chronic pain

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A nameless Friday blog post

It’s hard to believe, but something truly obvious didn’t even occur to me until yesterday afternoon as I was getting ready to leave the office.  I was really worn out and tired and grumpy, and I said to my coworker, who was very kindly giving me a ride to the train station, “If I were a sane person in a civilized world, I wouldn’t even have come to work at all this week.”

That’s when I thought: the people at the hospital probably didn’t expect me to go back to work this week.

Meanwhile, this has been one of our busiest weeks in a very long time at the office, and the office is in the process of moving to our new location, and I had to iron out the details of the records from Monday and Tuesday, which were a bit off, and then I had to do the payroll on Wednesday all while having the busiest day of this very busy week so far.

Yesterday was not quite as hectic as Wednesday for me, but on Wednesday I had kind of maxxed the pain med dose so I could get done what I needed to do.  Not so on Thursday.  I want to make sure not to overuse the meds in the short term, since I don’t know when a really bad spasm might happen.  Of course, I’m not taking my usual aspirin either, per recommendation, nor any other go-to NSAIDS, so things are complicated.

Anyway, the meds situation wasn’t what I wanted to discuss.  I just wanted to note how pathological I must be to have not only come right back to work after being discharged from the hospital, but to have applied pressure to get me discharged Tuesday afternoon.  I can’t believe that I even said I would sign out AMA* if I had to do so.

But I am basically on my own; if I don’t work, I don’t eat, so to speak.  Even that is misleading, though, and is not my real reason, which is that I have to be productive or useful to someone, in a way that I accept, or else there is no point to the fact of my continued existence.

I mean, I know no one wants to be around me or to have me around them for fun and pleasure; the copious evidence for that is glaring and even blinding.  But I am capable of being useful in quite a few different ways; even my misautonomy doesn’t force me to deny that I have gifts that can be productive and useful and even sometimes beautiful.

So, if I can’t be useful, well…what’s the use of me?  If I were not at work, what would I be doing but lying around in my one room (plus bathroom) with a malfunctioning AC unit?  

Meanwhile, I still haven’t made my follow-up appointments or any of that.  My sister has offered to help, and I think I’m going to have to take her up on that, though she’ll have to be doing stuff from long distance and second-hand and I still find the process daunting.  It’s really quite pathetic.

And if not being useful is a feeling like being in an intergalactic void, it’s even more horrible to feel like I’m a burden or even an inconvenience to someone else, especially someone who really matters to me.  That’s a failure worthy of fire.

Also, I am tired of being in pain.  Everything in my life centers around pain.  I suppose it should have been obvious for quite a while, but at least since the time I was sent to be a guest at FSP West, pain has been the central fact, the only consistent thing, about my existence.  Now I’ve just added another color, another flavor, another timbre and type of pain to my usual mix.

I suppose one could almost call it refreshing as a change, or one might if it weren’t just absolutely overwhelming at its peak, and none too pleasant when it’s at a lower level.  And while, if one’s pain is in one’s back and legs, it is possible to rest them to some degree, you can’t really rest your urinary tract when it is where the pain is focused.  If you try to drink less, you’ll only make the primary problem worse, but of course, drinking more (hopefully to get the stone to pass) does mean more of the acute discomfort in the meantime.

Why am I doing any of this?  Why am I continuing?  It’s certainly not out of any sense of my personal value.  I’m just a maggot-ridden turd lying by a dirt path in a humid, stagnant, pollen laden drizzle that doesn’t refresh anything or allow anything but mold and fungi and coprophagic organisms to grow.  I’m so tired.  I have no purpose, and I am so tired.

Anyway, this ought to be it for this week.  I don’t think there’s a plan for the office to be open tomorrow.  If it is, by rights I ought not to come in anyway.  But since the alternative is just lying around by myself, and since I’m stupid, and I don’t live in a civilized world, and I am certainly not sane, if they open the office, I will probably be here.  If so, I’ll probably write a blog post.

Until my next post, whenever it is, I truly and sincerely and urgently hope you all have objectively good days and nights and everything else.  If my words have the power to make anything real, that is what I would want.

*Against medical advice.

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Morose, meandering musings of a misautonomous moron

Every time I write a blog post on a Wednesday morning, I feel the urge to include a reference to the Beatles song She’s Leaving Home, as in “Wednesday morning at five o’clock as the day begins…”

There, see, I just did it again.  At least it was self consciously done, not some quote put in as if it were my own words, intended only for those “in the know” to recognize.  I guess that’s a way for me to feel vaguely clever‒and sometimes funny‒while actually just following the often irresistible compulsion to quote shit* at every turn.

In high school, when I was a senior (and maybe when I was a junior?) I was pretty confident in my place as one of the “leaders” of our school orchestra, and I used to go to the orchestra room first thing in the morning before school, usually arriving before the teacher, and then I hung out there (with other orchestra members and friends who arrived a bit later) until time for classes to start.  While there, pretty much every day, I would write a quote from something‒Shakespeare**, Tolkien, Stephen R. Donaldson, Poe, etc.‒on the board.  I even won the “Dusty Cello Award” at our end of the year orchestra party because of it.

I’ve always had that habit of quoting books and movies and plays and shows and so on, and even doing the voices of people when I could.

I think reading fiction in particular was very good for helping me to understand what goes on in other people’s minds, at least in principle.  But I also just liked being able to go to those other worlds and other lives.  It’s better in general than watching TV or movies, though the latter are easier and also easier to enjoy with other people, if you have other people with whom to enjoy them.

