Neurology

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Had I pow’r, I should Pour the sweet blog of concord into hell

Hello and good morning.  It’s Thursday yet again, and I’m writing my more traditional blog post, but for those of you who weren’t expecting them, and so did not look, you should know that I also wrote posts on Monday, Tuesday, and Wednesday.  I had no drive or desire to write any fiction; it has felt utterly pointless to do so all week.  Everything pretty much feels pointless.

I did spend a bit of time yesterday sharing all my blog post links to my published works‒not counting music‒to X and LinkedIn and Facebook.  I don’t know if many people saw them, though my sister did leave a comment on Facebook on the shared link for Hole for a Heart, stating that it is one of my scariest stories.  Thankfully, it was intended to be scary, so that’s quite a good compliment.  If I’d meant it to be a light-hearted children’s fairy tale and it was one of my scariest stories, that would have been troubling.

I’ve long since noticed, from early on in my writing, that I tend to put horror elements into a lot of my work.  For instance, in Ends of the Maelstrom, my lost work from my teenage years‒which was an overlap of science fiction and fantasy‒I ended up having quite a few sequences that followed a large and powerful (and quite mad) cy-goyle named Chrayd, who was basically a horror monster, and whose actions didn’t directly push the plot forward.  His portions of the book were clearly little horror stories.

Also, my son read the original 2nd chapter of The Chasm and the Collision (which became the second half of the first chapter, “A Fruitful Day and a Frightful Night”) back when he was, I guess, about 11 or 12, and he said specifically that it was scary.  Of course, obviously it was meant to be scary for the main character‒I did call it “A Frightful Night” after all‒but I guess I did a good job of conveying Alex’s fear and making it at least slightly contagious.

I feel that at least some of the portions of Outlaw’s Mind ought to be quite scary‒it’s certainly meant to be a horror story‒but that may just be because I know what’s happening, and that at least some of events of the story were inspired by one of my two experiences of sleep paralysis (which is a truly frightening thing).

Of course, the two stories that are currently on my burners are not horror stories at all.  One is sort of a whimsical, light science fiction tale (set in the “ordinary” world), and the other is a more “light-novel” science fiction adventure, possibly good for young adults, based on a comic book I had long-ago envisioned.  I’m sure I will throw some horror elements in the latter by accident‒it seems to be how my writing works‒but it’s not any primary part of it.

Here I am writing as if any of those stories will be published and read by people.  Isn’t it cute?

One good thing about writing horror is that there is no reason to have any “trigger warnings”.  If you’re the sort of person who needs trigger warnings, you probably shouldn’t be reading horror stories.  I admit, though, that a few of my works probably merit greater-than-average caution; I’m thinking most specifically of Solitaire and both parts of Unanimity.  These are stories in which some quite “realistic” horrors take place‒things that could, in principle, happen in the real world.

Not that Unanimity itself could happen in the real world.  It couldn’t.  But many of the things done in the book that are horrific are possible and even realistic in a sense.

As for Solitaire, well…yeah, there’s nothing supernatural there at all.  It’s an entirely realistic story, probably too much so.  It’s short though, so a potential reader wouldn’t be troubled for long.  Still, that story is probably for “grown-ups” only.  Yet, as I’ve noted before, I wrote the story, all in one night, while I was in a perfectly good mood, keeping my then-future-fiancée company while she worked overnight on a project.

It’s curious to think about where these ideas originate and how they arise.

Even if we ever have a full description of the workings of a human brain, I doubt it will ever be possible to model, predictively and precisely, the specific outputs of any given one.  There are hundreds of trillions to a quadrillion synapses in a typical (or even divergent) brain, and those synapses are not simple And, Or, Xor, Not, Nand or other basic binary logic gates.  Their connections are almost continuously variable, and the reactivity and set-points can vary over time as well, in response to intracellular and extracellular conditions.

A quadrillion-bit system would never be close to big enough to model a human brain, even if we knew how to write the program.  And the possible outcomes of different processes in such a system would rapidly grow to numbers so vast they make the number of cubic Planck lengths in the accessible universe vanishingly close to zero.

As for “neural networks”, well, don’t let the name fool you too much.  They aren’t really modeling neurons or even acting very much like them.  I mean, they are super-cool*, don’t get me wrong!  But I don’t suspect that any of them, at least not by itself, will ever be a true AGI, not without also incorporating some analog of basal ganglia, limbic systems, and brain stems‒drives and motivations (general and partly alterable utility functions) in other words.

It’s also a concern (mainly orthogonal to the above) that, as more of what is out there on the anti-social webernet has been produced by LLM-based chat programs, the programs will more and more be modeling their future responses on responses not created by humans but by previous uses of the GPT style bots, and so they will more and more model only themselves‒a kind of solipsistic spiral that could rapidly degenerate into a huge, steaming pile of crap.

Of course, the programmers are clever, and they may well find ways to circumvent such issues.  I suppose we shall see what happens, unless civilization fails and falls before that comes to pass.

Wow, all that was a curious course of thought, wasn’t it?  I certainly neither planned for nor predicted it.  It just happened (like everything else).

As for what will happen for the rest of the week, well, I’m far from sure and can’t even give a very good guess.  I may write blog posts tomorrow and Saturday, or I may write fiction, or I may do neither.  I may take a long walk off a short pier, literally or metaphorically.  If Hugh Everett was right, there will probably be some versions of me “somewhere” who take each of all possible actions.

In the meantime, I sincerely hope that the only possible Everettian branches in your futures are ones in which you are happy.

TTFN

*Though at least most of them don’t need literally to be supercooled, unlike most modern quantum computing systems.

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I’m too tired to think of a good title for this post

I’m writing today’s blog post on my phone in the back of an Uber.  I could not sleep and figured I’d just head into the office, since it feels slightly more like home to me, at least when no one else is there, than does the house in which I sleep, .  I have my laptop (computer) with me, so I could write this post on it, but I think I would feel more awkward doing that.  It can be trying enough writing on it when riding the train, and the shifts and bumps and other minor accelerations in a regular car tend to be more irregular and pronounced than those in a railroad car.  There’s no track, for one thing, and also a car is much less massive, so it is more prone to lurch noticeably than a train is.

It’s a stupid waste of money to take an Uber, of course, but it’s not as though I’m saving up for the future.  I don’t expect any significant future, and to be honest, I don’t really want one, at least the way I feel most of the time lately.  Even the present is barely worth it, moment to moment.

I’ve recently learned that, in the UK at least, the average lifespan (the arithmetic mean, remember?) is only 55 years for people with autism spectrum disorder.  This average is no doubt weighted down by those who die quite young, but still, this is the UK, where there is a National Health Service.  Here in the US, where the average lifespan, at least for men, has actually recently begun to fall for the first time in any of our lifetimes, the average autistic lifespan is very likely to be lower than in the UK.  I’m 54 now.

I realize that there’s nothing magical about a statistical average when applied to an individual instance of a circumstance, but numbers mean a lot to me at least, and frankly, right now, the idea that there is a maximum predicted cutoff for my lifespan‒and that it is arriving soon‒is more of a relief and even a comfort than it is a horror.

Of course, I don’t carry an “official” diagnosis of autism spectrum disorder, but as one who has, as part of his now-dead career, given who-knows-how-many thousands of “official diagnoses”, I know there’s nothing magical about them.  They are educated, best-available descriptions of what’s happening in particular instances in a medical situation.  They are useful for steering thought and decision making, but because they cannot address all details of an individual case, they can also shackle one’s thought processes and lead one astray.

