mental-illness

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Lost then found thoughts about lost connections

While I was getting ready to go this morning, I thought about writing this blog post.  I thought about my usual starting point of saying something like, “Well, it’s Wednesday morning again,” or some other such inanity.  But then, as I was thinking about that, another, more interesting beginning and an actual, rather interesting, topic occurred to me.

Then, by the time I got ready to start writing—i.e., now—I had completely forgotten what I meant to write.

That’s terribly frustrating, but it is par for the course.

Oh, wait!  Maybe what I was going to write was about my realization regarding the effects of having a very uncomfortable crisis, but one that is inherently finite*.  It’s probably pretty obvious to you that what made me think of this was my recent adventure with a kidney stone.

Of course, while it was happening, it drowned out everything else, especially in the acute stages.  If that had been something without an endpoint, and if there were not sufficient medication to control the pain, then death would have been the only feasible alternative.  Even later, with the stent in place and the literal, constant, burning feeling that I needed to urinate for two weeks, things were pretty harsh.  But though it did not truly drown out my depression, and it was thoroughly exhausting, it did rather overshadow much of my chronic pain.

The day the stent was taken out I felt a fair amount of relief, of course.  But before long my usual existence asserted itself, with all its emptiness, and of course, with all its chronic pain.  And I remembered that, really, I have nothing going on in my life at all, nothing to which I look forward in any kind of long-term sense, and I have no further clue about or hope for my future.

It’s a bit reminiscent, on a shorter time scale, of what happened when I was a “guest” of the Florida Department of Corrections.  Though I was/am innocent of the charges that were created against me, I took a plea bargain for three years (toward which time served applied) because it was tolerably short and I didn’t want to risk the possibility of the much longer sentence with which the prosecution threatened to try to get, risking the outcome on the potential of a jury of my peers to see past my (apparently) not terribly endearing personality and the simple fact that I was a doctor and thus, to those who might be in a typical jury, a generally hated “elite”**.

I think it was the best available choice at the time.  And while I was “up the road” I was able to console myself with looking forward to seeing my children again once I got out—and to see them before they were adults, which would not have been the case otherwise—and that gave me the optimism to write first Mark Red and then The Chasm and the Collision and then Paradox City while I was at FSP West.

But then, of course, once I got out, it turned out that my kids didn’t really want the discombobulation of me having visitation or anything of that sort.  While I was heartbroken, I didn’t feel that I had a right forcibly to disrupt their lives when I had already fucked everything up, first with my personal health problems, then with my misguided attempts to help other people with chronic pain that led me to be arrested.

So, I bit the bullet and kept on writing at least, on my own, though I think my stories grew steadily bleaker and darker over time.  And I learned to play guitar and wrote and recorded a few songs, and did some covers and everything.  But I still didn’t see my kids, and haven’t even communicated with my son other than to receive his email stating that he didn’t really want to have a relationship with me (“right now”).

At least I got to see my youngest when I was visited in the hospital with my kidney stone.  That was a gift that was well worth even that much pain.  But now I’m back to my nosferatu existence, and like Vermithrax***, though I don’t feel pain as severe as the kidney stone, I still feel constant pain.

There may be people who can have chronic pain without getting depressed about it, and indeed, without losing their zest for life, but I fear I’m only left with the squeezed dry pulp of mine.  It seems to be just the way I’m built neurologically.

I suspect that most people who keep their spirits up despite chronic pain and disability do so because they are surrounded by a local support system of some sort****, and they probably do better at connecting with and getting along with other people than I do.

I’ve only ever really been close to specific, core groups of people, and with ones nearby, that I saw nearly every day.  I’ve never been good at connecting over long distances, and I have a hard time even picturing people when they’re far away.  I mean, I can “picture” them in the sense that I know what they look like, and I will be able to interact with them if and when I see them, but I cannot in any intuitive sense “model” their existence elsewhere.  I cannot really get a feel for what they might be doing and certainly not for what they might be thinking.

When even the people I love are far away from me, they really exist more as concepts than as people whose reality I can feel.  They are missing in a bleak and rather horrible way.  I feel terrible about that fact, and I hope it doesn’t come across as insulting—though it has probably hurt the feelings of people about whom I care on more than one occasion—but it seems to be just the way my brain works.  It’s also probably related to the fact that I never have for an instant imagined wanting to be someone other than myself, even though I hate myself; I just cannot even conceive of what that would mean, let alone wish for it.

Oh well, whatever, never mind.  I’m back on the train, yeah, and here I go again, on my own…alone again, naturally.

(I do like to quote things, don’t I?)

I hope you have a good day.

*Of course, as far as we can tell, pretty much everything is inherently finite, but some things are much more constrained and contained in time than others.

**This is based on what my attorney, and my attorney’s supervisor, said to me.  I don’t think they were trying to be unkind, and though their judgement was and is fallible, it was likely better than mine would have been.

***I know, I’m mixing fantasy metaphors and similes.  That’s okay; I like them.

****And most of them are probably not “ex-cons”.

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Missing AC units and one man’s lack of mental health

Well, it’s Tuesday morning, and that’s better than it still being Monday evening, which wasn’t so fun.  I got the notice that my AC unit had been delivered yesterday afternoon, but when I got back to the house, it was nowhere to be seen, and my housemates had not seen it let alone brought it in out of the rain.

It was raining, in case I hadn’t told you.  It still is.

