that as it may, as of Friday evening, I have now received my autism assessment report.  It is official; I have been diagnosed as having autism spectrum disorder, level 2.

The level 2 part of that surprised me a little bit.  In case you don’t know‒and for most of you, there’s no reason why you would‒the levels of autism, not in order, are:

Level 1:  What would be called “high-functioning” autism by the hoi polloi, though that term is frowned upon by the “neurodivergent” community by and large, because it judges the quality of a person with autism by how well they can pretend to be someone without autism.  In any case, those with level 1 are people who have autism but are not significantly disabled by it, and are able to do okay on their own with minimal or at least fairly easy accommodation.

Level 3:  These are people who are more severely impaired by their autism, and are more or less dependent upon support from others; they cannot really function on their own at all.

Level 2 is mid-range (duh!) and is characterized by needing “substantial” or “considerable” support.  Here’s a quote from a web-search:  “Autism Level 2 means a moderate level of autism spectrum disorder (ASD), where an individual requires substantial support to manage social communication and daily activities, exhibiting more noticeable challenges in social interaction and repetitive behaviors compared to Level 1, but not as severe as Level 3.”

I guess my bias was that, if diagnosed, I would be level 1, since I do live on my own and I don’t really have any support.  On the other hand, there’s little argument but that my life is a complete mess, and it’s not improving.  So I guess I really don’t do so well on my own.  But it’s not as though I have any health insurance or any other access to support services to help me improve things.  Still, at least it explains a little bit about my intractable insomnia and depression and anxiety and so on, as well as all my many failed interpersonal relationships.

I don’t yet know whether this knowledge will make any difference for me.  I don’t yet know what I’m going to do with the result.  I am still digesting it.

There is, however, an amusing coincidence, if you enjoy such things*.  I was born with an atrial septal defect (a hole between the upper chambers of the heart) “secundum type”, that was repaired when I was 18.  In other words, that was “ASD” secundum type.  So, one might say, ASD type 2.

And now I have Autism Spectrum Disorder, level 2, so:  ASD level 2.

These are both official acronyms used by the medical community.  It’s nothing but a coincidence, of course, but it is a peculiar and slightly amusing one.  I have been diagnosed with ASD 2 in two different ways.  There’s only one of the two for which there was a surgical intervention that was essentially curative.  The other is something for which one just has to adjust and deal as well as one can.  Fortunately, I’m really good at adjusting to and dealing with just about anything that comes at me.

Ha ha ha ha ha!  That was a lie, obviously.  I don’t think I’ve ever been particularly good at adjusting to things, except perforce, which has certainly happened a fair number of times.

Anyway, again, I don’t know at all what I’m going to do with this information.  I don’t know how I could possibly actually seek, let alone obtain, any manner of support and/or accommodation, other than the basic stuff that happens more or less on its own.  I’m going to tell a few people at work, I think‒certainly the owner, though I feel a bit shy about that, but also my two coworkers with whom I am closest, one of whom has a child with autism.

I don’t know how much will change otherwise.  But I figured I would share this information with those of you who read this blog regularly‒a rarefied few individuals, I must say.  I guess I’ll be writing a post tomorrow, too, barring the unforeseen (a caveat that always applies).  In the meantime, I hope you all have as good a day as you possibly can.

*Well, the councidence’s existence isn’t actually conditional upon you enjoying it, but I think you know what I mean.  Please let me know in the comments below if you do not know what I mean.  I don’t like not being clear.