One thing is clear:  I have some manner of atypical neurology.  I certainly have trouble with dysthymia and depression; I have little doubt about those diagnoses.  I have rotten chronic insomnia, which may be a symptom/sign of that probable neurodevelopmental disorder.  I also had a secundum atrial septal defect, and I have a slight cavum septum pellucidum cyst in my brain, and these things both occur more frequently in people with the neurodevelopmental version of ASD (as opposed to the cardiac Atrial Septal Defect, see above).  They are far from diagnostic thereof, but their presence does shift my Bayesian estimates.  They can also be associated with other diagnoses as well, of course, but I don’t have nearly as many hallmarks of those disorders…at least as far as I’m aware.

Of course, each thing can also happen and stand on its own, being indicative of nothing but itself.  But I think we can all agree that there’s something atypical and dysfunctional happening in my brain, even if it doesn’t actually connect causally in any way to those other findings.

I did write a bit more than a page yesterday on Extra Body, which I guess is a worthwhile accomplishment.  I know it hasn’t been all that long, but I feel as if this only-one-page-a-day pattern is not giving me the benefit that I used to get from writing fiction.  Maybe it’s that I just get my juices going and then shut them down.  Maybe it’s that the story is taking so long to get on with itself.  I don’t know.  Maybe I’m just hoping for too much.  Hope is dangerous stuff.

I don’t know how to adjust my behavior, though.  I already tried to cut back on doing this daily blog, but found that not doing it made me very tense and stressed, since I’ve gotten into the habit of doing it.  It’s almost an OCD-like pattern.

I wouldn’t call it exactly anxiety that I feel if I think about not writing the blog (or doing any of a number of other things that I do by habit). It’s more of a kind of tension, a stress, and it can rapidly escalate into hostility.  Of course, all of these are associated with the sympathetic nervous system, the whole fight-or-flight mode, so maybe one could call my experiences anxiety.  Certainly, the physiological responses are related and quite similar.  But my mental state doesn’t feel fearful as much as angry, and even hateful.

Maybe that’s all just part of Yoda’s cliché little response to young Anakin admitting he was afraid in The Phantom Menace:  “Fear leads to anger; anger leads to hate; hate leads to suffering.”  I always wished Anakin would reply, “Yeah…the suffering of the people who made me afraid and angry.”  Oh, well, much of the Jedi philosophy in the prequels is kind of stupid, and it contributed to their downfall, but they’re fictional anyway.

Speaking of fiction, I’m not sure what I’m going to do about my fiction writing.  I intend to keep writing at least a page a day, but writing it after I write my blog is stressful.  But not writing my blog is stressful.  And writing only one page a day of fiction is stressful.  And dealing with people being late to work and the noise and nonsense and the internally created rules that are not enforced when it’s inconvenient is stressful.  And commuting is stressful, and neither of the places between which I commute are places of comfort to me.

A large contributor to these problems is that, no matter where I go, there I am, and I am not comforting to me.

The Buddhists are supposed to have said that life is suffering‒or was that the Dread Pirate Roberts?  I suppose they might have agreed on that statement.  Still, you’d think that would be enough to counter Yoda’s little admonition, with the reply, “Everything leads to suffering.  What’s your pointy-eared point?”

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I blog you give me leave to go from hence

Hello and good morning.  It’s Thursday, and for the first time in three weeks, I’m writing a Thursday style blog post.  You can all start breathing again.

Yesterday’s blog post was kind of weird, wasn’t it?  I’m not even completely sure what I wrote.  I certainly haven’t reread it since editing it before finally posting it, but I feel I said a lot of strange things, and wrote about things I don’t know if I’ve ever talked about with anyone before.  Maybe I have.  I don’t think there was anything particularly shocking except that it was weird for me to say some of them.  Also, I feel it was more erratic and bizarre even than my usual posts.

It’s now the last day of November in 2023 (AD or CE).  That’s mildly momentous, or at minimum a mediocre milestone.  There shall be no recurrence of the month of November in 2023 (AD or CE) in any of our lives again, unless the ways we “define” the terms are changed.  Even if we had a time machine to come back to this day, we would not experience a new November in 2023 (AD or CE) if we were to return to it; we would be re-experiencing the same one, albeit from some different perspective.

I don’t know if returning to the same month would initiate some new Everettian branch of the universe, as in my short story Penal Colony, or if it would instead be some manner of closed, time-like loop in spacetime, which always happens exactly the same way—since it only actually exists in one instantiation—even if you were to experience it more than once.  It might be like coming to a crossroad, going through the light, looping around a “cloverleaf” in the road, and coming back to the crossroad in the perpendicular direction, then going on forward.  There’s only one route; it just happens to cross itself.

And, of course, if you did a self-Oedipus and somehow killed yourself at the crossroad, its not as though you would be changing your future in any sense;  that would “always” simply have been the way you died.  So, 12 Monkeys would be much more like the nature of such reality than, say, Back to the Future or Time Cop or that newer time travel movie with Bruce Willis that I haven’t seen.

I don’t know quite how I got on that subject.  My mind meanders morosely (and occasionally merrily), and I don’t necessarily know where it’s going.  As I noted above, sometimes I don’t even know where it’s been.

That’s why I never eat off of it, if I can help it.

One thing I’ve tentatively concluded after my thoughts from yesterday, though, is that I really am not capable of managing life in the human world.  I don’t think I ever have been; other people have helped me out in the past, and I have no such other people available now.

I have skills and tenacity and intelligence enough to survive for a time, and to create an illusion of “getting by” that’s convincing enough for people who aren’t really part of my life—which is everyone, these days—but everything is falling apart, and I don’t know how to maintain it, nor do I have the will and the wherewithal to do so.

You might as well ask a moth to maintain a termite mound.  Or even just ask an ant—maybe that’s a better comparison.  An ant could sort of get the idea of a termite mound, and if it’s already been built, the ant could sort of help maintain it to some degree for a bit.  But really, it’s not where the ant belongs, it’s not the lifestyle to which it is adapted.

Ask a human to try to live the life of an ostrich, among ostriches.  The human might put on an interesting show for a bit, and since humans are smarter than ostriches, the human might even succeed at things the ostriches couldn’t from time to time, but if the human is committed to living and behaving like an ostrich—if there are only ostriches anywhere to be found in that human’s environment—that human is inevitably, eventually going to fail catastrophically.  It may be a slow catastrophe.  Maybe it’s nothing anyone would make into and share as a video on YouTube or Instagram or TikTok.  But it would still be a catastrophe.  It would not be pleasant to experience.

Drawing closer to home, it would be hard enough for, say, a chimpanzee to try to live with and as orangutans or vice versa.  Even chimpanzees and bonobos—as closely related as primates get one to another—would probably not be able to thrive if one were placed within the other’s society.  I would guess that a bonobo would probably be abused and die before too long in the company of chimpanzees (who are notorious assholes) but a displaced chimpanzee would probably have just as confusing and frightening a time, if more subtle, trying to blend in with bonobos.  It would have a few slight advantages in strength and size, on average, and it might even be able to learn to try to fit in and make its way.  But it would be living a lifestyle subtly but profoundly different than the one to which it is adapted.