Anyway, that’s neither here nor there.  My past and my thoughts about it are of no moment to anyone but me, and even I find them boring.  It’s just that they’re all I really have.

I’ve tried to interact with people to some degree online, but that just gets me weird feedback, like getting almost 3,000 “likes” in less than 24 hours for pointing out in a comment that the biblical Jesus would not approve of a particular, supposedly religion-based, exclusion reported in a thread about a shopkeeper toward a trans woman (ironic for a nonbeliever to be pointing out Jesus’s very clear attitudes, but I am one who remembers characters and quotes).

On the other hand, when I noted yesterday on the same site that the office where I work was 3.4 miles from the nearest “beach” (and a fishing pier) and I thought it might be good to walk down to the shore, kick off my shoes and socks, and just start swimming east into the Atlantic and not come back (pointing out that it would leave no need for cleanup, and it wouldn’t mess up anyone’s day, or anything of that sort) I got 3 likes (after quite a while) and only one comment by a person saying she doesn’t like to dwell on such thoughts.

This is, supposedly, Mental Health Awareness month, but I don’t know what good such a thing does, especially if such is the response to someone expressing suicidal ideation.  I’m aware of mental health in general, but it’s been a long time since I had any personal experience of mental health (if I ever have).  It’s been at least 13 years since I’ve had even moments of mental pseudo-health.  That was the last time I saw my kids in person, for one afternoon.

I’ve only recently realized that it’s now been a longer time since I saw my children than how old they were when I last saw them.  So, I’ve missed more than half of their lives now, and that fraction is only going to get bigger.

What would I possibly know about mental health?

Physical health is not my biggest attribute either (not many people had open-heart surgery at age 18).  But I know it gets very boring for people to hear about‒for instance‒the fact that I feel right now as if my entire right side from the lower ribs on down to the ball of my foot feels as though it’s filled with molten lead, which is quite painful, in case you were wondering.  But that’s always the way it is, for much longer than 13 years (more than 20, actually) and though it waxes and wanes and shifts locations, pain never fully goes away while I’m conscious (and probably contributes to the worsening of my insomnia).

Anyway, I know, Waah, waah, waah, shut the fuck up, Robert, no one wants to hear all this shit*** over and over again!  It’s tiresome to face nothing but complaints.  I’m sorry.  I’m very, very sorry.  I really am.  To everybody.

I really should just try that swim.  There isn’t much to prevent it.  I’m not particularly afraid of drowning (other than in an instinctive sense) though I do have misgivings about sharks and other sea creatures.  That’s probably silly, since, even in shark infested waters, statistically people are far more likely to drown than to be attacked by a shark.

I have to do something, or at least to have something done to me.  I don’t have the will or the wherewithal to take action to save myself in any way (and wouldn’t know where to start if I could) but I don’t have the strength to keep living, not for much longer.  And I don’t have any good reason to keep living.

But that same problem with “executive function” or whatever it is makes it hard for me to take action to kill myself.  So, for the moment, I just hurt myself to try to distract myself from other pain and to punish myself for being such a lame and shitty person, but weirdly, I have a hard time making such things hurt very much anymore.  Maybe I’ve always got too much pain medication in me, but I just don’t realize it because it doesn’t do all that much for my back and joint pains.  It’s weird.

Then again, I’m weird, so I guess I shouldn’t be surprised.  Like the song says, “I’m a creep.  I’m a weirdo.  What the hell am I doing here?  I don’t belong here.”

I don’t belong here.

*This is the nonjudgmental version of the word “shit”.  It’s more or less synonymous with “stuff” but it flows better (so to speak).  I don’t mean to imply that the song to which I refer is in any way shit.  It’s one of the most beautiful songs I know.

**Yes, I loved Shakespeare even back then.

***Here, the use of “shit” is much more in the derogatory, excrement-related vein.  Though if someone had excrement in their veins, they would be in big trouble, because that excrement would be carried to the lungs and then heart and could cause horrible endocarditis and pneumonias and so on.

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“Everything is…broken”

Hi, everybody.

(Hi, Dr. Nick!)

I am writing this blog post on my mini laptop computer this morning, because I’ve been getting sick and tired of writing on the “smartphone”.  I’m also getting sick of writing blog posts to some degree, so it’s best to make it relatively easy on myself when I can, and when I have the gumption, or the will, or the “spoons”, whatever you want to call it.

We have some new people at the office this week, so depending on how many of them would be able to show up, I may be working tomorrow.  If I do, I suppose I’ll probably write a blog post tomorrow morning.  So, I guess you’ll all know whether or not I’m working based on whether or not there’s a blog post.

Of course, if I don’t work tomorrow, there will be no blog post (or at least it’s very unlikely).  And, definitely, if I die (or become gravely or catastrophically ill or injured) before tomorrow, there will of course be no blog post.

As for everything else, well—to a good first approximation, everything else sucks.  Although the universe as a whole may actually be doing the opposite of sucking, since the cosmologic constant, or Dark Energy, or whatever, appears to be leading to the universe’s accelerated expansion.  But metaphorically, at least, the universe could still suck even while it expands (you could even say it blows).

None of my problems are resolving, nor are any improving, to be honest.  I can’t even accept telephone calls from people I know, nor can I seem to find the energy to play any music, nor to write any fiction.  I am more or less all out of “spoons”*, or nearly so.  And I don’t seem to be getting as many of them replaced when I do get them.  It’s as though my subscription has been downgraded.