Anyway, I looked around the nearby houses and then I checked with Amazon, and I called FedEx, who said that their info was that it was delivered.  I went to the website with them and saw the delivery picture‒which was not of the house where I live.

I got pretty frustrated, because it was raining a fair amount, but I looked at the picture and thought it might be the neighbor’s house.  But it had not been there when I’d looked around.

I was already wet, so I went to their house and knocked on the door, so irritated by the whole process that I was willing to interact with other people.  It turned out they had brought it inside because of the rain.  They graciously (and with some difficulty, since it was both heavy and awkward) brought it out for me.

Then I had to lug this 50 pound box, with no real handles, back to the house.  I’m feeling the effects of that in my back quite a bit, and I hold FedEx responsible.

In the end, at least I got it set up and started using it last night.  I won’t say it was miraculous, but I was able to use a blanket part of the night last night for the first time in a long while.

I guess it can’t expect it to make a life-changing difference, but it’s better to be at least a little cooler than I was.  It can’t be a bad thing‒or, well, it’s always possible in principle for it to be a bad thing, but I would give that quite a low likelihood.

As for everything else, well…I’m still at a loss.  I don’t know what to do, and I feel no why to do anything.  I guess it’s appropriate that June is (among other things) Men’s Mental Health Awareness Month, though it might better be called Men’s Mental Lack of Health Awareness Month.

Apparently, according to the statistics I have recently seen (this was on social media, so the precision and accuracy must be considered at least potentially lacking) men die from suicide three times as often as women.  And, of course, people with autism spectrum disorder die from suicide a similar multiple compared with those who do not have it (and the proportion may be as high as 25 times that in non-autistic people, but I’ll stick with 3 times for the moment).

So, if those variables are independent, which they probably are not completely, then I would be nine times as likely to die from suicide as a neurotypical woman.

That sounds alarming, doesn’t it?  Nine times the risk?  Like corduroy pillows, that’s the sort of thing that makes headlines.  But if you think about it, those statistics and probability ratios give you almost no information.  Before you can decide to act on that risk multiplier, you need to understand the baseline risk/rate of occurrence.

If 10% of neurotypical women die from suicide (an absurdly large and entirely imaginary percentage) then with my relative risk of 9 x the baseline, it would seem that I would have a 90% risk of suicide.  If the women’s rate were a bit higher, my risk might even seem to be more than 100%, which is a mathematical absurdity.

On the other hand, if neurotypical women committed suicide at a rate of .000001, or one in a million, then my risk would seem to be .000009, or just shy of one in a hundred thousand*.  That wouldn’t be too terrible.

This is why you should not get alarmed if you hear some statistic such as “people with red hair have a hundred times the chance to spontaneously combust as non redheads”.  You need to know what the baseline chance is to know if there’s anything worth worrying about**.

As for my personal risk of suicide, well, that’s not vanishingly small.  I have numerous risk factors, including the single biggest predictive risk factor.  As a rough estimate, I would say that, despite the fact that I’m a 55 year old white male with some pertinent family history, I think my risk of death by suicide is significantly higher than my risk of death due to heart attack; it’s probably bigger than my chance of having a heart attack, even a relatively minor one.  That’s not a fixed number, of course.  Many things can change all these relative risks.

Unfortunately, I don’t honestly expect my own risk of suicide to go down significantly, or even at all, as time goes on.  My internal life seems to be steadily growing slightly bleaker, and even blanker, every day, and none of the things that used to bring me comfort or at least engage me seem to be of any interest.  If anything, I feel my likelihood is increasing over time, though maybe it’s staying the same but each day is a new roll of the dice, so over time, the likelihood increases.

Oh, well.  What are you going to do?  I don’t have the wherewithal to change the situation myself; if I did, I wouldn’t be in this situation.  I’ve already tried a great many things.

Anyway, I hope the weather is more pleasant wherever you are, and that you have a very good day.

*The actual rates, while apparently difficult to tease out with great precision, are quite a bit more alarming than my second scenario.  In the UK, for instance, it seems that about 1% of people are autistic, but 11% of suicides are by autistic people.  The rate of suicidal ideation among people with ASD is way higher than that in the general population, starting in childhood (which I can confirm in my case), when the rates of ideation and attempt are reported as high as 25 times that of the general population.  Also, overall, the expected lifespan of autistic people has been measured at about 54 years.  Even given typical statistical variance, I’m about due.

**Since there is not a single confirmed case of spontaneous human combustion, despite what you may have heard, even a multiplier of a hundred may leave one so close to a zero probability that being hit by an asteroid might be a more realistic concern.

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“Ain’t no big surprise”

Well, guess what?  Yep, you got it in one:  I am working today, so I’m writing a blog post.  Not only am I working today, but my coworker, who shares some of my duties, is moving to a new apartment this weekend, so he won’t be in.  We are also supposed to be having people from the “other” office come and work with us, so there will be more to do, but less help, and I’m still just wiped out.

Oh, yeah, and the room air conditioner that I ordered did not arrive on time.  Now, depending on which automatic message one believes, it will arrive sometime today, or it will arrive by June 5th…and if it doesn’t arrive by then, I can then ask for a refund.

As if a refund would be useful!  If I had wanted the money more than I wanted the air conditioner, I wouldn’t have ordered the air conditioner.  I ordered it based on the delivery time range that they posted, which was barely soon enough, and if there had been a similar unit that could be delivered sooner, I would have ordered that.