Anyway, that’s all a bit tangential and weird.  I don’t think I’m making myself very clear, and for that I apologize.  I just realize more and more that I don’t think I’m going to survive much longer, even if I were to find the motivation and desire to do so.  It’s a slow crash and burn, perhaps, but I think I really am crashing and burning.  And I don’t think that there was ever a chance for anything otherwise to happen, with me trying to live among and adapt to the world of humans—or normal humans, or “neurotypical” humans, if you prefer those metaphors.  So, what should I do?  I don’t know.

In the meantime, though, I hope you all are having and have had and will continue to have or (if that’s the best for which I can hope) that you begin to have a very good day and week and a very good new month starting tomorrow and so on.

TTFN

Hermit or magus

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I am become Doc, the destroyer of worlds

It’s Tuesday morning, and I’ve just boarded the first train of the day again, since I wasn’t sleeping anyway.  I didn’t have quite as fragmented a night’s sleep as I often have, but it was short.  And yet, as usual, I don’t really feel sleepy, just fatigued, just weary, just [fill in random synonym for “tired”].  This is part of the reason I haven’t started walking in the morning again yet, though this morning the weather would have been reasonably congenial for such a thing, being relatively cool.  I just have difficulty summoning up the will and mental energy to do it.

I’m a bit frustrated—what else is new?—with something to do with WordPress or with a blog that I regularly follow and even upon which I comment somewhat frequently.  I had thought that the “Reader” function in my WordPress account was glitchy, because I could no longer see, let alone make, comments on the site to which I go every day.  It’s one of the things that sustains me, ever since the first time I began reading it, and writing comments on it and replying to them is one of the few pseudo-social things that I do (other than interact with people at the office, which doesn’t really count, since it’s almost never about anything of significant interest to me).

But then I realized that I could see (and make) comments on at least some other sites, even on the “Reader”.  Yet when I went to the site in question, even at its primary, official page, instead of through my “Reader”, it didn’t recognize me, and I had to sign in to make comments, giving my credentials each time, even though I’ve been following that site for years.

I even keep trying to hit the “subscribe” rectangle—let’s face it, it’s not really a “button”—on the WordPress “Reader” thingy, though I’ve long since been subscribed to the site, but as soon as I go back to it, it seems to think I haven’t done it.

I don’t know if that site’s owner is blocking me (it doesn’t seem like something he would do, but I can be insufferably annoying, I know—just ask me) or if WordPress is glitching only on my connection to that site.  It’s nothing to do with any one computer, as far as I can tell, because it happens on each one I have tried.

It’s very depressing.  I can’t even read other people’s comments when using the “Reader”.  It’s like losing friends, in a way, though of course I know that I’m not really anyone’s friend.

Maybe I should take it as a message from the Universe.  Not that I think the Universe actually sends me personal messages, apart from the obvious occasions when actual people, who are parts of the Universe, send me messages from them locally.  But that’s not really the idea about which I’m thinking.  Or maybe it is, I don’t know.  I guess it doesn’t really matter.

Anyway, at this point I’ve basically become little more than a detriment or a distraction or a disruption or a defect in the world.  It turns out I’ve been a defect since I was born, in at least two different objective ways.  I’ve struggled most of my life to be useful, at least to people about whom I care, if only to try to make up for how much I corrode and dysregulate things, but it’s been a losing battle.  To turn one of the last lines from Guardians of the Galaxy Volume 3 on its head and make it more appropriate to me:

I wasn’t born to be a dad; I was born to be a destroyer.

I wanted to be a dad.  I loved being a dad.  But I think I wasn’t a very good one, because…well, anyway, I haven’t seen either of my kids in over ten years, apparently by their choice (well, at least for everything after 2015).  I should probably just give up and accept the other role, though it sucks to give up on ever being with my kids again.  But I should just accept the other role.  And, of course, I don’t have a right to destroy other people, so there’s only one legitimate target for that part of my nature.

Well, I’m sick of writing for today.  This is going to be it for the moment.  I’ll write at you tomorrow—as always, barring the unforeseen.

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Is there such a thing as Von Oldmann architecture?

It’s Wednesday morning, and here I am at the train station, writing my blog post for the day.  It’s quite wet and windy, which might have been a decent situation in which to do some walking, but I’m still feeling quite under the weather, so I haven’t done any walking of more than a mile at a time this week.  Last night/yesterday evening, I walked to the train station from work, and I had an umbrella, but it was terribly windy, so even though I was able to keep my head (and my backpack) mostly dry, my legs were soaked by the time I got to the station.

This morning, it’s not raining as hard, but it is drizzling and windy.  I considered just wearing a rain coat today, but I realized that wouldn’t protect my legs any more than the umbrella would.  I do have a long, duster-style coat that I guess I could have worn.  Maybe if it’s still windy and rainy tomorrow, I’ll wear that.

I also considered not going to the office today, but it’s Wednesday, which means it’s payroll day, so I need to go.

I started a new mantra (of sorts) yesterday, consistent with the way I expressed myself in yesterday’s post—indeed, I started it even as I walked from the train to the office in the morning:  I said, “I hate the world, I hate my life, I hate myself.”  This was, to no one’s surprise, not at all difficult for me to maintain, unlike my former attempt at saying that I loved those things (as if to convince myself) which made my metaphorical tongue turn to metaphorical sand in my metaphorical mouth.

The new mantra is strangely freeing.  It didn’t make me nearly as tense or uncomfortable as I worried that it might.  If anything, it allowed a sense of detaching.  I didn’t feel any actual hostility or malice toward the world—there was no weird desire for revenge or destruction or what have you.  I don’t think the world ever even pretended to owe me anything good, and it certainly does not owe me anything good.  So I can’t feel any sense of affront, or wounded pride, or anything idiotic like that.

Don’t get me wrong; I can be and am idiotic in plenty of other ways.  I’m just not idiotic in that particular way.  As for hating my life and hating myself, well, what else is new?  Accepting it, saying it, has its benefits.  If I hate myself anyway, why would I care what happens to me?

I realized that this might not be the healthiest thing to have going through my mind, so I decided to provide a counterpoint by listening to the David Burns book on Cognitive Therapy, Feeling Good.  I’ve read the book before; I was recommended it by a therapist.  I’ve even done many of the exercises therein.

I recognize the value of the ideas in the book, and I know that CBT (Cognitive Behavioral Therapy) has been tested well and provides good results for many.  It’s also logical and rational in many ways, and that’s always appealing.  So I started listening to the audio-book, even as I waited for the train and rode on it.

It did help me take a nap on the train; maybe that means some of its messages went into my subconscious.  It was a nice little nap, and I didn’t miss my stop, because I wasn’t sleeping all that deeply, despite my horrendous lack of sleep the previous two nights.

It’s sad to say, but I think my body and my nervous system have sort of adapted to getting very little sleep.  I’m not saying that they’re fine with it.  That would be absurd.  Sleep is clearly crucially important to life in creatures with any kind of nervous system as we know it.  This is obvious, even if we don’t quite know why, because every creature in the world that we know of with a nervous system spends a good portion of every planetary rotation in a relatively dormant and quite vulnerable state.  If evolution were able to allow for function without sleep, one would think it would have cropped up somewhere, at least.