That’s all metaphorical, of course.  When I say spoons, I’m referring to all members of the dairy professions.

(That was a Life of Brian reference.)

I’m sorry that I keep pausing while writing; I hope it’s not too boring for you while I do (ha ha).  I’m having some difficulty concentrating.  This is at least partly because my left eyelashes seem to be getting tangled and poking at parts of my eyelids in the wrong way, and I have not yet been able to locate and remove the offending lash(es).  This used to happen only to my right eye, but apparently things are changing themselves up—equal opportunity offenses, I guess.  Sometimes I feel like I want just to pull my whole eyelid off, it’s so irritating; it’s hard to ignore something that’s basically poking you in the eye.

My back and legs are already flaring this morning well above their baseline, and I feel like I got even worse sleep than usual.  I’m not as overtly angry as I was yesterday, not because the causes are any different, but because I’m just steadily more exhausted all the time.  I don’t have the energy to do anything much.  I can barely conjure the will to do this.

And, of course, my depression and my ASD and the related anxiety and all that continue to make life uncomfortable at all moments, and there are very few things that make up for it.  Even food is losing its taste.  Where is Lestat to turn me into a vampire?

Well, I know that isn’t going to happen because that doesn’t actually happen.  It’s called reality.  Google it.

Well, this post is going nowhere, isn’t it?  I guess in that, it’s like everything else, including the universe itself (as far as we can tell).  It’s some measure of how far I’ve sunk that the first draft of this little tidbit of a blog post has taken me over an hour to write, and again, this is on my mini laptop computer.  Given that I can generally type far faster than I can speak, that should give some indication of the degree of my dysfunction.

That’s it, I’m done with this for today, I’m out of here.  I unfortunately did not die yet this morning, so here we go again with the blog post.  Couldn’t I at least be hospitalized?  Heavy sigh.  I guess I’ll finish with a quote from a great artist who took what was probably the sensible course: “Oh well, whatever.  Never mind.”

*All Out of Spoons was the original title for the old Air Supply song All Out of Love, but they decided that wasn’t catchy enough**.

**That’s a lie, of course.  At least, it is as far as I know.

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*Or as title

It’s another Wednesday morning, and I’m not walking to the train again this morning, because my feet blisters are still quite irritated.  It’s so frustrating; why were they okay on Saturday and Sunday but not on Monday?  Did I overdo it?  Or‒as I suspect‒did my socks influence things?

I wore a different type of sock on Monday than I had on the weekend.  I also wore that preventative ankle brace on my right foot, and that is the foot on which the majority of my blister problems developed.  Is that a coincidence?  Quite possibly, of course.  Don’t let Sherlock and Mycroft tell you otherwise with their apparently clever but illogical and quasi-magical notion that the universe rarely indulges in coincidence.  Except for things that are literally causally related, there is nothing that isn’t coincidence.

Of course, from another point of view, nothing is coincidence.  Everything follows the laws of physics‒or the laws of nature, or however you wish to characterize it‒and can do nothing but what it does when it does it.  That doesn’t mean it has any meaning beyond that, from the human point of view.  For instance, the idea that the universe is “sending you a message” is absurd, unless some specific person, who is of course a part of the universe, literally sends you a message.

I’ve often said that while everything has a cause or causes, many things‒almost everything, as far as I can see‒has nothing that a human would call a reason.  This is the old teleology error that goes at least as far back as Aristotle*.

I had no intention to write about all that today, but often the only way for me to know what I’m going to write at any given time is to start writing.

You might have noticed‒well, I doubt anyone was really paying attention, but now that I’m telling you it’s going to be much easier to catch‒that I have not indented my paragraphs today.  Before, I was trying to see how pleasing it was to indent manually while writing in Google Docs, in case I might decide to try again to write fiction, and to do it on Google Docs.  I’m sorry to say, I’ve felt no urge nor even any real willingness to write fiction.  I’ll probably never write any fiction again.  I’m getting pretty close to the point of not writing anything anymore.

I’m really just exhausted, in more than one sense of the word.  I hurt every fucking day, and have to dose myself with various things to keep it at least under control enough that I can carry out reasonably normal functions (for me, anyway).  I haven’t read for more than about twenty minutes total in the last week or week and a half.  I haven’t played my guitar in weeks, maybe more than a month.  I barely even listen to music**.  In fact, I tried to give my black Strat away, but that wasn’t really workable, and the person to whom I offered it was just confused.

Every little thing feels overwhelming.  The only thing I do in spare time is wander through things like Instagram and Threads, which are already starting to get boring.  Occasionally I will see things that are funny or interesting or frustrating, and sometimes I’ll even make comments that other people find interesting or funny or whatever.  But what’s the point?  I don’t feel a scintilla of any connection there; it’s not even an awkward conversation.  Not that it hasn’t been useful and sometimes enjoyable‒it has.  But I don’t have any friends there.

I also don’t really have any friends anywhere else (except if you count quite old friends, far away, with whom I rarely interact anymore).  I have “work friends” who are really more work acquaintances.  There’s no one with whom I share any time or interests outside of work.  I certainly don’t talk to my neighbors, nor to anyone on the train.

It’s been more than twenty years since I had a day without feeling constant pain (except rare moments of high-medication, which provides its own “fun”) and probably thirty years since I had a good night’s sleep without the use of heavy doses of sleep aids of one kind or another.  I’ve tried to get healthy during this time, don’t get me wrong.  I’m stubborn; I do not give up easily.  That’s probably the only reason I’m still alive, but it has other drawbacks as well.

