health

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True hope is swift, and blogs with swallow’s wings: kings it makes gods and meaner creatures kings

Hello and good morning.  It’s Thursday, and against popular demand (or at least orthogonal to it) I am writing another blog post.  I don’t know how you feel about that, but you’re reading it, so I guess you can’t complain too much.

I had a rough day again yesterday, pain-wise.  I basically took everything that was safe to take, and then a bit more, but it did not do a great job of getting the pain under control.  However, I did take delivery of my latest attempt at lifestyle change:  a new, folding bicycle, which is quite a lot smaller (and has a smaller wheel base) than my other one.  It’s also lighter, and so it is easier to transport, and starting this afternoon, I mean to ride it from and to the train in the morning and evening‒or, well, in the evening and morning, to keep the order consistent.

I tried it for a little ride-around in the afternoon, and while the smaller wheels make it feel slightly less stable (thanks to a smaller moment of inertia, proportional to the mass times the square of the radius of rotation, if memory serves), it’s still comfortable, and it is also easier to get on for me, since I can step through it rather than having to raise my stupid, stiff old legs and hip.

Hopefully, it will help me get around faster and get stronger/healthier again.  Even my little test ride yesterday seemed to loosen my back up a bit, which was a bonus.  I think the lower-impact movement of a bicycle is much easier on my joints* than, say, running, which I’ve otherwise always really liked.  It’s also just faster to get around on a bike than by walking, but you don’t completely lose out on the experience of being in the midst of the places through which you are traveling.

So, yeah, that’s my reason for guarded optimism today.  I have a hard time being optimistic even at the best of times, though.  It feels like I’m setting myself up to fall into a trap.

That reminds me, I rather like something I heard David Frum say recently.  I can’t reproduce his exact words at the moment, but he basically said he tries to follow the guideline:  think like a pessimist but act like an optimist.  Or,  as Mel Brooks put it in the theme song** for his early movie The Twelve Chairs, “Hope for the best, expect the worst”.

In some ways, I feel that’s almost become my default setting, because when I’m at my current clearest state of headedness, I am definitely depressive and gloomy and neither expect nor feel that I deserve anything good.  But I still keep moving forward (well, if you’re moving at all, then “forward” can be defined as just going in the direction in which you are, in fact, going) and trying new things.

With respect to everything else, well, because my pain flare has been so distracting this week, I haven’t done any music of any kind (even listening, really) nor have I written any fiction.  I also haven’t worked on any lyrics for a song taking off from the word “humility”.  Hopefully, if I can feel better from riding the new bike, it will help me have more energy to do things.  Of course, it will be physically taxing at first, at least a little bit, but that’s okay.

As for anything else, well, I still occasionally toy with the notion of adding a Patreon account or something to this blog, just to see if it does anything at all.  But one is expected to give perks to one’s patrons, and I’m not sure what I have to offer.  Of course, I could write special posts that are only available to patrons, but I don’t know how exciting that would be.

Maybe I could ask patrons to suggest topics or subjects for blog posts, or do some manner of “ask me anything” posts, open to patrons only.  I don’t really know what on Earth people on Patreon could possibly want to learn from or about me, but maybe there would be interest.  I don’t know what else might entice someone.  If any of you out there have any ideas, I would love to hear them.

See what I mean by “think like a pessimist, act like an optimist”?  It’s hard for me to imagine anyone wanting to pay to read my writing, since I barely want to read my own stuff for free***.  And yet, I would consider trying to start making money from even my non-fiction writing, because what have I got to lose by trying that, other than an expenditure of time and energy?

Well, we’ll see what happens.  I would greatly welcome your input on such things, O Reader of My Blog.  In the meantime, please have a good day.

TTFN

*As long as I can avoid repeating any of my two prior major bike accidents, which each did harm to one of my shoulder joints‒first the left then the right, first a connective tissue injury, then a fracture.

**Which, yes, he wrote himself, both the song and the movie.

***Okay, that’s a lie.  I tend to enjoy rereading my own fiction quite a bit.  Is that narcissistic?  If it is, I’m a very peculiar kind of self-hating narcissist:  I think I’m the most annoying, disgusting being this side of a palmetto bug, and yet I think my stories (and my songs) are pretty good, and I enjoy them even if no one else does.

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I have no title today (other than “doctor”)

I don’t think I’ll probably write very much today‒though I’ve been wrong about that many times before, so I guess I’ll have to wait and see.  I feel particularly tired already this morning, but that didn’t let me sleep uninterrupted for more than a few hours.  So far today I’m not in as much pain as I was the previous two days, but then again, on neither of those two days was my pain as prominent in the morning as it became during the day, so I cannot be too optimistic.