Of course, it’s possible that, way back in the dawn of nervous systems, hundreds of millions of years ago, life went down an accidental blind alley with respect to sleep and nerves.  Maybe the common ancestor of all nervous systems just happened upon a form of function that requires what we call sleep, and every descendant of that nervous system is stuck with a requirement that need not have been the case if some different solution to creating nervous systems had been happened upon, but it wasn’t, and so sleep cannot be escaped except by a reinvention of the nervous system by some life form.  That’s unlikely to happen for reasons similar to why new types of abiogenesis aren’t going to happen in an already crowded biosphere:  anything new would be horrendously outcompeted by life forms that have hundreds of millions to three and a half billion years advantage.

I’m dubious, though, about the possible accidental and fundamentally nonessential nature of sleep.  This is at least partly due to the recognition that even our computers eventually need to be updated and, more importantly, rebooted to function optimally.

Computers bear very little similarly to nerve cells or literal nervous systems; they were never designed to mimic nerves, anymore than an internal combustion engine was designed to mimic muscles and legs.  Von Neumann architecture has very little in common with the way nervous systems store and process information.  The former does storage and processing separately; nervous systems seem to do it as part and parcel of the very same processes.

Anyway, my point is, I don’t think I need less sleep just because for a long time I have achieved less sleep.  I think my body, my mind, my nervous system has adjusted as best it can to keep from completely falling apart—literally—in response to truly chronic insomnia.  But the system is still wearing down and suffering damage; believe me, I can tell.

I’m almost sure that at least part of my chronic pain is related to my insomnia, especially the pains that arise other than where the more concrete source of my pain is located.  And there’s clearly an association between my insomnia and my depression/dysthymia.  It’s difficult to say if one causes the other or the other causes the one or if they’re both caused by some third thing—possibly some form of autism spectrum disorder—but I give very low credence to them being only coincidentally correlated.

In any case, I am proceeding in two apparently conflicting directions at once, now:  I’m repeating a mantra that doesn’t seem in any way to come up against resistance in my mind, but which is certainly not what one could consider positive.  And I’m repeating my exposure and exploration of CBT, starting with Feeling Good.  None of it is new to me, nor are there any revelations likely to come.

I understand the points that are made in CBT, I understand and recognize the cognitive distortions associated with depression that it strives to combat.  I’m open to the possibilities, but I’m not sure it’s the right tool for the job, in my case.  I suspect my depression/dysthymia may be quasi-organic, in the sense of being more truly fundamental to the operation of my own weird little alien nervous system.

But I could be wrong, and I don’t like to jump to conclusions too precipitously.  So, I’ll finish listening to the book, and maybe get one of his other books with this month’s Audible credit.  But I’m also not going to try to extinguish the repetition of “I hate the world, I hate my life, I hate myself” in my head.  If it goes away on its own, that’s fine.  Otherwise, it’s at least something consistent onto which to hold.  And it’s weirdly both freeing and calming, and that’s worth a lot to me.

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“…no one here but me, oh.”

Hello, everyone.  In case you were wondering, no, I did not write a blog post yesterday.  I did not go to the office.  I wasn’t sick, exactly, unless you want to count “sick in the head”, which was most certainly the case, in the sense in which it’s usually meant.  I more or less literally did not sleep at all on Wednesday night, and I was exhausted, but still not really sleepy, by the time arrived for me to get up on Thursday.

I almost wish I could say that I’d gone on some indulgent binge‒alcohol, drugs, casual or even not-so-casual sex, whatever‒or, better yet, that I had been feverishly pursuing some new invention or potential scientific discovery.  Even working on a poem or a song or a short story would have been great; I’ve told you all about how I wrote my short story Solitaire over the course of a deliberately sleepless night, and it is probably my darkest story, though I was pretty happy at the time.

No, I simply could not seem to quiet my mind enough to go unconscious.  There may have been snippets of sleep, such as when I would play some compilation comedy video on YouTube that I’ve seen dozens of times before.  That sort of thing often is able to lull me down into at least a temporary bout of slumber and is much more effective than any rain or forest sounds recordings have ever been.  But Wednesday night they didn’t seem to make me sleep even past the end of the video most times.  Anyway, I was usually too restless even to try one of those.

I don’t know for sure why I had so much trouble sleeping.  I can speculate, of course, and I can come up with hypotheses which are unlikely to be the full story‒for instance, Wednesday was my Dad’s birthday, and I miss him and my Mom (and my former Father-in-law) a lot, I think*, and maybe that was hard to process and kept me awake.  That’s unconvincing, though.

I admit that, in some sense, I often “envy” my parents‒sometimes prosaically, as in admiring the fact that they all had lifelong, successful marriages, but often envying the fact that they are dead.  I’ve said sometimes, mainly to myself, that I want to go be with them, but that’s figurative language.  I don’t actually believe in an afterlife.  To visit them would require a time machine, or a memory that is even better and more concrete than mine is.  But I envy them that they no longer need to try.

I don’t consider death to be a state of rest exactly.  Death is simply oblivion, a final cessation, the end of whatever could experience either rest or toil.  A computer isn’t resting when its power is cut, it’s just off.  Actual rest has a rejuvenating quality, and that would be preferable to mere temporary (or permanent) oblivion.  Maybe if I was able to rest in that way, I wouldn’t feel the yearning for a more final solution.  I’m exhausted, but I can’t sleep or relax or let go or rest, so at least oblivion seems like an escape.

It’s not an escape, of course, for escape implies a subject that is escaping, and death makes the subject simply cease to be.

It nevertheless often seems preferable to endless exhaustion without anything else in one’s life to provide a counterbalance.  At some point, there’s got to be a surrender to the notion that, while there will always be momentary fluctuations in the state of one’s well-being, the overall trend is showing no signs of upward movement and, if anything, is sloping downward.

What is one to do, then?  Seeking help, of course, is a major (and probably good) option, but the very thing I discuss in the footnote below seems to make seeking help extremely difficult.  It’s evidently impossible for me to convey to others my sense of true and horrifying (and yet horrifyingly bland) desperation.  I can’t even really grasp how to go about asking, or begging, for help, nor indeed to imagine what anyone is going to be able to do to help me.

I have certainly tried therapy and medications of many kinds, and meditation and self-hypnosis.  I’ve used the crisis hotline in its old and new forms‒once, that led to a very brief hospitalization.  I’ve even tried to find some comfort in religious notions, but the ideas one encounters there tend to be so staggeringly incoherent and manipulative that they make me feel even more depressed.

So, here I go again, “sendin’ out an SOS”, but there’s no one on patrol and certainly no search parties.

I think the worst thing would be if my own kids ceased to be “real” for me.  They are among the only people for whom I have a strong sense of existence, even when they aren’t near or around me.  I think about them every day.  But my son is still, in my head, the young boy with whom I last interacted about 10 years ago.  I’ve seen recent pictures of course, but that’s a form of him that I don’t know‒and I fear I never will.

My daughter is more updated, so to speak.  I interact with her somewhat regularly through texts and emails.  But though I dearly wish I could spend time with them again, I don’t have any idea what I would do if they suddenly came back into my life.  I have nothing‒I am nothing‒worth sharing with them.

Anyway, I got something like my usual three to four hours of (frequently interrupted) sleep last night, and I was still wide awake so early that I decided to take the first train of the day to the office.  And here I am, at the office, finishing this post.  I don’t work this weekend, so I guess I’ll bother you all again on Monday.  Have a good weekend.