What I ought to do is give up even trying to be healthy, even trying to get stronger or to thrive or even to survive.  Of course, knowing me, unrestrained self-indulgence in self-destructive practices would probably lead me to become unreasonably healthy and successful.

Nah, that’s not going to happen.  It would make a funny story, but the universe doesn’t seem particularly predisposed to irony, even if humans seem to love it and “find” it even where it is not.

I’m done for today, I think.  I wonder, if I didn’t ever write another blog post, how many people would notice, and then for how long they would keep wondering if I would return and how long it would be before they forgot about me entirely.  I suspect it would be a very short time.

*Anagrams include “a tit loser” and “tater silo”.  Also, see the top of this post.

**And when I do, it’s usually “reaction” videos to songs I know, because watching these feels almost like sharing a beloved song with a friend.

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I have not become comfortably numb

     Well, I misjudged things a bit, and though when I wrote my post yesterday I didn’t realize it, I had developed blisters on my feet from my long walking‒especially the right one, on which I had been wearing a spandex brace (prophylactically*‒I hadn’t yet been having any ankle problems, but wanted to avoid them if possible).  So, today, I am not walking, at least not to the train/work.

     I have realized that topical lidocaine creams, such as the max strength versions of “Icy Hot”, dull the irritation of blisters.  That’s nice to know, in a pinch, though I don’t know if it would dull the pain of a pinch; it seems only to work with superficial pain, not deeper pain.  Curiously, it also seems to dull some of the local signs and effects of inflammation (though Ibuprofen contributed to that).  Don’t worry, I’m not expecting to cover up my pain and forget about it.  That doesn’t seem doable.  I’ve tried.

     If I could slather lidocaine all over my body and thus numb all my pain, believe me, I would do it.  But I always hit a wall beyond which the numbing doesn’t reach.  Heck, I’ve had multiple steroid/lidocaine epidural injections and they didn’t seem to do anything to my pain, even temporarily.

     I should probably study up on the nature of congenital insensitivity to pain, just to see if the metabolic pathways involved in the condition shed any light on the sorts of things that might make a person have their pain sense shut off.  Mind you, given the nature of that disorder**, I suspect that its effects come about through some aberrant development of the nervous system, not by the presence (or absence) of some neurotransmitter.

     If memory serves, the saliva of the vampire bat has significant pain-reducing as well as anticoagulant properties.  I’ve heard all my life about people thinking it would be good to investigate as a source of potential powerful analgesics, but nothing has come of it, as far as I’m aware.  It wouldn’t be all that hard to separate out the molecules in vampire bat saliva and examine them and try to replicate them.  Heck, if you can figure out the bat’s biochemical process for making the molecules, you could develop transgenic bacteria that could produce the substance en masse, like how replacement thyroid hormone is made.

     No, either there were unforeseen difficulties with using the vampire bat’s saliva analgesic, or no one was interested in doing the research (which seems unlikely but is not impossible), or “big pharma” has blocked the research because it would interfere with the sales of opioids and NSAIDs and so on (see picture below for an example of such interference).  I would like to think that’s unlikely; after all, there would be tremendous potential for legitimate profit in a revolutionary new pain treatment.

     Still, if it turned out that anyone in a big drug company or companies did block research into such a potential pain killer, then all the people involved would need to be strapped to tables and have all their joints and other “tender areas”, like genitals and nipples and lips and eyes, injected with some combination of‒for instance‒capsaicin and gympie-gympie leaf extract and fire ant venom, with some uric acid crystals*** thrown in for good measure.  Oh, and also they should be given constant, powerful stimulants so that they cannot escape their pain by losing consciousness.

     That’s if I don’t think of anything even better to do to them.

     Obviously, I take pain treatment seriously.  That should come as no surprise, given my personal, decades-long chronic pain and my own having gone to prison for trying (naively) to treat other people’s pain, only to be thrown under the bus by people who were taking advantage of my naïveté.  I have very little patience for those who would interfere with other people reducing their pain and suffering, or who would make light of the suffering of innocent people.

     Mind you, though I think vindictive thoughts and entertain vindictive fantasies, I would probably (like a moron and a sucker) feel pity even for people who had done such horrible deeds, and I would probably end their lives with minimal pain.

     I would not feel bad about that though.  People who willfully engender greater suffering in others for their own short-term (or long-term) profit, whatever form that might take (unless it is truly and honestly and reasonably something they perceive to be an emergency or an absolute survival need) are more than worthy of being erased from existence.  And while it might be reasonable for those who knew them to miss them, they would not deserve to be mourned.

     Look at me, getting all murderously vindictive about purely imaginary people, when there are so many real people who are thoroughly deserving of such animus.  But, anyway, that’s enough of this weird-ass blog post for today.  I’ll let you go to enjoy something more wholesome.  Please have a good day if you’re able.

*I am pleased to note that my right ankle is in no danger of an unwanted pregnancy.

**And yes, it is a disorder, not just a “difference”, because it significantly reduces the survival and thrival of people who have it.

***Look them up; they’re related to gout.

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Please eschew sour grapes, or at least don’t chew them…they’re sour.

I don’t really remember what I wrote yesterday; I remember that I was angry, but it wasn’t really about anything solid or sharp, more just a general sense of frustration and despair.  I really felt and feel at a loss, with no sense of meaning or purpose or deep value.