It’s so frustrating.  This has been a really long couple of weeks, and as with most of what I do, so much of it has gone wrong‒not least of which, of course, was the fact of the kidney stone, which was probably helped along by my attempts to exercise despite the heat and humidity.

I’ve also had a bit of a persistent headache on the left side of my head for the last few days, which doesn’t help improve my mood.  It seems to be sinus related; there’s no clear sign of infection, but my nose is stuffy on that side despite decongestants.  It may also be related to the fact that I tend to clench my teeth fiercely a lot of the time, though I don’t mean to do so.

Because of the short time frame, it’s quite unlikely to be a brain tumor or a growing aneurysm, more’s the pity.

I’ve been following several depression support and suicide awareness accounts on Instagram, in addition to the usual jokey accounts (today is apparently the last day of “Mental Health Awareness Month”).  It’s a bit funny how often they post things that say something like, “Someone is glad that you’re still around.”  I’m never entirely sure that’s true.  I suspect that, if I were not making audible noises (so to speak) most such people would have all but forgotten that I ever existed.

I mean, I’m sure that there are people who are glad that I’m not dead, some in more of an implicit sense, others in a very specific sense.  And that’s very nice, of course, and I would not for a second want to criticize such people.

But what good does that do me*?  They cannot give me a portion of the gladness they have to boost my spirits, and unfortunately, the person who most needs to be glad that I am around is not glad (that’s me by the way).  I am not glad to be alive.  Why would I be?  All I do is spoil the party for others, so to speak, like in the Beatles song.  “There’s nothing for me here, so I will disappear.”

Anyway, sorry, I know this is boring as shit and as pathetic as pathetic can be.  I apologize.  I really wish I had something insightful and/or edifying and/or entertaining and/or at least interesting to say.  But look not for positivity from me.  To paraphrase the ghost of Jacob Marley**, it comes from other regions and is conveyed by other writers to other kinds of readers.

That’s not to imply that, like Scrooge, you who read this are somehow culpable for the fact that I am such a downer and write only gloomy and depressing shit.  That would not merely be unjust, it would be inexcusably rude.  I truly appreciate you, my readers, though I often wonder at your patience and interest.  But to me, like most things I do, my blog feels as though it is a net negative for the world.  Everything about me, except for my children, feels like a net negative for the world.  Just by existing, I make everything around me at least a little bit worse.

Okay, that’s more than enough of that for today.  I’m sorry.  I hope I didn’t make anyone have a bad start to their day or anything.  Please accept my sincere thanks for reading and my strong wishes for you to be healthy and joyful.  And have a good weekend if you can.

*I am deeply sorry if that seems churlish and dismissive or even contemptuous.  It’s not meant to be any of those things.  I respect and appreciate the positive feelings and intentions of those who express such sentiments, and I think those people are truly wonderful.  I merely wish to say that while it’s “nice” to have people out there who are glad you’re alive, that doesn’t actually translate into you, yourself being glad to be alive, that’s all.

**In A Christmas Carol.

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What shall we do now?

Well, it’s Wednesday now, and since I have no appointments for X-rays or anything similar, I am heading on in to the office.  It’s continued to be a hectic time, and today is supposed to be the day on which we finally begin to do business in the new office, though many things have been moved during the day over the last few days.  I would have thought that the uprooting and shifting would have made working more difficult, but we’ve had very big days, especially yesterday.

It’s good I guess, but it’s annoying, because it means I’m very stressed out by more than one thing.

I’m still quite beat, by which I mean I’m so very tired and worn down and exhausted.  I told the boss yesterday that this last week plus had been one of the top five hardest weeks of my life‒and I pointed out the various other horrible weeks I’ve had so I could try to put it in perspective for him‒but I really don’t think he quite got the point.

I think my inability to convey how I feel, or the tendency for it not to show, as well as my own inherent tendency toward a kind of nihilistic stoicism, means that people don’t really know or at least don’t understand when I’m feeling truly horrible.  I’ve said before that this is why the line from Pink Floyd’s Brain Damage resonates with me so much:  “And if the cloudbursts thunder in your ear, you shout and no one seems to hear…”

I don’t even feel I’m at some breaking point anymore; I think I’m already broken, but I’m hobbling along because of inertia, holding the remnants of me together with paperclips and twine and baling wire.

Anyway, I’m exhausted.  I wish I could get back into writing or drawing or creating songs and doing music or studying more science and math, but though I have had passion for all those things at various times, there is only so much one can do to produce creative things in a vacuum, with nearly no feedback or appreciation, before one gives up.

Van Gogh had a similar situation, I guess (not that I am comparing my ability with his) in that he produced many brilliant works of art, but only one was bought by anyone in his lifetime and no one but his sibling appreciated his ability.  And, of course, finally, he shot himself in the torso and died from the wound not long after.  I can sympathize very much, even with his choice to shoot himself in a way that would not be immediately lethal.  It’s both a fear thing‒a lethal shot is scary to do‒and a form of self-punishment and self-hatred‒one doesn’t feel that one deserves an easy death.

I don’t know what I, myself, am going to do.  I’m just too exhausted from my current situation, and from the feeling that I need to use the bathroom 24 hours a day.