I am, of course, trying all my various adjustments and interventions and so on to try to improve things, and they have limited and temporary success in general.  But I will keep trying, until the day that I finally give up and/or die.  I suppose, of course, that I might even get better.  It’s physically possible.  But I’m not going to hold my breath, because I’ve tried many, many things to improve my pain, and they have not had much success.

With that in mind, unless you have something truly esoteric that you think I, a physician with a broadly curious mind and with chronic pain, will not have encountered or considered, I don’t encourage recommending or suggesting pain treatments to me.  You can of course, and I truly appreciate the sentiments involved in such offers, but they are often frustrating.  Also, when people recommend things that I know are just woo, it’s additionally frustrating to have to remind myself not to respond impolitely.  Good intentions aren’t enough to make good things actually happen, but they are worth taking into consideration and appreciating.  You shouldn’t be rude to people who are trying to help, even if they aren’t succeeding.

Anyway, my new thing that I mentioned yesterday did not arrive; it’s supposed to arrive today, now, having been delayed.  I won’t get into it yet, but I maintain my stupid pseudo-optimism, which I cannot explain nor justify, except to say that I’m stubborn.  But I have my limits.

It’s been a string of rather frustrating days, lately, and though none of the frustrations are catastrophic, in some ways that makes them more pernicious.  With major setbacks, one is allowed and expected to need a real recovery process, a bit of time, a bit of rest, or maybe just some sympathy.  One gets a break.  With more minor setbacks, one gets no respite, but they can nonetheless pile up, especially if one has chronic issues already.  But one will gain little ease from others with respect to them.

For instance, when I mentioned to a coworker that I was having a lot of frustrating things happen over the past several days, I got a reply that everyone was having a rough time‒based on what data, I don’t know.  His rough times apparently have to do with taking his daughter to the doctor for a thankfully not too severe issue and his wife being sick and so on.  I would give almost anything possible to have such “problems” again, or just to be able to be with my children in a significant way again.

Anyway, I was not terribly pleased, and in response to his statement about the claimed recent local preponderance of irritations, I said, “Well, that makes everything all right, then, doesn’t it?”

It wasn’t the cleverest of replies, but at least I was channeling the Toymaker a bit.

Anyway, I’m sure few or none of you readers are particularly sympathetic, either.  Why would you be?  I’m no one and nothing, just a weird little “voice” on the internet/web.  I’m a wisp of marsh gas, a flicker of movement in the corner of your vision, an occasionally annoying afterthought, like the water that gets on your shirt at the waist from doing the dishes, but that you don’t notice until you’re done.  I’m a tiny little grain of rock that gets on the bottom of your foot inside your shoe; it’s not quite bad enough to force you to stop, take off your shoe, and clear it out, but it’s there all the while, and you end up with a blister and other aches at the end of the day, from changing the way you walk.

So, yeah, that’s me.  That’s how I feel today.  I know, it doesn’t matter to anyone, but there it is.  Maybe today will be better than yesterday.

I wish I could say it couldn’t be worse, but that’s never true.  Reality has no lowest level.  Things can always deteriorate.

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Another eddy in the corrosive, chaotic cloud exuded by my mind

Well, it’s just another moronic Monday (with apologies to the Bangles).  I did not do any work on Native Alien this weekend.  To be fair, it’s basically complete with respect to chords and of course words and melody‒though I don’t preclude any modest changes along the way, and certainly I have not arranged it.  But I basically didn’t do anything useful or productive over the weekend, I just vegetated by myself.

I intended to do some biking; I went so far as to pump the tires up to their target pressure and everything.  But as often happens, I got anxious over getting on the bike to ride*.  I did some walking, at least; not very much, but at least I took some precautions that have mostly spared my knees and my ankle.

I mean to do a decent walk this evening and get that bit more of exercise in.  I’m trying to get healthier, but it’s hard to motivate myself when I don’t even want me to be healthy.  I don’t like myself.  Almost everything about me is frustrating or even infuriating.

But if walking can help me be slightly healthier, it may make me less annoying, in that I hopefully will feel less pain and irritation.  So, I don’t really care about my own well-being to any significant degree, but I want this stupid body to be as minimally uncomfortable as I can make it.

I’m supposed to start working this week on the lyrics to my next song, with the takeoff word “humility” this time.  I already have a few ideas, though I don’t know if they’ll be what shows up finally.  I also intend to do a quick, low quality “demo” of Native Alien that I may share here on this blog.  That way people can hear the tune I have in mind for it.

I didn’t do any Brilliant stuff over the weekend, but that’s okay.  I do that in much the same way that I have my physics and calculus text books and so on:  to keep alive the pipe dream of actually getting to a level of expertise in the various subjects to be able to do something useful.  But I don’t think I really ever will do those things.