I can’t claim to think that feeling is unreasonable; the world provides plenty of evidence for the pointlessness of all things.  I suspect that most people just try to avoid thinking about it.  They distract themselves with religions and other ideologies and with social interactions, whiling away their time until everything finally breaks down and they die.

Some surely die in a state of bewilderment and fear, never having accepted or even having truly contemplated their own mortality.  Some probably find comfort in the aforementioned religious ideas or just in community.  Having the love of family and friends, especially if such people are with them near the end, must help relieve at least some of the dread and pain as things wind down.

It must be at least some comfort if, when one is dying, one has loved ones nearby, helping to provide reassurance or at least just company.  If one has loved ones who willingly and lovingly attend to them while they are dying, or even just want to be there with them, one must at least be able to think that one has done something right in life.

Anyway, I’m on my way into the office, still rather sick but definitely improving.  I’m coughing, but not as badly, and the goo I’m bringing up is thinning out and looking less like some weird, opaque resin made from peas.  I’m still far from optimal, but then, I only started getting sick about six days ago.  If I’m substantially over it by, say, Friday, well that will have been a decently circumscribed illness, especially considering just how badly I’ve been feeling.

Somewhat ironically, my illness at least distracted me‒temporarily‒from the degree of my back, hip, ankle, and shoulder/arm pains, and those are becoming more prominent again as the illness recedes.  This leads me to wonder to what degree interferons or “tumor necrosis factors” and other aspects of the immune response can have beneficial effects on chronic pain, or if indeed they can do so at all.

It might be interesting to do a retrospective study involving, say, people who were treated with strong doses of interferon (with ribavirin) for Hepatitis C, or even for cancers such as melanomas, and who came out the other end healthy, then to try to learn whether any of them had chronic pain before starting treatment, and how the pain responded to the treatment.  We could compare them to age (and otherwise) matched cohorts who did not receive any such interferon treatments but who had similar amounts of chronic pain and see if their courses differed in a statistically significant way.

Of course, those high-dose interferon treatments for Hep C had their own serious complications and side-effects.  For instance, they could trigger serious depression even in people with no previously known disposition to have mood disorders.  These outcomes were generally worth the risk, if one could thereby eliminate chronic Hepatitis C, which is associated with significant morbidities and pathologies, not the least of which are potential liver cancer and sclerosis.

Still, if I could go through, say, a six week course of such treatment and thereby reduce (or eliminate) my chronic pain, I think it would probably be worth it.  I’m depressed and suicidal anyway.

Of course, we’re a long way from such a study outcome, even if we had unlimited funding and could start the study tomorrow.  Money can help make a lot of things easier to do, but as Kansas pointed out in Dust in the Wind, money has no effect on time*, and some things just take time.

I don’t expect to see such a study done, let alone to be able to benefit from the results, and honestly, I don’t have a high credence that it would show clinically useful effects.  After all, my own pain is not diminished now as I’m getting over my illness; it’s just changing back to baseline.  And, unfortunately, taking a vacation from one pain to another only to come back to the original one is probably not something anyone would really seek out***.

That’s enough for today.  I hope you all have a decent one‒do please try, at least.  Someone should, and it would be nice if most such people were reader-types who like blogs rather than wealthy assholes who don’t give much of a shit about anyone else, though those are the people who seem most likely to have happy days most often.

Not that wealth means someone is undeserving of happiness; that’s a non sequitur, really‒sour grapes projected onto the world by those who resent and envy the wealthy (sometimes with good reason, sometimes without).

Do your best.

*Okay, if you had enough money, all in one place**, you might form a massive enough object that it would measurably slow the local passage of time.  Heck, you could make a “money black hole” if you could get enough of it together and compress it enough, and at the event horizon, time would stop (to an outside observer, anyway).  Of course, according to GR, a black hole is a black hole is a black hole, with only mass, angular momentum, and charge differentiating one from another, so it wouldn’t matter if the black hole was made out of money.  Quantum mechanics demands otherwise, though, and thus we have the famous “black hole information paradox”, which isn’t really a paradox, anymore than is the “Fermi paradox” (When you come to an apparent paradox or contradiction, that’s just an alert, saying “something you’re doing here is incorrect or incomplete.”)

**Even if you’re just storing that money as information, with no bills or coins, there is still energy associated with the information, always.  So enough information about enough money could still have gravitational effects.

***Then again, there is the phenomenon of deliberate self-harm, and I can tell you from experience, it is sometimes a way of diverting oneself from a pre-existing, chronic pain to another pain, one deliberately and personally chosen.  Does that count as a pain vacation?

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No April foolishness in this post

I am not making any jokes or or otherwise messing about in an “April Fools” sense here today.  I despise “pranks” of the sort that people tend to pull on April Fools’ Day, and think people who do them should be castrated/spayed/neutered immediately.  No, I’m not kidding.  Maybe I wouldn’t ever actually carry out that sort of penalty‒I am a bit of a softy sometimes‒but that is my urge when even merely contemplating such deliberate, quasi-malicious trickery.  Actually, that’s my restrained, milder response.  Most of the time I feel murderous at pranks, even when I’m not the target.

It’s the start of a new month, and I am not enthusiastic about it.  Still, it’s not as though I can do much to avoid it.  It’s one of those stupid, inexorable things in the world that make it so often so repugnant.