Okay, well, that’s enough for today.  I’m very tired, as I said, and it’s only early morning.  But, of course, my sleep is even worse than usual because of the whole bathroom urgency and flank pain thing.  Ah, whataya gonna do?

I hop that what you will do is have a good day.

***

Addendum:  Well, I’m at the office, and even though the Wi-Fi was supposed to be still active this morning in the office, it seems the movers, such as they are, took the router over with them.  My phone’s mobile hotspot function doesn’t get good enough reception here, and so far the public Xfinity Wi-Fi doesn’t seem to have any ability to do adequate data, so I cannot get anything done at the office.

Why did I bother to come in?  Well, of course, that was largely because I couldn’t sleep and there was no air conditioning at the house, but I also like to get a head start on office stuff.  I’ve even finished the last of the series’ of “light novels” with which I was trying to distract myself, so I can’t even count on any reading to help me.

I apparently will not have a closed area in the new office where I will be able to be at least partly cut off from the noise and all.  I wish I had just stayed at the house today, and maybe never left again.  I don’t even have a guitar here anymore, because I gave away my black Strat.  That action was one of those “gesture” things, to be honest, and I was hoping someone would pick up on the point of it, but either they didn’t recognize it, or‒more likely‒they don’t really much care.

I shouldn’t be surprised.  There are very few people for whom it would actually matter if I die.

I’ve finally been able to get the Xfinity thing working a bit, so I should be able to post this.  After that, I don’t know.  There’s just too much for me to deal with right now.  I wish I could just go to sleep and stay that way.  I hate this life.

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It’s Saturday now

And I’m in the office.  I haven’t come to the office this time, of course, I’ve just been here since yesterday, as I noted in my confusing and single-paragraph post yesterday evening.  I slept at the office, on the floor, and it was just as comfortable in many ways as if I had been at the house.  True, I couldn’t shower, but I’ve buzzed my hair down to 1/4 inch after seeing how it looked after I was in the hospital, and so it’s impossible to tell just by looking that I’ve not showered.  I usually have deodorant and other toiletries at the office, but those are already moved to the new office now, so I’m going to need to go over to the convenience store and get some deodorant and mouthwash this morning.

As for the house, well, there’s a reason I don’t refer to it as home.  It’s not a home to me.  I haven’t felt like I have a home since before I went to FSP.  No, it’s just a place I can hide for a while at a time, and not have to interact with anyone, and where it’s just my stuff inside, such as it is.  But I don’t feel at home there, I don’t feel comfortable, it’s just a place I’m existing.  I don’t even have a real chair there, though I have a piano bench and a folding metal chair tucked into a corner.  When I’m at the house, I just recline on a pile of pillows on the futon on the floor.  It’s good for my back in the short term, though after I stay there for a while it tends to backfire*.

Everything in my existence orbits around pain.  I guess it’s no irony that one of the two songs I have had memorized on piano for decades now is the Police’s King of Pain (the other is Eleanor Rigby by the Beatles).  Maybe it’s because I memorized that song that my life took on its current aspect.

I don’t really believe that, of course.  That’s absurd, magical thinking, and there’s no evidence that it’s the way the real world works, except through confirmation bias and the like.

Right now it still hurts to urinate, with spasms up in my right side and flank, which lingers a little even in between.  It’s nothing compared to the acute onset of the issue, but it’s still there.  And my back and hip and leg pains haven’t ceased to exist out of some strange courtesy.

I’m overwhelmed, and not in a good way.  There is too much happening in my head and around me right now, too many stupid little, annoying changes, too many deeply unpleasant surprises, too much chaos and randomness even in the day-to-day routines.  I am overwhelmed.

I used to be a person who could accomplish things, at least partly because I had people around me whom I loved and for whom I wanted to make things good as much as I could.  I cannot do good for myself.  I cannot live for myself.  But I used to be able to do good and make good things and relieve suffering.  I’ve saved people’s lives and even helped ease people’s deaths when it was appropriate.  Some of the most copious thanks I’ve ever received were from the families of patients who had died.  I was told by one family that, before he died, their 96 year old father/grandfather said I was the first doctor he’d had that he felt that he could trust.

Now look at me.  Or rather, don’t look at me.  I’m disgusting to start with, with my teeth that used to be good but have been ravaged by years of pain killers and prison and then just an inability to have the energy to take the very good care of them I used to take.  Also, I’m currently crying, and there’s snot on my face.  I don’t look great at the best of times anymore, and certainly no one is going to want to look at me now.

I’m caught in the pincers of some kind of weird metaphorical tweezer.  I cannot stand the thought of trying to change my situation; the idea of moving, of trying to change jobs, of trying to find something, is literally horrifying–imagine needing to wade through a swimming pool filled with roaches and centipedes and maggots and other larvae, above which soars a nearly-opaque cloud of mosquitoes, all female.

But staying where I am, doing what I’m doing, is just as horrifying, and now there are a bunch of new stressors, not the least of which is my fresh, new pain problem, which hopefully will be temporary, though it isn’t gone yet.  I guess a week is a relatively short time, and maybe I’m expecting too much, but it’s a fucking huge level of discomfort, and I don’t have the mental resources to deal with it, not on top of everything else.  Why I am I continuing to endure my already-existing chronic pain, my anxiety, my depression, all the other things associated with my hitherto undiagnosed ASD, and then now dealing with newly discovered problems?