Not that there’s anything wrong with learning just for the sake of understanding the world better.  Indeed, it’s a kind of hunger, a wish to take more and more of the universe into my mind, and thereby to “own” more of it, in the only sense that really works.  But it seems unlikely that I will ever find the time and/or the energy to achieve the level of expertise I would like to achieve in those various subjects.

Plus, honestly, my interest in one subject is constantly being derailed by something else, though it happens over relatively long time-scales.  That’s one of the reasons it was good for me to be enrolled in programmed curricula; I don’t have to worry as much about being distracted because I need to do certain things in a certain order at certain times.  Not that I can’t stay focused on something in which I’m interested; I can do that to a borderline psychotic level sometimes.  But I can’t readily choose which interest is going to grab me at a given moment.

Of course, most people don’t do what they want to do most of the time.  We all do what we must‒or else we die young, or suffer, or what have you; sometimes more than one bad outcome ensues.  Of course, even when we do what we must‒by whatever measure you want to determine that “mustness”‒we often accrue negative consequences.

I’ve tried very hard to do what I “must” throughout my life, for as long as I can remember.  I tried to live a clean life and to be productive and prosperous, to be useful to people who mattered to me and to innocent strangers and all that stuff.  I never knowingly or willingly, let alone willfully, committed crimes (other than minor speeding and so on), but I still ended up spending three years incarcerated and lost my medical license and much of what was left of my connection with my children, a good deal of which had already been hammered by my chronic pain problem and all the “fun” it gave me.

Also, of course, it turns out that all along I had ASD (of two varieties, the first having been fixed by open-heart surgery, and there may be some problem with that discovered a few years ago, but I’m not bothering looking into that, as there would be little point).  That doesn’t tend to have made things easier, I guess, though I have no direct point of comparison, since I have always been I.

I don’t know what point I’m trying to make, which probably means I’m not trying to make any point, I’m just meandering in my mind and sharing the dubious results with you, o injudicious reader.  Hopefully this isn’t too much of a bummer with which to start your work week.

But, hey, I’m not making you read this, am I?  If anything, I would advise against it, as I would advise pretty much anyone against wasting any time, effort, emotional investment, what have you, in me.  I’m a black cloud.  In the final analysis, I bring nothing but corrosion and discomfort and misery to those who spend too much time in my vicinity, literally or figuratively.

You should try to find something more pleasant if you can.

*I’ve only recently come to the (admittedly fairly obvious) conclusion that a big part of my anxiety about biking is because I have had at least two accidents on bicycles that hurt my shoulders‒a connective/soft tissue injury on the left that still causes my trouble, and a fractured scapula on the right (which healed very completely, as bones tend to do).

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Lost then found thoughts about lost connections

While I was getting ready to go this morning, I thought about writing this blog post.  I thought about my usual starting point of saying something like, “Well, it’s Wednesday morning again,” or some other such inanity.  But then, as I was thinking about that, another, more interesting beginning and an actual, rather interesting, topic occurred to me.

Then, by the time I got ready to start writing—i.e., now—I had completely forgotten what I meant to write.

That’s terribly frustrating, but it is par for the course.

Oh, wait!  Maybe what I was going to write was about my realization regarding the effects of having a very uncomfortable crisis, but one that is inherently finite*.  It’s probably pretty obvious to you that what made me think of this was my recent adventure with a kidney stone.

Of course, while it was happening, it drowned out everything else, especially in the acute stages.  If that had been something without an endpoint, and if there were not sufficient medication to control the pain, then death would have been the only feasible alternative.  Even later, with the stent in place and the literal, constant, burning feeling that I needed to urinate for two weeks, things were pretty harsh.  But though it did not truly drown out my depression, and it was thoroughly exhausting, it did rather overshadow much of my chronic pain.

The day the stent was taken out I felt a fair amount of relief, of course.  But before long my usual existence asserted itself, with all its emptiness, and of course, with all its chronic pain.  And I remembered that, really, I have nothing going on in my life at all, nothing to which I look forward in any kind of long-term sense, and I have no further clue about or hope for my future.

It’s a bit reminiscent, on a shorter time scale, of what happened when I was a “guest” of the Florida Department of Corrections.  Though I was/am innocent of the charges that were created against me, I took a plea bargain for three years (toward which time served applied) because it was tolerably short and I didn’t want to risk the possibility of the much longer sentence with which the prosecution threatened to try to get, risking the outcome on the potential of a jury of my peers to see past my (apparently) not terribly endearing personality and the simple fact that I was a doctor and thus, to those who might be in a typical jury, a generally hated “elite”**.