I think I’m going to try to avoid discussing updates about my ongoing “plan” from now on.  It just seems to make other people upset or sad or concerned, but it doesn’t actually motivate any kind of active response of any kind.  It’s like the memes say, when someone’s mental illness‒especially suicidal thoughts‒is made open and discussed, such people are avoided, they are called “attention-seeking”, they are told to toughen up or stop complaining, to smile, to get out and exercise, to seek support of friends and those who love you‒as if those weren’t the very people you want to avoid burdening or inconveniencing.

It’s only after someone actually commits suicide that people start saying things like “I wish I could have done something,” or saying that they didn’t know, that they didn’t see it coming and so on.  But of course, they had warning, they had information, if not awareness, and they could have done something.  But they figured it was up to the person having the trouble to seek help.  As if someone whose brain is not functioning properly has the wherewithal to help themselves, especially when they are on their own and have no local support system whatsoever, and other issues including chronic pain, insomnia, and neurodevelopmental issues.

They might as well tell someone with liver failure to just buck up and for crying out loud get back to using that liver to cleanse the various toxins from their blood and to process their food and maintain the biliary system and all that goes with the liver, when it’s the liver that is failing.

I’m not saying that all people are like that, of course.  There are people who definitely try to do what they can.  They are few and far between, however.

It doesn’t matter, I guess.  Nothing does.  And I am certainly no one’s idea of a worthy cause, to be honest.  So I guess I shouldn’t feel snippy about the fact that there’s no way for me to be rescued.

I don’t know what else to write about, otherwise.  Maybe I shouldn’t write about anything.  Maybe I should just quit writing.  Maybe I should quit trying to pretend that anything I say or do is of any importance or even interest.  It’s a bit pathetic.

I’m just tired.  I’m tired of trying to “fit in”, tired of trying to pretend to be positive, tired of trying to pretend to be healthy so that I don’t inconvenience other people too much.  It’s all bullshit.  I’m not healthy, I’m not happy, and I haven’t been in years.  I see no positive future for me.  There is only an ongoing stretch of years, decades, who knows how long, alone, depressed, in pain, an outsider, an alien, a stranger, who will die alone in the end.

I have often been the one providing support for others throughout my life.  I always tried to be there for people.  I volunteered in various places, tutored and helped out first other kids and then younger people, and of course, I went to medical school and became a doctor.  Even in prison I worked in education, trying to help other prisoners get their GEDs.  Maybe some part of me was thinking that was an investment‒that if I tried to be and do good, to help others, when it was my time to need help, I would be worthy of getting it, worthy of rescue.

Of course, that’s not how the universe works.  If anything, when left to its own devices, the universe rewards selfish assholes, at least in the short term.  In the long term, everyone dies anyway, good or bad, and how much a person suffers in the meantime is in no way dependent upon how good or evil a person is.  And there is no credible reason I have ever encountered to suspect that matters will be set right in some form of afterlife.  It’s all just futile and maddening.

Anyway, that’s enough for now.  Obviously I’m very grumpy, and I’m still sick (though maybe slightly less so than yesterday), and I don’t want to deal with anything!  I want to rest.  I want to escape.  There’s nothing for me here.  “I don’t want to spoil the party, so I’ll go.”  Or at least, I ought to go.

I don’t know.  I am at a loss.

I hope you all are doing and feeling far better than I am and do.  Please try to have a good day and a good month.

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“Don’t you know you’re gonna…”

It’s Friday morning, at last.  I don’t know whether or not I’ll be working tomorrow, but either way, I’m glad the main week is done.  I feel as though these five days have lasted for months.

My pain seems to be creeping back toward its baseline level, which still sucks, but it’s way better than it has been earlier this week.  I hope it doesn’t just bounce back up once I’ve become relieved (relatively).  That would really bite.

I’ve been trying to exercise carefully and consistently, and that’s at least been okay.  I’m also always trying to adjust my shoes and socks from day to day, just to see if they make any difference.  Sometimes they seem to do so.  Of course, I’m being quite unscientific about this, changing more than one variable at once (and of course it’s very hard to do blinded studies, let alone double-blinded ones, when one is working on oneself).  There is a fair amount of desperation involved in all of this, which is probably not too surprising when one is trying to relieve or at least diminish pain.

I have had no ideas or inclination regarding any new stories, nor have I even touched a guitar.  I’ve spent a fair amount of time puttering through Threads and occasionally Instagram to distract myself (and sometimes BlueSky and the other one).  I’m following them at least partly out of novelty; they are websites I’ve never really used prior to recent weeks to months, so they haven’t gotten too boring yet.  Also, it was through Threads that I found the place that did my autism assessment, so that’s a real benefit.  But such short-format, chaotic sites discourage (albeit unintentionally) any depth and nuance of discussion.

Of course the Website Formerly Known As Twitter has always been a bit of a cesspool, precisely because it just encourages the equivalent of interaction via sound bite.  And since Musk®, by Elon™  has taken it over, both it and he have gotten worse.  I almost cannot believe that he indulges himself in such illogic and irrationality as he seems to do on the site, and that it has so leaked over into his real life.  Then again, even Ayn Rand, a fierce advocate of reason, fell victim to her own personality cult.

These are examples of the fact that it can be very difficult to maintain one’s clear-headedness without any input from others, and firm input at that.  This is why we have peer review in science (and various incentives to disprove each other in rigorous ways).

No great mind is ever error free, not even the greatest, whoever that might be.  It’s probably not possible for any finite mind to be error free*, and I’m not sure that even an infinite mind, if such an idea makes sense, could be error free.