*Though perhaps not in the way that most people seem to miss people, at least if you believe their words.  I think I’ve said before that, when I’m not with someone, literally, they don’t feel precisely real to me.  It’s not that I think they actually cease to exist‒I’m far from being such a solipsist.  It’s just that I don’t really feel them when they’re not around.  I can’t imagine what they might be doing, and it doesn’t occur to me to try.  The concept of them is out there, implicit, I suppose, but there’s no “theory of mind” simulacrum of the other person running in the background processes of my brain.  I’ve read some hypotheses that the concept of an afterlife may have arisen from people still having a model or sense or image of a person operating in their mind even after the person dies‒that it still feels to them that the person is present somewhere, somehow.  I don’t seem to function that way.  People are certainly very real to me, and when they’re in my presence they can even be overwhelming, with all their emotions and noise and everything battering away at me; they are all but impossible to ignore or not notice.  But then, when they are not present, they pretty much go away, other than intellectually.  I sometimes wish it were otherwise, but I’m not sure.  This may be part of why I have never wished I could somehow trade places with someone else.  Other people really are other to me, and it’s hard to “feel” them with any depth, though I can write people decently enough.  But then, in a sense, I am in their heads.

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Feel free to imagine your own illustration to accompany this post

As so often seems to happen, I arrived at the station this morning just in time to see the first train of the day arrive and pull out.  That’s fine; I hadn’t been planning to take it, anyway, and there was really no possible way for me to have done so.  If I had gotten up and left five minutes earlier, I very likely would have caught that one, but of course, there’s no true point to getting on that earliest train, since I’ll either be killing time at the office or at the train station or at the house.

I prefer to leave early, since I’m awake anyway, and have been for hours, and traveling early means things are less crowded.  I used to spend time in the morning practicing guitar after writing, but I don’t do that anymore, so there’s no huge benefit to being at the office.

Now, I’m sitting at the station and writing this post on my smartphone.  I’ve been writing all my posts on the phone, lately, since it’s just so convenient.  In fact, I took my little 11-inch laptop back to the house with me last night and I left it there.  I don’t think I’m going to be writing on it again.  I may, possibly, use it for something else, but that’s an iffy possibility.  I guess I’ll have to see.  Anyway, there isn’t much point in keeping it at the office.

I threw out some other things at the office that I don’t need, so it’s getting a little less cluttered.  That’s good, I guess.  It’s probably more pleasant for everyone else.  I still need to clear out some more of the crap there, and even more at the house.  I live in a small room, but there’s still too much useless drek in it, stuff that no one is ever going to want or need.  Better to do my part to contribute to the unsustainability of landfills.

I tried out a corrected-size pair of boots yesterday, since I think part of the issue with the others was that the sizes made by Timberland might be a bit larger than my usual.  Anyway, half a size down seems very good.  I had no adverse effects, and I plan to try a longer walk today, heading back to the house from the train after work.  I wasn’t going to do that yesterday, after a 24 hour food and water fast.  The food wouldn’t be an issue, but I might have become a bit too dehydrated.

The fast yesterday was interesting, as it always is.  I moved rather slowly and was not quite as mentally sharp as I normally am, though that was more due to lower caffeine levels than anything else.  I had one incidence of “head rush” when rising from a seated position, but it was pleasant and a good sign that I’m probably losing weight, which I want to do.

I’ve had head rushes before, and I’ve even had them bad enough to make me lose consciousness completely, including once while in jail.  I didn’t like smacking my head on the concrete (I didn’t feel it at the time; I definitely did afterwards), but passing out suddenly is not a bad feeling.  Indeed, it’s more or less no feeling at all.  That’s what’s great about it.  There’s just that hint of a head-rushy sensation, then everything goes white and then blank.  Even those sensations are probably reconstructed memories after the fact.

I suspect, based on actual expertise, that this is what it “feels” like to die of a sudden ventricular fibrillation arrest.  I don’t mean a heart attack; heart attacks are almost always quite painful and unpleasant, and in and of themselves, they don’t usually cause one to lose consciousness.  Though they can induce dangerous arrhythmias such as ventricular fibrillation, the process leading up to it is decidedly uncomfortable and generally terrifying for the person involved. Trust me; I’ve seen it many times, and I have a very good memory.

But in a V-fib arrest or similar process, the heart basically stops pumping blood all of a sudden, and the brain stops getting perfused‒it’s much like what happens in a sudden fainting spell, but more persistent‒and when the brain suddenly loses all blood flow, it pretty much suddenly blanks out, or at least consciousness does.

There’s no fear, there’s no pain, there’s not any experience of what’s happening.  One isn’t confronted by the threat of permanent cessation*, and there is no potential to “rage, rage, against the dying of the light”, anymore than a computer that is abruptly deprived of all power can struggle to stay “on”.  It simply doesn’t work that way.  The thing that does the raging is what is shut down, and quite abruptly.

Your brain (i.e., you) can no more fight to stay conscious or alive when suddenly deprived of blood flow than your lungs can successfully draw in oxygen if you suddenly find yourself in outer space without a space suit.  Though, even that seems likely to be less unpleasant than movies make it seem, because while you can’t get oxygen, you will still be able to expel carbon dioxide, and it’s the CO2 in your blood that drives your sense of needing to breathe.

So, you won’t feel like you’re suffocating; you’ll just get rapidly light-headed from the lack of oxygen.  Some of the other effects of vacuum might be unpleasant‒your saliva and mucus bubbling into gas phase, perhaps some bubbles forming within your eyes, some other outgassing here and there, but you won’t experience them for long, if at all, because the lack of oxygen will deliver a slightly slower version of the effect of the V-fib arrest.

Oh, by the way, you will not suddenly freeze or even accumulate frost in seconds, like in some movies.  Space is very cold, yes‒the overall temperature of the vacuum is about 2.7 degrees above absolute zero‒but there’s nothing there to conduct your heat away from you, so you only lose it through radiation (mostly infrared and such, but humans do give off a tiny amount of “visible” light), and that is a very slow process.

Think about it.  You can survive indefinitely and even feel pretty comfortable in 70 degree (Fahrenheit)** air, even without much clothing, and that is far from vacuum.  But if you are dropped in water at the same temperature without a wetsuit or similar, you will probably die from hypothermia before long.  And that probably would be quite unpleasant.

Anyway, that’s all quite a digression, but it does reinforce a point I sometimes make:  if you have a choice of how to die, do it by some means that suddenly and completely cuts the blood flow to your brain.

As for other fasting-related matters, well, there was, as always, a slight feeling of detachment from my body by the and of the day, not quite like my numerous experiences of depersonalization***.  It’s a good sort of feeling, a sense of being slightly out of sync with the physical world, but not in a confusing or disturbing way.  Maybe it’s akin to a much slower version of the fainting/V-fib experience.  Anyway, the less I experience being me, usually the better, from my point of view.  Not that I want to be someone else!  That would be even worse.

So, I’ve learned nothing new from fasting, really‒certainly there were no epiphanies‒but I have re-experienced things I’ve experienced before that I found worth repeating.

And now, we’re nearing my train destination, so I’ll let you all go, at least for now.  Have a good day, if you can.

*Or “death” as it is sometimes referred to in the medical literature…but I wanted to avoid too much jargon.

**70 degrees Centigrade/Celsius would be another matter entirely.

**I think that’s the term.

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Remember what the dormouse said: Decongest your head

Well, it’s Saturday morning, and I’m waiting at the train station for the first train of the day on this first day of the Jewish year.