I’m overwhelmed.  I cannot summon the will to make a change, or even the conviction that I ought to do so, because I cannot really think straight.  I cannot imagine what to do.  I don’t know that there is any way at all to escape, except by dying.  And I am always afraid.

You might think that after having pain every day for decades and having lost basically everything that ever mattered to you and for which you had worked so hard for so long you wouldn’t have any need to be afraid anymore.  What do you have to lose, after all?  But fear is not a rational thing, it’s not the conclusion of a thought process, it’s an emotion, one in which nature has invested heavily, and having pain after pain for a long time, of various kinds, can cause a “learned-helplessness” reaction related to depression, but even then, fear doesn’t go away.  One is always afraid of yet more pain.  One is afraid of facing another day with the same old pain.  One is a afraid that one is going to live a long, long life and never for one day of the rest of it not be in significant pain.  One is afraid that one will also be alone for the rest of that long life, with no comfort and little joy.

I don’t know what’s going on.  I mean, I’m writing this post, of course, that’s going on.  But I don’t know what else.  I’m falling apart, I think.  I’m breaking down.  Like I said yesterday, I can practically smell the melting plastic and circuitry in my mind.

Whatever.  Nothing I do or say matters, nothing I am matters.  I don’t know what I expect to happen because I’ve written about this.  I feel a bit like Frodo crying out for his friends in “Fog on the Barrow Downs” after they’ve been separated, but the only answer I will probably get will be from some foul undead spirits.  There’s no Tom Bombadil out there to come rescue me.  I wish there were.  And I could really use Elrond’s healing power, or even Aragorn’s.

That’s enough.  Go on, go read something else.  No one wants to feel miserable, and that’s how I tend to make people feel, so you should probably find something comical or at least entertaining to explore, and just try to have a good weekend.

*Honestly, no pun intended.  I didn’t even notice it until the editing process.

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A nameless Friday blog post

It’s hard to believe, but something truly obvious didn’t even occur to me until yesterday afternoon as I was getting ready to leave the office.  I was really worn out and tired and grumpy, and I said to my coworker, who was very kindly giving me a ride to the train station, “If I were a sane person in a civilized world, I wouldn’t even have come to work at all this week.”

That’s when I thought: the people at the hospital probably didn’t expect me to go back to work this week.

Meanwhile, this has been one of our busiest weeks in a very long time at the office, and the office is in the process of moving to our new location, and I had to iron out the details of the records from Monday and Tuesday, which were a bit off, and then I had to do the payroll on Wednesday all while having the busiest day of this very busy week so far.

Yesterday was not quite as hectic as Wednesday for me, but on Wednesday I had kind of maxxed the pain med dose so I could get done what I needed to do.  Not so on Thursday.  I want to make sure not to overuse the meds in the short term, since I don’t know when a really bad spasm might happen.  Of course, I’m not taking my usual aspirin either, per recommendation, nor any other go-to NSAIDS, so things are complicated.

Anyway, the meds situation wasn’t what I wanted to discuss.  I just wanted to note how pathological I must be to have not only come right back to work after being discharged from the hospital, but to have applied pressure to get me discharged Tuesday afternoon.  I can’t believe that I even said I would sign out AMA* if I had to do so.

But I am basically on my own; if I don’t work, I don’t eat, so to speak.  Even that is misleading, though, and is not my real reason, which is that I have to be productive or useful to someone, in a way that I accept, or else there is no point to the fact of my continued existence.

I mean, I know no one wants to be around me or to have me around them for fun and pleasure; the copious evidence for that is glaring and even blinding.  But I am capable of being useful in quite a few different ways; even my misautonomy doesn’t force me to deny that I have gifts that can be productive and useful and even sometimes beautiful.

So, if I can’t be useful, well…what’s the use of me?  If I were not at work, what would I be doing but lying around in my one room (plus bathroom) with a malfunctioning AC unit?  

Meanwhile, I still haven’t made my follow-up appointments or any of that.  My sister has offered to help, and I think I’m going to have to take her up on that, though she’ll have to be doing stuff from long distance and second-hand and I still find the process daunting.  It’s really quite pathetic.

And if not being useful is a feeling like being in an intergalactic void, it’s even more horrible to feel like I’m a burden or even an inconvenience to someone else, especially someone who really matters to me.  That’s a failure worthy of fire.

Also, I am tired of being in pain.  Everything in my life centers around pain.  I suppose it should have been obvious for quite a while, but at least since the time I was sent to be a guest at FSP West, pain has been the central fact, the only consistent thing, about my existence.  Now I’ve just added another color, another flavor, another timbre and type of pain to my usual mix.

I suppose one could almost call it refreshing as a change, or one might if it weren’t just absolutely overwhelming at its peak, and none too pleasant when it’s at a lower level.  And while, if one’s pain is in one’s back and legs, it is possible to rest them to some degree, you can’t really rest your urinary tract when it is where the pain is focused.  If you try to drink less, you’ll only make the primary problem worse, but of course, drinking more (hopefully to get the stone to pass) does mean more of the acute discomfort in the meantime.

Why am I doing any of this?  Why am I continuing?  It’s certainly not out of any sense of my personal value.  I’m just a maggot-ridden turd lying by a dirt path in a humid, stagnant, pollen laden drizzle that doesn’t refresh anything or allow anything but mold and fungi and coprophagic organisms to grow.  I’m so tired.  I have no purpose, and I am so tired.