Of course, none of it really matters in the long run, but in the short run there is much needless suffering in the world that could at least be mitigated if people would just calm down a bit and try to let reason govern them.  Alas, that’s an awful lot to ask of naked house apes.  They are saddled with all the evolutionary history that leads such jumped-up monkeys to hurl their feces at each other more often than to seek mutual understanding.

They also have a regrettable tendency to feel that they are right, that they just know something, and to be aggressively opposed to self-doubt.  That, I suspect, may be the attribute that will lead to the demise of the human race and possibly all other life on this planet.

I know the studies have been inconsistently replicated, but there are some experiments that indicate that people with depression evaluate themselves (and presumably the world) more realistically than those who are not prone to it.  Other people all tend to rate themselves above the median in most things**, whereas depressed people seem inclined to accuracy, not merely to downgrade themselves (at least when not actively depressed).

I’ve said it before and I’ll say it again, self-confidence beyond a certain minimum requirement is inherently suspect.  I don’t trust people who trust themselves too much; they are much more likely to make errors and not to correct them, and then to compound and double down on such errors.  Current US politics is awash with this monkey-work, as is big business, and it can only be sustained for so long before the bubble must burst, and a bursting bubble is a violent event that can cause a great deal of harm.

This dysfunction of thought and communication is not isolated in the political right, though currently their pathologies are more immediately consequential and potentially disastrous.  But the left has its share of unthinking monkeys, too, and they often encourage and trigger the monkeys on the right.

As for me, I don’t consider myself a member of either camp.  I am orthogonal overall to the left-right axis of human politics.

And with that peculiar statement, I’ll bring this post, and hopefully this week, to a close.  If I work tomorrow, I’ll probably write a post.  Either way, please try to have a good day and a good weekend.

*Though errors are free in that you don’t have to pay for them in advance‒but they can cost you after the fact.

**It’s possible, in principle, for most people to be above average, when by average you refer to the arithmetic mean, but it is not possible‒by definition‒for the majority of people to be above the median.

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I can’t think of a Shakespeare based title right now

Hello and good morning.  It’s Thursday, and I’m writing this blog post on my laptop computer instead of on my smartphone, because yesterday when leaving the office, I felt like carrying my laptop computer with me.  That’s it.  There’s no better reason than that.  I was still in a lot of pain, but since trying to be careful with my back wasn’t making any difference, I figured the extra load of a pound or two couldn’t matter much.  It didn’t, as far as I can tell.

I don’t have any subject about which to write at the moment, and that’s beginning to get troubling, though I’m not entirely sure why that should be; certainly, it’s never slowed me down before.  I can always seem to write, the way some people can always seem to talk, and the good thing about writing is that I can go on and on about whatever subject I choose, just indulging myself, and I don’t have to stammer to a stop at some point because I realize that no one nearby has any interest in—and often no idea about—whatever I’m trying to discuss.

For the most part, people try to be patient with me, and for the most part, I try to pay attention to when people are obviously getting bored.  But it’s nice not to have to worry about it.  Anyone who isn’t interested in what I’m writing simply doesn’t have to read.

My pain is slightly less intrusive this morning.  I can move a bit more easily than yesterday without having to stop and hold still for a bit every time as if I’ve been stabbed or something.  It still hurts, but then, it always hurts.

I kept having an idea go through my head yesterday—it’s not a new idea—about possibly trying to write a new story, starting and finishing entirely on my smartphone using Google Docs.  I don’t know whether I would enjoy it or not, or if I would even do it; currently I don’t so much as have a candidate idea for a new story.  And, of course, those of you who have followed this blog for a while will recall that I recently wrote a new novella, called Extra Body, but that after an edit or two I lost interest in it and just published it here.  If you haven’t already, you can read it here.  If you like it, maybe you’ll look into some of my other stories.  Heck, maybe you can share and maybe tell some friends and followers.

Still, the prospect of writing a new story, which ought to be at least a little exciting, is just a dull and even an unpleasant thought to me, because I would expect to put in the effort of writing and then have barely anyone read what I wrote and have to watch it just sit out there, pointless and inert.

So, I don’t know if I’m going to write anything.  I guess I could look through my old story ideas and see if anything jumps out at me.  I haven’t had any new story ideas in a while, or at least, I haven’t written any down that come to me (they still do come).  There doesn’t seem to be much point in doing it.

My coworker is going to be away tomorrow and Monday because it’s his wife’s birthday and they’re going on a short trip, so it’s going to be slightly more stressful than usual at work.

I don’t understand it, really.  Who, as an adult, goes on a trip when they have a birthday?  I don’t recall ever going on a trip for my birthday, to be honest.  I don’t think I would want to do so, but even if I did, I don’t think it would happen.

I don’t have anyone with whom to go on a trip nowadays, or frankly, even with whom to go to see a movie or watch a TV show or whatever.  I’m actually very lonely, but it’s not as though I’m just able to make friends with just anyone and just start hanging out with someone.  The process of meeting someone new and getting used to someone and being comfortable making plans with another person is very difficult and ridiculously anxiety-provoking even to contemplate.

It’s very much a “damned if you do, damned if you don’t” situation.  And so, I’m just blah, just a dust mote floating in nothingness.  Unfortunately, it’s not a free-fall kind of nothingness, so there is net gravitational force on me at all times, and that causes my various pains to continue to act up.

I’m sure it’s probably nothing that I don’t deserve.  Goodness knows that I’m hard for other people to get close to, or even to tolerate, since I get so awkward around other people and have such a hard time feeling any common ground.  Also, I’m pretty fucking weird.