I took a long-acting decongestant last night, and though it did make me notice more alertness when I had my frequent nocturnal awakening, I don’t think I actually woke up more often than usual.  If anything, as I’ve long suspected, nighttime decongestants improve my breathing (duh), and thus the quality of such sleep as I get.

I have a family history of some degree of sleep apnea, and I suspect that using decongestants‒as long as the side-effects aren’t prohibitive‒provide protection from, and possibly prevention of, that process (This, I suspect, is especially true if, as needed, inhaled corticosteroids are also part of the treatment).

I’ve long suspected that sleep apnea can be a long-term secondary consequence of chronic allergic (and/or vasomotor) rhinitis, with narrowing of the nasopharynx due to inflammation/swelling of the mucosa leading to snoring and worsening sleep, then the weight gain often associated with certain kinds of inefficient sleep and high carb intake secondary to the nocturnal relative hypercapnia (high CO2) and the elevated cortisol that often accompanies chronic insomnia.  That high carb intake, with consequent elevated insulin, may lead to worsening of the inflammation and further narrowing of the airways and the gradual reduction in the quality of sleep, leading to a vicious cycle.

This is hypothetical, of course, and there are many variables that would need to be controlled to test it; I’ve only ever “experimented” on myself, starting when I first had a cat and realized that I was allergic, and that I was sleeping horribly and developing many signs and symptoms consistent with early sleep apnea.  It worked.

I’ve tried (with incomplete success) to avoid having cats since my first one was no longer in the picture.  That helped some and I have intermittently cut back on decongestants, but in south Florida‒and when living indoors in general, I suspect‒it’s hard to avoid all potential airway allergens and irritants.  Over time, the decreased quality of sleep (especially in someone like me who has a deceased tendency to sleep at all) has its effect on my cognitive function, and on my general energy level and appetite.

I have noticed that, when I am treating myself assertively for congestion, I tend overall to be cognitively sharper than when I am not, and I do not think this is simply due to the stimulating side-effects of the decongestants.  Studies have demonstrated that even true stimulants such as amphetamines do not actually bolster measures of intellectual function, though in the short term, they can improve alertness.

The biggest problem with my use of such things is that they tend to increase my level of internal stress and anxiety, particularly social anxiety.  All chains break at their weakest link (at least when under uniform tension), and social interaction is evidently my weakest link.

I’m not terribly afraid of physical danger, though it could never be said that I am fearless nor even particularly courageous, and I’m relatively used to physical pain.  I also don’t worry much about people being “mean” to me or not particularly liking me, or whatever‒for the most part, I don’t really have a clear notion of what other people are thinking of me at any given time, or indeed, what they’re thinking of anything.  When I’m not in someone’s presence, their presence in my brain seems abstract and ephemeral at best.  There are rare exceptions to this rule, but they are countable on the fingers of one hand.

But I do get stressed out about knowing what to say or how to interact, especially with new people, and I worry very much about being a bother or an annoyance to others.  Phone conversations are particularly stressful, except with people I know very well.

So this is definitely a trade-off situation, as are almost all things in life.  The body is an extraordinarily complex Rube Goldberg machine, and to push down on the system in one place almost always causes something to pop upward somewhere else.  I know, that’s not quite a consistent metaphor, but I think it works to convey my point.

Right now, at least, I want to try to improve my sleep quality‒increasing its quantity seems an unachievable goal without using things that make me feel worse overall‒so I can have the energy to do more walking and the like, including quite long-distance walking.  And I want to try to optimize my thinking as best I can, to decrease the risk that major decisions and changes I hope to make are based on poor thinking.

As for social anxiety, well, my social life is nonexistent anyway, apart from work.  I don’t expect ever to make* any new friends or have any new relationships, romantic or otherwise.  That aspect of life just doesn’t seem to be in the cards for me‒certainly nearly all such things have been disastrous hitherto for me.  Maybe if I could find some other member of whatever species I am, it might be different, but I don’t consider the odds of success, or the probable payoff, to be worth the likely cost and the probable rate of failure.

Plus, let’s face it:  I’m no one’s idea of a good prospect for a long term friend or partner of any kind.  I can be quite useful; I tend to be hard working and disciplined, and I’m reasonably bright, but my skills in romantic interactions, for instance, have always been horrible, and if anything they have atrophied over time.

I used to be tolerably good at friendship, but I seem to have no skill at keeping friendships going from a distance.  I don’t naturally think to try to reach out to people‒those times when I do think of it, I always feel awkward and anxious and am sure I’m just going to be an annoyance to anyone with whom I interact and to find the interaction stressful and even heart-breaking.  I’ve said before, even leaving comments on blogs or videos or what have you often leads me to feel real stress afterwards, and to regret doing it.

I just don’t think I’m well designed for this world, though there are attributes I possess that are useful and effective.  Overall, I’m just not a good fit, and the places where that fit is bad chafe and grate and grind away quite painfully at me.  Every day is painful, and not just physically.

If I could find some other world to try, I might do that, depending on what I judged my chances to be.  But I don’t think that’s going to be an option, probably not ever in my potential lifetime.  So, it seems better to consider and prepare for a relatively straightforward exit from this world.

I could say, “Prove me wrong”, like those stupid Internet memes, and I guess if anyone thinks they can do it, they’re welcome to try.  But I don’t expect any fresh arguments or evidence that I haven’t already seen or considered.  I’ve been dealing with this question since I was a teenager.

Anyway, have a good day and a good weekend.  Thanks for reading.

the doctor in the desert

*Google’s auto-correct tried to make me change this phrase, making it “to ever make”.  Yes, it actually recommended that I split an infinitive where I had not done so, though there would be no improvement in the clarity of my expression thereby.  It’s exasperating.  To quote a very sarcastic young Scrooge, “This is the evenhanded dealing of the world!”

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“Although I laugh, and I act like a clown…”

It’s Friday, and I’m sitting at the train station, writing this on my laptop—by which I mean I’m writing it on my laptop computer.

I’m pretty sure that everyone reading this knows that, when I say I’m writing on my laptop, I mean I’m using my laptop computer, not that I’m doing some bizarre form of self-decoration by writing on my actual lap, and then—presumably—recopying it onto the web sometime later.  That makes little to no sense.  Nevertheless, I feel compelled to clarify that when I say “laptop” I mean “laptop computer”.  I try to make it into a joke—I do this with a lot of things that I find it impossible not initially to take literally—and it is indeed funny sometimes.  However, it is not simply my choice to try to be jokey.  I cannot resist thinking that way, it seems.  At least, I don’t tend to be able to resist it.

I brought my computer with me because I didn’t walk back to the house (which is not my home) from the train after work, and I knew I wasn’t going to walk to the train this morning.  I was a bit physically wiped out yesterday by noon.  I was also psychologically wiped out, even more than usual, to be honest.  I started the day ever so slightly giddy after having walked to the train station—I’m a person who responds well to accomplishments, and I also tend to get good endorphin rushes (apparently) from endurance exercise.

I guess in a way my “crashing” is probably like coming down from any kind of drug—you get a rebound effect.  So, even if the endorphins and enkephalins or whatever are endogenous, if you get in a state where you have a high concentration of them—or, rather, a high degree of activity in nerve cell groups that are associated with those neurotransmitters—when it stops, the overstimulated postsynaptic nerves are going to become more inactive than they were at baseline.