I think it was the best available choice at the time.  And while I was “up the road” I was able to console myself with looking forward to seeing my children again once I got out—and to see them before they were adults, which would not have been the case otherwise—and that gave me the optimism to write first Mark Red and then The Chasm and the Collision and then Paradox City while I was at FSP West.

But then, of course, once I got out, it turned out that my kids didn’t really want the discombobulation of me having visitation or anything of that sort.  While I was heartbroken, I didn’t feel that I had a right forcibly to disrupt their lives when I had already fucked everything up, first with my personal health problems, then with my misguided attempts to help other people with chronic pain that led me to be arrested.

So, I bit the bullet and kept on writing at least, on my own, though I think my stories grew steadily bleaker and darker over time.  And I learned to play guitar and wrote and recorded a few songs, and did some covers and everything.  But I still didn’t see my kids, and haven’t even communicated with my son other than to receive his email stating that he didn’t really want to have a relationship with me (“right now”).

At least I got to see my youngest when I was visited in the hospital with my kidney stone.  That was a gift that was well worth even that much pain.  But now I’m back to my nosferatu existence, and like Vermithrax***, though I don’t feel pain as severe as the kidney stone, I still feel constant pain.

There may be people who can have chronic pain without getting depressed about it, and indeed, without losing their zest for life, but I fear I’m only left with the squeezed dry pulp of mine.  It seems to be just the way I’m built neurologically.

I suspect that most people who keep their spirits up despite chronic pain and disability do so because they are surrounded by a local support system of some sort****, and they probably do better at connecting with and getting along with other people than I do.

I’ve only ever really been close to specific, core groups of people, and with ones nearby, that I saw nearly every day.  I’ve never been good at connecting over long distances, and I have a hard time even picturing people when they’re far away.  I mean, I can “picture” them in the sense that I know what they look like, and I will be able to interact with them if and when I see them, but I cannot in any intuitive sense “model” their existence elsewhere.  I cannot really get a feel for what they might be doing and certainly not for what they might be thinking.

When even the people I love are far away from me, they really exist more as concepts than as people whose reality I can feel.  They are missing in a bleak and rather horrible way.  I feel terrible about that fact, and I hope it doesn’t come across as insulting—though it has probably hurt the feelings of people about whom I care on more than one occasion—but it seems to be just the way my brain works.  It’s also probably related to the fact that I never have for an instant imagined wanting to be someone other than myself, even though I hate myself; I just cannot even conceive of what that would mean, let alone wish for it.

Oh well, whatever, never mind.  I’m back on the train, yeah, and here I go again, on my own…alone again, naturally.

(I do like to quote things, don’t I?)

I hope you have a good day.

*Of course, as far as we can tell, pretty much everything is inherently finite, but some things are much more constrained and contained in time than others.

**This is based on what my attorney, and my attorney’s supervisor, said to me.  I don’t think they were trying to be unkind, and though their judgement was and is fallible, it was likely better than mine would have been.

***I know, I’m mixing fantasy metaphors and similes.  That’s okay; I like them.

****And most of them are probably not “ex-cons”.

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That small model of the barren earth which serves as paste and cover to our blogs

Hello and good morning.

Well, I forgot to bring my mini laptop computer back to the house with me last night, so I am writing this post on my smartphone.  At least that should tend to keep the post brief, I guess.

It feels a bit weird not to be discussing my kidney stone, doesn’t it?  Oh, wait, I guess I just brought it up, so to speak, didn’t I?  Although, you don’t want to bring up a kidney stone in any literal way, of course.  But it does seem that mine must have passed, since the symptoms are almost completely resolved.  It feels weird, in a way, to be able to go a long time between trips to the restroom!

There’s still pretty much nothing else going on in my personal news.  No creative endeavors are underway at all.  I thought about asking my boss if he could bring my black Strat back, but I haven’t felt much other than chagrin at the thought.  I imagine it sitting idle by my desk, mocking me with my apparent inability to do anything at all engaging or creative.

I don’t know what to do with what’s left of my life, if anything.  Why would I try to achieve anything of consequence when humans are, overall, so stupidly unable to recognize almost anything sensible about the world and their place in it, such as it is?  They are so small and provincial and tribal‒though perhaps it’s hypocritical of me to characterize them as such when I am expressing general misanthrope toward them, which is a sort of tribalism/xenophobia/prejudice in and of itself.

Still, I wouldn’t say that all human beings are any one thing other than human beings, and that’s just a tautology.  I don’t like to generalize about 8+ billion beings, except in the obvious, trivial ways.  Though humans are, overall, far more alike than they are unalike, there is nevertheless tremendous variation in their specifics*.  No two humans who have ever lived have been exactly the same; even identical twins have different development and local environments that make them diverge, at first subtly, but with growing potential difference, rather like the progression of a chaotic system.