Anyway, this ought to be it for this week.  I don’t think there’s a plan for the office to be open tomorrow.  If it is, by rights I ought not to come in anyway.  But since the alternative is just lying around by myself, and since I’m stupid, and I don’t live in a civilized world, and I am certainly not sane, if they open the office, I will probably be here.  If so, I’ll probably write a blog post.

Until my next post, whenever it is, I truly and sincerely and urgently hope you all have objectively good days and nights and everything else.  If my words have the power to make anything real, that is what I would want.

*Against medical advice.

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The blogger, learning, physic, must all follow this, and come to dust.

Hello and good morning.

It’s Thursday.

I was inclined to make that the whole post today, just, “Hello and good morning.  It’s Thursday.  TTFN.”

I still don’t think I’m going to make it much longer than that.  I don’t have anything new to say.  Everything I have to say has surely already been said here.

Nothing is any better than yesterday, or the day before, or the year before, or the decade before.  I have no reason to expect that anything will be better tomorrow.  It’ll just be another day gone by, so I’ll be a little more used up and fatigued and probably a little more pessimistic.

I’m waiting for the train now.  I expect today to be pretty much as always.  There is nothing to which I look forward.  Music isn’t interesting, whether playing or listening.  I can’t eat foods that give me any kind of even momentary surge of pleasure, because those foods also tend to give me GI problems (and then apparent metabolic problems).

I don’t really even know the full state of my physical health; I haven’t been to see any kind of doctor for several years, maybe almost 10, not since the time when I went to an urgent care because a respiratory infection I had was persisting longer than expected.  They found that I was desatting* a bit, so they told me to go to the ER, where I was admitted.  While I was there, they did an echocardiogram, and supposedly (I never saw the actual echo myself) there had been a slight…I don’t know, a recurrence, a reopening, a relapse of the ASD** that I had that required open heart surgery when I was 18.

I was supposed to follow up on that recent echo, but after my infection was treated, I felt much better, and I didn’t and don’t have insurance.  Honestly, the thought of going through all that shit with my heart again now, almost 40 years after the first ordeal, is not acceptable.  Besides, honestly, there wasn’t and isn’t any reason for me to try to preserve my life and/or health.  I’m disappointed the thing hasn’t caused me any problems so far.

Many days I wish I would just have a heart attack or something, or get a severe infection.  After my little semi-humorous footnote yesterday, I thought about just trying to inject some shall we say less-than-sterile liquid into myself, and I even ordered some syringes from Amazon for that purpose.  If I do still have any kind of irregularity in my heart, that would provide a good nidus for the beginning of an endocarditis.

I may do that.  It’s simple and straightforward, but it could be a very long process.  It’s probably not a very rewarding option.  It’s too slow and too reversible.

I’m so exhausted.  I’m so tired, mentally, physically, and “spiritually”.  I wish I could just go into a field somewhere and collapse and just lie there not moving until the elements took me.  And I feel so tense and angry so much of the time.

Never mind, this is all stupid.  Sorry, again.  I’m sorry that I’m whining so much.  Yeah, yeah, life is hard, the universe is hard, the world is idiotic and no one is in charge or in control of much of anything, but it’s nothing new.  Humans‒at least some of them‒do have the potential to do great and relatively enduring things, but all the other idiots who want to think of themselves as special and important to some divine creator, but who are, ironically, much more akin to chimpanzees and savages than are those who reject superstition, get in the way almost inevitably.

Anyway, enough of this.  Again, I’m sorry.  You’ve been kind and optimistic to read my daily excretions, so here’s a slight break for you.  I hope I won’t write a post tomorrow, but I probably will.

TTFN

*Short for desaturating:  when the percentage oxygenation in the blood drops below normal, healthy levels.

**Atrial Septal Defect in this case, not Autism Spectrum Disorder.  Apparently it wasn’t much more than a patent foramen ovale at this recent stage, but that still shouldn’t be there.  I mean, my heart surgery was done by the guy who literally wrote the textbook on the procedure.  That was in 1988, of course, so things have surely improved, but still.

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Morose, meandering musings of a misautonomous moron

Every time I write a blog post on a Wednesday morning, I feel the urge to include a reference to the Beatles song She’s Leaving Home, as in “Wednesday morning at five o’clock as the day begins…”

There, see, I just did it again.  At least it was self consciously done, not some quote put in as if it were my own words, intended only for those “in the know” to recognize.  I guess that’s a way for me to feel vaguely clever‒and sometimes funny‒while actually just following the often irresistible compulsion to quote shit* at every turn.

In high school, when I was a senior (and maybe when I was a junior?) I was pretty confident in my place as one of the “leaders” of our school orchestra, and I used to go to the orchestra room first thing in the morning before school, usually arriving before the teacher, and then I hung out there (with other orchestra members and friends who arrived a bit later) until time for classes to start.  While there, pretty much every day, I would write a quote from something‒Shakespeare**, Tolkien, Stephen R. Donaldson, Poe, etc.‒on the board.  I even won the “Dusty Cello Award” at our end of the year orchestra party because of it.

I’ve always had that habit of quoting books and movies and plays and shows and so on, and even doing the voices of people when I could.

I think reading fiction in particular was very good for helping me to understand what goes on in other people’s minds, at least in principle.  But I also just liked being able to go to those other worlds and other lives.  It’s better in general than watching TV or movies, though the latter are easier and also easier to enjoy with other people, if you have other people with whom to enjoy them.