I’ve noticed that I often have this sort of experience with comedy.  If I’ve been watching lots of funny videos, for instance, afterwards I’ll often have a powerful come-down feeling, and actually get depressed—more so than I am at baseline, I mean, which is pretty flipping low.  This used to happen to me especially badly when I would read through my former Dave Barry collection.  He was so funny, so consistently, that by the time I’d read very much of his stuff, I was apparently strongly prone to shift the other way, and sometimes got very depressed afterwards.

Maybe the opposite of this phenomenon is why so many people like sad stories and sad songs.  If you listen to a particularly heartbreaking song—it would probably have to be a good one, of course, if it’s going to elicit particular emotions—and feel very sad for the duration of the song, maybe afterward you get the equivalent of an upward rebound.

This doesn’t seem as persistent or prolonged in most cases—the sadness from a song or similar, I mean—as does the potential for laughter from good comedy.  Maybe that’s why I’ve never noticed any tendency to get happier after feeling sadder from a song (or a story).  Then again, I don’t tend to be happy in the first place.  Once my brain gets depressed, that tends to be a self-reinforcing process, like a hurricane forming over the ocean when it’s hot at the end of the summer, which becomes a self-sustaining cycle.

I’ve used that metaphor for depression before, and I’ve even mentioned it here, I think.  In a sense, I could just characterize my tendency toward depression by thinking that I’m just a tropical ocean late in the summer.  How lovely.

I don’t know what I’m trying to accomplish by writing that stuff, honestly.  I guess I’m probably not actually trying to accomplish anything other than “writing today’s blog post”, which is what I am usually setting out to accomplish when I start writing every day.  I won’t be writing tomorrow, though.  I have the weekend off, and that’s good.

So many little things stress me out, and I don’t know why.  I have a present for my daughter’s birthday—really, a collection of presents—and I need to write out the card I have and finish boxing things in the box I have, and tape it up and address it and bring it to the nearby post-office and send it away, but even the thought of writing the card—deciding what to “say” and how to put things, even though I’ve written millions upon millions of words in my time, and my daughter is not a harshly critical audience—and then of actually going to the post office and going up to send the package are just so inducing of anxiety that I tend to put it off.

It’s weird because I know it’s not a big deal.  I’ve done many much harder, more stressful things in my life.  Yet, even thinking about it and writing about it fills me with tension and stress.  It’s really quite pathetic.  I hate that part of myself.  Which makes it pretty much like every other part of myself, come to think of it.

Anyway, I haven’t started writing any new fiction, of course.  I idly searched through Amazon for spiral-bound, top-flipping writing pads, imagining that, if I got something handy and convenient in which I could write with pen on paper, the “old-fashioned” way, maybe I’d start writing some new fiction.  I’ve tried to do analogous things to myself many, many times in the past.

It doesn’t work; I don’t think it ever has, for me.  I write fiction if and when I’ve decided I’m going to write fiction, and when that’s the case, it doesn’t need to be on any particular, special device or surface.  I wrote two novels and a novella while I was in prison, for crying out loud.

Maybe I’ve stopped writing (fiction) just because I’m mentally and emotionally exhausted.  I don’t sleep well at all—it’s so bad that I hardly even talk about it, because it’s just the same fucking thing all the time, anyway.

I don’t have any real joy in the work I do, I don’t have any real friendships, certainly not with anyone with whom I spend any time other than at work.  There’s nothing that I do for “fun” other than watching YouTube videos and—to a steadily diminishing degree—reading nonfiction (a rapidly shrinking pursuit) and fiction (all but completely gone).

I found a meme yesterday that I guess I’ll share here, showing the difference in what it looks like from outside to be reading, and what it feels like from inside, to be reading.  That used to be abundantly true for me.  Reading was probably my single favorite thing ever—and not just reading fiction, obviously.  I’ve always said that the written language is by far the single greatest invention of the human race.  I have encountered no reason to change that assessment.

reading

But now, steadily, I’m losing the joy of reading, and I have been for a while.  There are no dragons or rainbows or other mystical and mythical things going on in my head, like in the picture.  Reading, for me, is just a desert (but not a dessert, alas) for the most part.  Even nonfiction isn’t that interesting—the good stuff I liked I’ve read quite a lot about, and I have reread my favorite books on various subjects over and over.  None of it is engaging any more.  I force myself to do it, because without it, I don’t even know what I am, let alone who I am.

But I can’t really seem to read fiction of any kind anymore.

I don’t know how I’m going to make it to the end of this month.  I don’t truly expect to make it to the end of this month.  And I honestly don’t very much want to make it to the end of this month.  I’m reminded of the lines from a Beatles song:  “I don’t want to spoil the party, so I’ll go.  I would hate my disappointment to show.  There’s nothing for me here, so I will disappear…”

Several people in the office—or, well, three of them at least—are on vacation at the moment, and I guess that’s good for them.  I honestly wish them the best of times.  But I don’t know what I would even do or want to do if I took time off.  I can’t think of anything fun that I would want to accomplish or experience.  And, frankly, the prospect of trying to make arrangements for going somewhere and doing something is so stressful and intimidating that even thinking vaguely and nebulously about such a non-specific trip or vacation makes me feels so tense I’m surprised you cannot hear me vibrating.  Maybe you can.

What I need is a dirt vacation*, I think.

Oh, well.  It’ll come quite soon, I suspect.  I can’t say I’m looking forward to it, necessarily, except that it would be worth feeling nothing simply not to feel so stressed and depressed and lonely and so bloody tired all the time.  It’s just a regression to the mean, if you will—and the mean is zero, or vanishingly close to zero**.

Have a good weekend.

*That’s like the proverbial “dirt nap”, but it lasts longer.  Ha.  Ha.

**This is somewhat related to the fact of why perturbation theory can work in things like quantum electrodynamics.  Most positives are canceled out by negatives, leaving finite answers to things like path integrals and so on—a converging, rather than a diverging, infinite series.

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2 kinds of ASDs and an NTD called SBO all considered by a pitiful SOB

It’s Friday, and this weekend I am not working, which right now seems like a highly positive thing, because starting yesterday in the middle of the day, I suddenly had a huge flare-up of my back/hip/leg pain.  I’m not sure what triggered it.  I’m always trying to see if I can tease out (and test) the causality of such occurrences, but of course, it’s a tricky business, with so many possible variables.  I wondered if it was something I ate‒I had a specific type of food in mind, that I had not eaten for a while‒or was it partly because of my severely poor sleep the night before?  What was it?

It was frustrating in more than the usual sense because, after having walked to the train that morning and not having any problems from it or the previous few days’ longish walks, I was planning to walk in the evening again.  Unfortunately, I did not feel up to such a thing when the time came, so I took an Uber to the house‒after getting some comfort-oriented ice cream at the Cold Stone Creamery*, a place I’ve not visited in over a decade‒and then another one to the train this morning, since I still feel rotten.

It’s noteworthy that, when I am in more severe pain than usual, my willpower to resist indulgences that I want to resist gets quite a lot weaker.  I suppose that trying to compensate for and deal with the pain diverts mental resources that would otherwise be pointed toward self-discipline.  I had a big hot pastrami sandwich for lunch yesterday and then that ice cream, but they were both far less satisfying and pleasant than I would have expected.  I don’t think I’ll ever get either one again.