Two first-degree relatives can diverge more, of course, or at least they are more prone to do so.  And two “unrelated”** humans can diverge still more.  Nevertheless, the phase space through which their trajectories may wander, while functionally limitless in certain dimensions, is nevertheless a tiny sliver of the phase space of all mammals, or of all vertebrates, or of all animals, or of all eukaryotes, or of all terrestrial life.  And we don’t even know what other possibilities may be available.

I guess my overall point is that I do not feel like a part of this species, or even of this biosphere.  I feel other.  I do not feel a sense of connection to the people or creatures around me, not in any deep and persistent way.  Maybe I used to feel that; I can’t recall right now.  Maybe I’ve just degenerated over time.

Oh, well.  I guess for the moment I will go through the motions as I have been and try to see if it gets easier.  I don’t expect it will, but I guess it’s technically possible.

TTFN

*Not in the biological sense of the word, though that ends up being a nice coincidence.

**I put the “scare” quotes around the word because of course all humans are related, and not in some absurd, Adam and Eve mythological way.  Indeed, all life on Earth is related‒yes, even octopuses.  It’s very unlikely that a life form that didn’t arise on Earth would be able to digest any form of sustenance here, because biological material, and the enzymes that break it down, are highly specific in their characteristics and interactions***.

***That’s why I currently inhabit this cumbersome, irritating body, despite all its failings****.

****I don’t really think that I’m an extraterrestrial consciousness trapped in a human body, of course.  That’s just a metaphorical way to express how I feel*****.

*****Or is it?

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A hot and muggy morning blog post*

Okay, well, it’s Wednesday morning, and I didn’t write a blog post yesterday.  I didn’t go to work yesterday, either, because yesterday was my appointment to get the stent taken out of my right ureterovesical junction—you can look that up in case you don’t already know to what I refer.  In any case, my thought process was that, since to get to my appointment on time from the office would have taken most of two hours, I would’ve had to leave work very shortly after it started, and I was not feeling well at all on Monday, nor on Tuesday.

Now, I am pleased to report, the stent came out without much trouble, though it was terribly uncomfortable.  Nevertheless, it is a true relief to have it gone.  Now, without the access “thread” from the stent hanging out, I can actually not feel like I have to use the bathroom constantly.  That’s a tremendous relief.

The urologist recommended that I drink lots of liquid every day from now on, and when I suggested “At least three liters?” he shook his head and pointed up with his thumb The Accountant style, and told me “Four or five at least”.

I’m not going to resist that advice, of course.  I already live in south Florida, and the heat and humidity are ridiculous.  I probably need to drink quite a bit more than even that if I can; the threat of recurrent kidney stones is a powerful one.  What’s worse, my room’s air conditioner is on the fritz, and it has been for some time.  I looked this morning at a little digital thermometer that I have and that I had forgotten for a while, and the temperature in my room was 89.5 degrees Fahrenheit.  This was at four in the morning.

Well, I already have a new, portable air conditioning unit on the way, which should arrive no later than Friday.  I look forward to it because, although I have quite a good and powerful floor fan, that leaves me with more of a tendency to dehydrate because it cools by evaporation.

I know, all this is rather boring.  I apologize.  I never told anyone I have an exciting or interesting life, though it carries its share of intense drama and angst, I guess.  Still, I can write about much more interesting things than would ever happen to me, and I can even give people happy endings to their stories, which is something that is almost certainly not going to happen to me.

Oh, I forgot to mention, I am writing this blog post on my mini laptop computer, as I suggested I might on Monday (I think I suggested it then, but I’m not going to check to be sure—I’ll have put a link to it, so anyone out there who so desires can go check on my behalf).  It’s been just over a month since the last time I wrote on the laptop computer.  It is a pleasant change to be able to write so fluidly, and in a way that feels much more natural and easier.

That being said, I don’t really have much about which to write other than my recent medical issues.  I continue not to write fiction, and I continue not to play music, let alone to compose it, and I continue not to draw or paint, and I haven’t been reading anything educational at all, whether about physics or mathematics or neuroscience or biology more generally.

Maybe I should get Richard Dawkins’s recent work about the genetic book of the dead.  His stuff is usually pretty gripping, and I like biology.  It’s harder to find physics books that I want to read, because much of the popular writing about physics is stuff that I already know, and about which I know more than is usually discussed in popular books.