Anyway, that’s neither here nor there.  My past and my thoughts about it are of no moment to anyone but me, and even I find them boring.  It’s just that they’re all I really have.

I’ve tried to interact with people to some degree online, but that just gets me weird feedback, like getting almost 3,000 “likes” in less than 24 hours for pointing out in a comment that the biblical Jesus would not approve of a particular, supposedly religion-based, exclusion reported in a thread about a shopkeeper toward a trans woman (ironic for a nonbeliever to be pointing out Jesus’s very clear attitudes, but I am one who remembers characters and quotes).

On the other hand, when I noted yesterday on the same site that the office where I work was 3.4 miles from the nearest “beach” (and a fishing pier) and I thought it might be good to walk down to the shore, kick off my shoes and socks, and just start swimming east into the Atlantic and not come back (pointing out that it would leave no need for cleanup, and it wouldn’t mess up anyone’s day, or anything of that sort) I got 3 likes (after quite a while) and only one comment by a person saying she doesn’t like to dwell on such thoughts.

This is, supposedly, Mental Health Awareness month, but I don’t know what good such a thing does, especially if such is the response to someone expressing suicidal ideation.  I’m aware of mental health in general, but it’s been a long time since I had any personal experience of mental health (if I ever have).  It’s been at least 13 years since I’ve had even moments of mental pseudo-health.  That was the last time I saw my kids in person, for one afternoon.

I’ve only recently realized that it’s now been a longer time since I saw my children than how old they were when I last saw them.  So, I’ve missed more than half of their lives now, and that fraction is only going to get bigger.

What would I possibly know about mental health?

Physical health is not my biggest attribute either (not many people had open-heart surgery at age 18).  But I know it gets very boring for people to hear about‒for instance‒the fact that I feel right now as if my entire right side from the lower ribs on down to the ball of my foot feels as though it’s filled with molten lead, which is quite painful, in case you were wondering.  But that’s always the way it is, for much longer than 13 years (more than 20, actually) and though it waxes and wanes and shifts locations, pain never fully goes away while I’m conscious (and probably contributes to the worsening of my insomnia).

Anyway, I know, Waah, waah, waah, shut the fuck up, Robert, no one wants to hear all this shit*** over and over again!  It’s tiresome to face nothing but complaints.  I’m sorry.  I’m very, very sorry.  I really am.  To everybody.

I really should just try that swim.  There isn’t much to prevent it.  I’m not particularly afraid of drowning (other than in an instinctive sense) though I do have misgivings about sharks and other sea creatures.  That’s probably silly, since, even in shark infested waters, statistically people are far more likely to drown than to be attacked by a shark.

I have to do something, or at least to have something done to me.  I don’t have the will or the wherewithal to take action to save myself in any way (and wouldn’t know where to start if I could) but I don’t have the strength to keep living, not for much longer.  And I don’t have any good reason to keep living.

But that same problem with “executive function” or whatever it is makes it hard for me to take action to kill myself.  So, for the moment, I just hurt myself to try to distract myself from other pain and to punish myself for being such a lame and shitty person, but weirdly, I have a hard time making such things hurt very much anymore.  Maybe I’ve always got too much pain medication in me, but I just don’t realize it because it doesn’t do all that much for my back and joint pains.  It’s weird.

Then again, I’m weird, so I guess I shouldn’t be surprised.  Like the song says, “I’m a creep.  I’m a weirdo.  What the hell am I doing here?  I don’t belong here.”

I don’t belong here.

*This is the nonjudgmental version of the word “shit”.  It’s more or less synonymous with “stuff” but it flows better (so to speak).  I don’t mean to imply that the song to which I refer is in any way shit.  It’s one of the most beautiful songs I know.

**Yes, I loved Shakespeare even back then.

***Here, the use of “shit” is much more in the derogatory, excrement-related vein.  Though if someone had excrement in their veins, they would be in big trouble, because that excrement would be carried to the lungs and then heart and could cause horrible endocarditis and pneumonias and so on.

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Six songs to try to express a little bit of how I am doing

I don’t have the energy or will or “spoons” to write much today.  I’m just about ready to tap out.  My “executive function” is so low that I think the only thing I’m capable of executing is myself, and even that is difficult.  I certainly don’t have the capacity to act to save myself.  I keep trying to express just how fucking horrible I am doing, but I don’t think it’s coming across.  I guess it doesn’t matter much.

Anyway, today I figure I’ll embed some songs I’ve recorded myself performing that do something to convey my difficulties.  Some are originals, some are covers.  I don’t know if they will work, either.

It doesn’t really matter.  I don’t have the will to take any action about anything.  I can only do what I do every day, automatically, and I am getting closer and closer to being unable to do even that.  I think I’m pretty nearly completely out of gas, and I am basically only a burden to the world.  It doesn’t help that we’re moving offices this month, which I hate, but that’s just a little insult to add to the injuries that are leading to the end of things.

Anyway, here are the songs.

It’s not a perfect expression or set of expressions, but it’s about all I’m capable of, even after a weekend “off”.  It doesn’t matter.  I’ve basically given up.  I’m so tired already and it’s just Monday morning.

I hope you each have a great day, individually, and that you all have a great day, collectively.