I’m always trying to think about my back pain and the things that trigger and assuage it and so on, and occasionally‒though for the most part it’s all well-trodden ground‒I come upon some possible connection that I hadn’t seen before.  Yesterday, while thinking about my then-present back pain, I thought back to my childhood leg pains, which I think I’ve mentioned here before.  When I began having my current problems (about 20+ years ago), they first presented as a recurrence of the kinds of pains that I had as a child, quite similar in character.  This led to various investigations to look for neuromuscular or myopathic processes, but I had no myopathy**.

Having more recently researched connections between autism spectrum disorders (which I might have) and congenital heart disease (which I certainly did have‒Atrial Septal Defect, secundum type‒because I had open heart surgery for it when I was 18), it yesterday occurred to me that there might be other associated anomalies.

I think it was while I was browsing biomedical news related to neurodevelopmental stuff on a site that’s linked with phys.org (which is a science news site that I enjoy and recommend) that I saw something about neural tube defects related to autism spectrum disorders.

Neural tube defects (NTDs) occur when the neural tube‒the embryonic infolding that creates the cavity that becomes the sort of scaffold and center of the spinal cord and central nervous system and its supporting structures‒fails to close completely on one or both ends.  It’s mainly to prevent these that potentially pregnant women in the modern world are encouraged to take daily folate supplements.  NTDs can be utterly catastrophic, producing forms of anencephaly and various types of severe and lifelong neurological impairment, or they can be comparatively mild, all the way down to spina bifida occulta.

neural tubeadjusted

That latter term describes the situation when, at the very lower end, the spinal bones and what not are not completely closed at the rear.  The “occulta” part refers to the fact that there are no noticeable external findings that show the presence of the incomplete closure.  The most commonly affected portion of the spine is in the L5 and S1 vertebral bodies (lumbar and sacral, that is) with somewhat incomplete rear closure.  These findings are, according to what I have read, not always noted on MRI unless it is looking for them specifically.

diagrams of sacral spina bifidaadjusted

It is noteworthy (to me) that when my back was investigated, including “provocative discography”, I had not just a bulging disc but a full thickness tear in the L5-S1 intervertebral disc, going all the way from the outer edge to the nucleus pulposus.  Imagine one of the pieces of Freshen Up gum, with the goo in the middle of each stick up gum, but torn inward from the edge so that the central liquid leaks out.  That’s the sort of thing I had.

annular-tearadjusted

And it was in the rear of the intervertebral disc, just where any SBO might have left poor structural support.  No one noticed SBO in my back when they were working me up, but they weren’t looking for it, nor even looking at the bones in particular.  No one (including me) suspected any skeletal issue.  And SBO can be very occult, and may present, conceivably, with only very minor, hard to notice changes.

I haven’t yet mentioned that one of the findings that can be associated with SBO is bed-wetting.  I had trouble with that, in addition to my frequent and rather severe childhood leg aches, far later than my siblings…in fact, I never heard of either of them having that trouble at all.

It turns out that the correlation between congenital heart disease and SBO is quite high as such things go, more so than either condition’s correlation with autism spectrum disorders.  Of course, most people with congenital heart problems do not have neural tube defects, and vice versa, but the existence of one involves a prevalence of the other that is quite a lot higher than in the general population.

So, though I cannot arrive at any firm conclusions, I know that I had congenital heart disease, I have lifelong neurological and psychological attributes that seem (to me) to be consistent with what would have been called Asperger’s Syndrome before about 2013, and I had symptoms (and signs) that could very well correlate with the presence of a minor form of Spina Bifida Occulta***.

Also, of course, my physical findings when my back was investigated for a resurgence of leg pain in mid-adulthood are consistent with a structural weakness in the posterior region of L5-S1, such that my disc damage or injury was markedly worse than most I’ve seen in patients with whom I’ve been associated, or in descriptions of disc disease.

Alas, I no longer have, nor have access to, my former radiographs of any kind, nor medical notes or surgical notes.  I could be incorrect in this assessment of possibility, and I certainly don’t put my credence very close to 100%.  But I think I’ve nudged myself at least past the 50% point.

Whatever the case, I have chronic pain now, and I’ve had surgery in my back and implanted matrix with bone growth factor there and a titanium cage, so it’s probably all too messy ever to discern if there used to be a very minor case of SBO in the past.  Until and unless someone develops a means of scanning the past such as the Father invented in my book Son of Man, which uses complex time (and a phenomenon I made up) to be able to scan the past of quantum fields without running afoul of the uncertainty principle, I’m unlikely ever to know with anything close to certainty.

I’m convinced that our firm credences of any of the facts of reality can never actually be 100%‒I personally don’t even consider “I think therefore I am” to be completely valid, since even my consciousness might be part of some much greater mind’s imagination…though I suppose in that case, it would still be valid to say that “I am”, just that what I am would be different than what I seem to myself to be.

But for all practical purposes, it’s reasonable to go with Descartes, though.  Most other aspects of reality are, as he pointed out, less certain than we often suspect them to be‒except when they are more certain than we expect them to be.  

I hope I haven’t bored you too much with these thoughts.  They seem interesting to me, of course, but I recognize that’s no guarantee that anyone else will find them anything but mind-numbing.

It would be nice if I could find a way to get better answers than I have on questions of personal neural tube defects or neurodevelopmental disorders, but even textbook findings of such disorders are somewhat misleading, because we don’t have MRIs (or similar) of everyone in a population and symptoms or signs to correlate with findings.  Indeed, almost by definition, the MRIs and CTs and X-rays of people with such issues are going to be those with the most obvious and glaring findings.

Oh, well.  Reality is often disappointing.  But at least thinking about these things is momentarily engaging.

I won’t be writing a blog post tomorrow, barring the unforeseen, so I hope you all have as good a weekend as you can have‒which you will, since whatever happens will be what has happened, and will not be subject to change once it has (It’s always the best, and the worst, of all possible worlds, in a sense).  So, I guess it might be worth it not to worry about it too much.  But, of course, you also don’t have any choice about whether you worry about it or not, once you’re worrying about it****.

Even if there are “many words” a la Hugh Everett, you still only will experience one version of your life.  The fact that another of you might have it better (or worse) has no bearing on your experience in any given Everettian branch, unless it’s possible for the wave function branches to interfere again after decoherence, which is, in principle, possible, but so vanishingly unlikely that it seems not worth considering.

Enough!  Please have a good weekend.

*It was disappointing.  My tastes seem to have changed over time, perhaps due to Covid or perhaps to other matters, but some things I used to like don’t seem to please me anymore.  In this case, that’s probably just as well.

**Myo- for muscle and -pathy for “something wrong with”.  It’s a fairly basic term that reveals almost nothing beyond its prima facie meaning, but it sounds impressive because of the Latin.

***I should note that leg pain is not part of the traditional symptom list of SBO, but intermittent leg weakness is definitely a part of it‒and my leg aches were associated with some radicular type symptoms, such as apparently being associated with notable temperature change in the affected extremities.  At least, it was notable by our family dog, Ernie, who would often unerringly come and lie on my affected leg when I was in pain, just in the right place, as if to provide warmth and comfort.  He was a good dog!  Anyway, disorders rarely exactly follow the textbook descriptions.  As I’ve often said, diseases don’t read the literature.

****Rush were simply wrong; you cannot choose free will.  It either is or it isn’t, but that’s not up to you.