I guess that’s just the way it goes.  The world wasn’t built for any of us or for all of us.  It just happened, as did our so-called civilization.  That doesn’t mean it’s not worth trying to make it a better situation for as many of us as we can and to try to avoid committing injustice to others.  But that requires reflection and calm assessment, and humans in general are not strongly disposed to such things.

We can only try, I suppose.  Meanwhile, at least try to have a good day.

*By which I mean that the morning is hot and muggy, not that the blog post is hot and muggy.  What would that even mean?

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The wine of life is drawn, and the mere lees is left this vault to blog of.

Hello and good morning 

It’s Thursday, the day of the week with which DentArthurDent always had so much trouble, and also the day of my prior once-weekly blog posts.  So, you know…welcome back if you’re returning, and welcome if it’s your first time.

We started working at the new office during the day yesterday.  It’s smaller than the previous one, but that’s okay, though I need to figure out where I can lock myself away to give myself a sensory break and to rest my back during the day when I need to do so.  It’s also going to be somewhat more difficult to have a restful lunch, if other people are making noise.

Still, the area around the office is nice, relatively speaking.  It’s much quieter and more tree-lined than our previous place.  There are even some reasonably nice apartment buildings across and down the way.  I can’t help but fantasize about living in one of them and just rolling out of bed to walk across the street in the morning.

Of course, the odds of that ever happening are extremely low.  I don’t think I could pass a background check for an ordinary apartment or whatever because of my record.  So, here I am, where I am, and it’s where I’m likely to be for some time, possibly for the duration.

Also of course, I’m still having significant urinary discomfort and urgency, but the spasm in my flank appears to be dying down, though I fervently hope that I won’t end up being mistaken about that.

I got the reading on my abdominal X-ray through the hospital app, but it seems a bit uncertain in its findings.  It claims that there is not very good visualization, so I don’t know if the stone is there or not. I would give slightly greater odds that it has passed than that it is still there, since one of the possibilities if it were there‒that it be clearly visualized in the ureter‒is definitely not the case.  It would be better, though, if everything were visualized with crystal clarity and there was still no trace of the stone.

I am still very, very tired.  As I think I mentioned yesterday, I don’t think I’ve had more than about an hour of uninterrupted sleep at a time since this whole kidney stone thing began.  I’m not counting general anesthesia, of course, because that’s not actually restful or restorative sleep.  Nevertheless, if someone offered to put me under until this situation is resolved, I would probably take them up on it.  Yes, there is always some risk associated with general anesthesia, but I’m not worried about that; if you die while under anesthesia, it’s just a situation where you go painlessly unconscious and then…stay that way.

It doesn’t sound like a horrible way to die.

I wish I wanted to live, but a fear of death is not the same as a love of life, and will not give you a reason to want to stay alive.

Of course, right now I’m exhausted and miserable, even for my pathetic self, so my outlook is tainted.  I suppose such outlooks are always tainted, but this seems more than usual even for me.

I would love to love my life and myself.  I even went a long time trying to say that I did, as a sort of mantra, a form of autosuggestion, but gradually I got to where I actually could not continue even saying it in my head.  I still can’t so much think the words, “I love my life and I love myself” without feeling very uncomfortable, because I know it isn’t true.

Saying that you love yourself and your life when you know you don’t is not much better than telling someone else you love them when you don’t.

I still think I need to get into a meditation habit, start a serious practice, at least for the time being.  It would be nice to be able to quiet my mind and hear the midi chlorians speaking to me, as it were.  It would be even nicer if people in the public sphere, at least, would practice mindfulness and even metta meditation.

I guess we’ll see if I do it.  In the meantime, I hope you all have a good day.

TTFN

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A quick, belated post

This is going to be brief (I suspect) in addition to being late (already).  I have an appointment for an X-ray this morning to follow up and see if the kidney stone has passed, which I hope it has.  So, I’m going to the office late, and writing this‒well starting this‒as I wait for my ride to the hospital to get the study done.  I don’t expect to finish it until afterwards, but who knows?

I wonder whether the little app thing for the hospital system will give me the result of the X-ray when it is read, before I see the urologist.  That would be kind of cool, actually.  I like being able to review my labs and radiology reports without needing the priestly intervention of the physicians, especially since I am one, though no longer in practice.

***

Okay, I’m done with the X-ray, which went very quickly.  They seem to be a very well-run place over there.

It’s terribly frustrating that I have to quick duck into the restroom at every full stop (and even some commas).  There’s just a never-ending sense of urgency, probably because of the stent in place and the thread that goes from it to the outside world, and I don’t want to ignore it, of course, because the last thing I want to do is create circumstances for more kidney stones.