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Therefore the Moon, the governess of blogs, pale in her anger washes all the air

Hello and good morning.  It’s Thursday, the first of May*, the beginning of yet another stupid month.  They just keep coming, on and on and on, so irritatingly relentless that I find myself wishing for the elimination of the Moon and the destabilization of the Earth’s rotation and orbit just to break the tedium.

I know that would inconvenience a great many other people, though, so I’m not going to try to make it happen.  To be fair, it would be much “easier” to alter the Earth’s rotation than to shift the Moon.  A decent-sized asteroid collision at the right angle could alter both the rate of Earth’s rotation and its angle to the ecliptic.

Of course, such an impact would have devastating consequences for almost everything and everyone on the planet’s surface.  So that’s a win-win scenario!

I’m kidding.  But I often fantasize about wiping out all life as we know it, because none of it is truly benign and it’s all futile and will always be marked broadly by fear and pain and other suffering, because all those things are evolutionarily vital (in the literal sense).  I shouldn’t choose that for other people, though, so I probably would never do such a thing even if I could.

Thinking back to earlier, though, I’ve been pondering the question of just how one would move the Moon in its orbit, and I thought about the reflectors up there in the old Apollo landing sites, still used (last I checked, anyway) to measure the distance to the moon with great precision.

There have long been discussions about how to alter the course of an asteroid that looked to be prone to intercept the Earth.  One way might be to vaporize a portion of the asteroid, causing its “outgassing” to act almost as a rocket propellant, and by Newton’s third law (or, equally valid, by the law of conservation of momentum) the asteroid would shift its trajectory in the direction away from the artificial outgassing.

Well, what if one were to train powerful lasers at one site on the surface of the Moon**?   The fact that the moon is tidally locked with Earth means it’s constantly showing the same face to us, so one could keep focusing on the same portion of the surface.  One could study the albedo and absorption characteristics of the surface of the Moon to try to pick the best wavelength for causing “outgassing” of that surface, and that outgassing would propel the moon away.

It would be a slow process, since the Moon is big, and shifting its orbit significantly would require the delivery of quite a bit of energy, but that’s okay.  One could set up a single laser (or pair of them on opposite sides of the Earth, or more if one desired faster effects) perhaps solar powered and using ordinary telescope-style tracking equipment and software, to train the lasers always on the same point on the surface of the moon.

Gradually, the Moon would shift away from Earth (you’d need to keep adjusting your aim a bit), more quickly than it currently is, and eventually:  lunar liberation!

Of course, even given the abysmal state of science on Earth (and particularly in the US right now), people would eventually notice the Moon moving, and they might even notice the “outgassing”.  But a lot could be done before then.

If one wanted to have a much quicker effect, or rather, a more instantaneous effect, one could develop a large depot of antimatter, which we know how to make in particle accelerators.  Storing antimatter is challenging, of course; it must be kept within electromagnetic fields in high vacuum, since it will annihilate if it encounters its matter counterpart.

Still, with enough time and patience and care (and money), one could gradually accumulate a large stockpile of antiprotons and positrons, perhaps stored adjacent to each other so their mutual electrical attraction makes containment slightly easier.  Then, when one had gathered enough, one could launch it toward the moon in a fairly standard rocket‒it wouldn’t need to be manned, and it certainly wouldn’t need to return to Earth.

Release your tons (I would guess) of antimatter onto the surface of the Moon, perhaps at the center of “mass” of its face that points toward Earth, and watch the fireworks!  There would be complete annihilation of matter-antimatter in a release of energy far more extreme than any mere nuclear weapons could produce.  Heck, if you wanted to bypass the whole Moon process, you could just accumulate your antimatter here on Earth over time, maybe near some damage-multiplier like the ice caps or near a super volcano or something, and release the containment when you’re ready.

In a typical nuclear explosion, less than one percent of the mass involved in the reaction is “converted to energy”***.  In an anti-matter reaction, ALL of it would be converted.  Imagine releasing hundreds of times more energy per kilogram than the most powerful nuclear weapons.

Of course, antimatter is absurdly expensive to make, but economies of scale might help that.  It’s not as though one would be expecting a profit‒unless one went the Bond villain route and used one’s anti-matter bomb to hold the Earth for ransom, which is a thought.

That’s enough of that madness for now.

Speaking of madness, today begins “Mental Health Awareness Month”.  I would say that I’m already aware of mental health in a general sense, I just don’t have much personal familiarity with it.  Mental illness, mental dysfunction, mental dysregulation, these are things with which I am more personally acquainted.  I’m only too aware of them.  Physical health falls into a similar position.

All right, well, before I discuss more ideas about how to alter or eliminate all life as we know it‒I’ve many such ideas, I’m afraid‒I should draw to a close for the day.  In case you can’t tell, I’m not right in the head, am I?  So this is a sort of appropriate month for me, especially coming as it does right after Autism Awareness Month.  Batman only knows what will happen next.

TTFN

*Also known as May Day.  I wonder how that came to be used as a distress call, as in, “Mayday, mayday, we are going down!”

**Alternatively, one could, in principle, use a very large array of adjustable mirrors on Earth, and they could be shifted to reflect sunlight and focus the reflections on one spot on the moon, but to get a strong effect would require a worldwide collaboration or at least acceptance of these mirrors.  It’s hard to see that happening.

***I used “scare” quotes because technically it’s all energy to begin with, it’s just changing form.