Anyway, that’s about it for today.  I don’t think I’ve said anything that’s of any use to anyone, except perhaps as a way to pass a few moments’ time on our mutual path to oblivion—or, as David Mitchell put it, “Whiling away our finite time before the grave.”

He says this at approximate time stamp 10:15 in the linked video.  It’s worth watching; it’s quite funny.

I don’t know if I’ll put a picture here or do a Shakespeare-based title.  I guess you’ll already know the answer long before you read this part of the post, won’t you?  I envy you.  I wish I’d already decided.

I guess beggars can’t be choosers.  And we’re all beggars here, when you get right down to it.  No one was born because they deserved to be born, so to speak; you can’t earn your existence before you exist.  You can’t choose your parents/genes, your place of origin, your time of origin, or your developmental influences.  And if you could choose, the odds of you (or anyone else) choosing wisely seem pretty low.

In the meantime, just…try to have a good day if you can.

TTFN

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“…the only thing that’s real.”

It’s Wednesday morning, and I’m writing this on my smartphone instead of the laptop computer.  There’s no important rationale for this choice, it’s just the way it turned out.  There are causes for everything that happens, but there aren’t necessarily reasons.

I was terribly stressed out yesterday, though arguably nothing too Earth-shattering happened.  Just quite a few unexpected and frustrating but relatively little things occurred that led me to want to hurt myself, and I wanted just to give away my black Strat at the office as well as a very cool piece of hiking equipment that I have that my boss really admires*.  I just wanted to divest myself of everything and go off and, I don’t know, try to swim to Morocco or something**.

I don’t feel much better this morning, but at least it’s been going reasonably “according to plan”.  I’m still in stupid amounts of pain, since right when I woke up.  Nevertheless, I did my morning exercises and got ready for work, though I feel almost as though my upper body and my lower body are hanging by a thread from each other.  Only nerves seem to connect the two sometimes; otherwise it feels as though my upper half is merely balanced atop my lower half, and as I sit, stand, lie down, walk, and so on, it wants to fall off its perch, and that process hurts.

I haven’t actually played guitar in weeks.  I’ve “wanted” to, intellectually.  I even got the red Strat out at the house, putting away the SG, because the Strat is my second favorite***.  However, that hasn’t led to me playing it, though I came close at least once over the weekend.

I of course also haven’t played piano/keyboards, partly because my keyboard is covered with superfluous clothes and other things that just need a place to be.  It’s shameful, I know, but I have little room for storage.

I also haven’t written any fiction or done any drawing, and I don’t even have any modeling clay, though the discussion of my pain made me think of when I used to play with clay every day (hey hey!).  Occasionally, one would get a single hair mixed in with the clay by accident, and then if you were splitting the clay, the two bits would sometimes be held together only by that hair; that’s how my back feels a lot of the time.

When I shift a little, at the wrong moment, in the wrong way, it feels as though my upper and lower halves want to separate, but they’re held together by the collected nerve fibers that carry all that lovely pain and spasm and electrical sensation back and forth to and from my brain.

I won’t say I wouldn’t wish this pain on anyone‒there are quite a few people in the world who merit such pain and much, much more, and yet they live with impunity.  Many of them have been doing their dirty deeds for quite a long time, and even if they were to die violent deaths tomorrow, they would already have gotten away with nearly a lifetime of successful villainy and will suffer no more than most people are near the end of their lives.  Indeed, these people will probably have better, more attentive health care in their final moments than most people who have done no willing harm to anyone.

Lovely universe you’ve got here.  (It wouldn’t) be a shame if something happened to it.

Also, you can’t threaten such people with stupid points like “history will judge you”, because such people don’t tend to give a shit about that kind of thing.  Many of them probably secretly believe themselves to be immortal; they certainly don’t care about what the milling masses think of them after they’re dead.  And any concept they may have of an afterlife is clearly not worrisome to them, or not enough so to deter their foul deeds.

And here I am, feeling like I am slipping very painfully off my lower half even as I write this, despite aspirin and naproxen and Tylenol and heating pads and Icy Hot and Voltaren cream and CBD and Delta-9 gummies and all that.

It’s too much.  If I cannot get this to improve soon, I may move up the deadline of my plan, because I am tired of being not only depressed and anxious and autistic (with all that that entails) but also just in chronic fucking pain every fucking second of every fucking day for more than 20 fucking years!!!  There is no sign of it abating.

Have a good day if you can, and thank you for reading.

*It’s a machete; I don’t know why I’m being coy.  It’s a beautifully designed and made machete, no cheap throw-away crap.  This is the sort of tool one could see being handed down with pride from generation to generation.  I bought it because of the aesthetics; I rarely need a machete for practical purposes.

**I would not succeed.  I am not that good of a swimmer, but even if I were, I don’t think any human or humanoid swimmer ever could swim across the Atlantic Ocean.

***My favorite is my Les Paul (see above), which was also, like my red Strat, made by my former housemate.  That guitar has such a beautiful sound, but it is very heavy.  It’s what I used for all the guitar parts, including the little arpeggios and whatnot, on Like and Share, and also for my cover of Something, with no pedals and only a little delay.  I used the red Strat almost entirely for Schrodinger’s Head and for much of Catechism, including the solos.  I used the black Strat for the solo in the middle of Breaking Me Down.  I have not recorded anything using the SG.  That’s no criticism of it; the timing was just wrong.