It’s a bit of a negative nostalgia situation, as well.  I was the youngest of 3 children (well…I still am) and I tended to have to pee a lot, certainly more than anyone else in my family.  So I ended up having to hold my urine in much more than did my peers*.  Not that people were unkind (though my sixth grade teacher gave me the nickname “Straight Pipes” which is somewhat unkind, I guess, but I took it as affectionate teasing).  But it just means that I have quite a lot of nonspecific memories of desperately trying not to wet my pants while waiting for, for instance, the family car to get somewhere I could use the restroom.

I don’t know, maybe that tendency has something to do with ASD.  I wonder if it could be some sort of sensory sensitivity.  I’m probably overthinking it.

Anyway, this’ll do for now.  Sorry for the delay, and please have a good day.

*Sorry, I couldn’t resist.

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New week, still weak

It’s Monday, and although I am not particularly happy to be starting a new work week, I am definitely glad that last week is over.  Last week was a very bad week indeed.  At a first estimate (and a second one as well) last week was among the five hardest weeks of my life.  And that includes the week of my open-heart surgery when I was 18 (1 week after which I went back to start my second year at university) and the week of my back surgery, and the week of my divorce and of my arrest and all that crap.  I’ve also been in residency, during one November of which I had worked 19 days without break, had a day off, then worked another seven or eight days.  I had one on-call time in the ICU when I literally did not sit down for about 30 hours.  I am not exaggerating.

There was also the week when I was in university and, thanks to some very serious issues between my then-fiancée and my parents, my parents cut me off from support for room and board (not just for a week‒we didn’t speak for about 8 years).  I was on a full scholarship, but I had to scramble to be able to pay for housing and food and books and so on.  That was a hell of a thing.  We got past it eventually, but it was pretty rough 

Anyway, my point is, I’ve been through some shit in my life, but last week, between the pain and the stress of moving, and the horrible rest (even for me), and the more pain, and the schedule that was incoherent for the move at work, and the unexpected (by me) work this weekend and so on, was one of the most difficult and unpleasant weeks I’ve known, both objectively and subjectively.  It had a huge silver lining, of course, in the person of Ezra, my youngest, and I cannot easily exaggerate how wonderful that was.  If not for Ezra, last week might have been the hardest week of my life.  I am, after all, older and much less healthy (especially mentally) than I was when dealing with some of my earlier issues.

It’s probably stupid to try to rank or categorize such life events.  After all, the weighting I give now is colored by my current state of mind, and of course, there are many axes* along which one can measure the “difficulty” of a week, and criteria by which one may judge them at any given time.  Reality isn’t even linear, let alone binary.

My point is, last week was one fucking rough week, and in addition to my physical stress, I came very close to a full-on mental breakdown.  And it’s not as though I have fully recovered; I’ve had all of 1 day of comparative rest, and now I’m heading back to battle.  It’s a mark of how physically exhausted I am that I was able to nap for about two hours straight yesterday afternoon.  But as you may know, I often start off on Monday mornings with relative energy, even sometimes with slightly ambitious plans, but by the end of the first day of the week, I am often already completely wiped out.

I’m certainly not starting this week from a place of enthusiasm and energy, even relatively speaking, really.  So I guess I’ll see how it goes.  It would be absurd, magical thinking to expect that I’ll feel better at the end of the day because I’m starting the morning from a relative low, since that would be a sort of “opposite” pattern.  It would be nice if things worked that way, but as far as I can tell, they don’t.

I hope all of you had a good weekend, and I thank you for putting up with my antics, or whatever you might want to call them.  It’s greatly appreciated.

*By which I mean, the axes of a Cartesian style graph, e.g., the x-axis, the y-axis, not as in “more than one sharp, wedge-based tool such as are used for chopping wood”.

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It’s Saturday now

And I’m in the office.  I haven’t come to the office this time, of course, I’ve just been here since yesterday, as I noted in my confusing and single-paragraph post yesterday evening.  I slept at the office, on the floor, and it was just as comfortable in many ways as if I had been at the house.  True, I couldn’t shower, but I’ve buzzed my hair down to 1/4 inch after seeing how it looked after I was in the hospital, and so it’s impossible to tell just by looking that I’ve not showered.  I usually have deodorant and other toiletries at the office, but those are already moved to the new office now, so I’m going to need to go over to the convenience store and get some deodorant and mouthwash this morning.

As for the house, well, there’s a reason I don’t refer to it as home.  It’s not a home to me.  I haven’t felt like I have a home since before I went to FSP.  No, it’s just a place I can hide for a while at a time, and not have to interact with anyone, and where it’s just my stuff inside, such as it is.  But I don’t feel at home there, I don’t feel comfortable, it’s just a place I’m existing.  I don’t even have a real chair there, though I have a piano bench and a folding metal chair tucked into a corner.  When I’m at the house, I just recline on a pile of pillows on the futon on the floor.  It’s good for my back in the short term, though after I stay there for a while it tends to backfire*.

Everything in my existence orbits around pain.  I guess it’s no irony that one of the two songs I have had memorized on piano for decades now is the Police’s King of Pain (the other is Eleanor Rigby by the Beatles).  Maybe it’s because I memorized that song that my life took on its current aspect.

I don’t really believe that, of course.  That’s absurd, magical thinking, and there’s no evidence that it’s the way the real world works, except through confirmation bias and the like.

Right now it still hurts to urinate, with spasms up in my right side and flank, which lingers a little even in between.  It’s nothing compared to the acute onset of the issue, but it’s still there.  And my back and hip and leg pains haven’t ceased to exist out of some strange courtesy.

I’m overwhelmed, and not in a good way.  There is too much happening in my head and around me right now, too many stupid little, annoying changes, too many deeply unpleasant surprises, too much chaos and randomness even in the day-to-day routines.  I am overwhelmed.

I used to be a person who could accomplish things, at least partly because I had people around me whom I loved and for whom I wanted to make things good as much as I could.  I cannot do good for myself.  I cannot live for myself.  But I used to be able to do good and make good things and relieve suffering.  I’ve saved people’s lives and even helped ease people’s deaths when it was appropriate.  Some of the most copious thanks I’ve ever received were from the families of patients who had died.  I was told by one family that, before he died, their 96 year old father/grandfather said I was the first doctor he’d had that he felt that he could trust.

Now look at me.  Or rather, don’t look at me.  I’m disgusting to start with, with my teeth that used to be good but have been ravaged by years of pain killers and prison and then just an inability to have the energy to take the very good care of them I used to take.  Also, I’m currently crying, and there’s snot on my face.  I don’t look great at the best of times anymore, and certainly no one is going to want to look at me now.

I’m caught in the pincers of some kind of weird metaphorical tweezer.  I cannot stand the thought of trying to change my situation; the idea of moving, of trying to change jobs, of trying to find something, is literally horrifying–imagine needing to wade through a swimming pool filled with roaches and centipedes and maggots and other larvae, above which soars a nearly-opaque cloud of mosquitoes, all female.

But staying where I am, doing what I’m doing, is just as horrifying, and now there are a bunch of new stressors, not the least of which is my fresh, new pain problem, which hopefully will be temporary, though it isn’t gone yet.  I guess a week is a relatively short time, and maybe I’m expecting too much, but it’s a fucking huge level of discomfort, and I don’t have the mental resources to deal with it, not on top of everything else.  Why I am I continuing to endure my already-existing chronic pain, my anxiety, my depression, all the other things associated with my hitherto undiagnosed ASD, and then now dealing with newly discovered problems?

I’m overwhelmed.  I cannot summon the will to make a change, or even the conviction that I ought to do so, because I cannot really think straight.  I cannot imagine what to do.  I don’t know that there is any way at all to escape, except by dying.  And I am always afraid.

You might think that after having pain every day for decades and having lost basically everything that ever mattered to you and for which you had worked so hard for so long you wouldn’t have any need to be afraid anymore.  What do you have to lose, after all?  But fear is not a rational thing, it’s not the conclusion of a thought process, it’s an emotion, one in which nature has invested heavily, and having pain after pain for a long time, of various kinds, can cause a “learned-helplessness” reaction related to depression, but even then, fear doesn’t go away.  One is always afraid of yet more pain.  One is afraid of facing another day with the same old pain.  One is a afraid that one is going to live a long, long life and never for one day of the rest of it not be in significant pain.  One is afraid that one will also be alone for the rest of that long life, with no comfort and little joy.

I don’t know what’s going on.  I mean, I’m writing this post, of course, that’s going on.  But I don’t know what else.  I’m falling apart, I think.  I’m breaking down.  Like I said yesterday, I can practically smell the melting plastic and circuitry in my mind.

Whatever.  Nothing I do or say matters, nothing I am matters.  I don’t know what I expect to happen because I’ve written about this.  I feel a bit like Frodo crying out for his friends in “Fog on the Barrow Downs” after they’ve been separated, but the only answer I will probably get will be from some foul undead spirits.  There’s no Tom Bombadil out there to come rescue me.  I wish there were.  And I could really use Elrond’s healing power, or even Aragorn’s.

That’s enough.  Go on, go read something else.  No one wants to feel miserable, and that’s how I tend to make people feel, so you should probably find something comical or at least entertaining to explore, and just try to have a good weekend.

*Honestly, no pun intended.  I didn’t even notice it until the editing process.