ASD

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A quick, belated post

This is going to be brief (I suspect) in addition to being late (already).  I have an appointment for an X-ray this morning to follow up and see if the kidney stone has passed, which I hope it has.  So, I’m going to the office late, and writing this‒well starting this‒as I wait for my ride to the hospital to get the study done.  I don’t expect to finish it until afterwards, but who knows?

I wonder whether the little app thing for the hospital system will give me the result of the X-ray when it is read, before I see the urologist.  That would be kind of cool, actually.  I like being able to review my labs and radiology reports without needing the priestly intervention of the physicians, especially since I am one, though no longer in practice.

***

Okay, I’m done with the X-ray, which went very quickly.  They seem to be a very well-run place over there.

It’s terribly frustrating that I have to quick duck into the restroom at every full stop (and even some commas).  There’s just a never-ending sense of urgency, probably because of the stent in place and the thread that goes from it to the outside world, and I don’t want to ignore it, of course, because the last thing I want to do is create circumstances for more kidney stones.

It’s a bit of a negative nostalgia situation, as well.  I was the youngest of 3 children (well…I still am) and I tended to have to pee a lot, certainly more than anyone else in my family.  So I ended up having to hold my urine in much more than did my peers*.  Not that people were unkind (though my sixth grade teacher gave me the nickname “Straight Pipes” which is somewhat unkind, I guess, but I took it as affectionate teasing).  But it just means that I have quite a lot of nonspecific memories of desperately trying not to wet my pants while waiting for, for instance, the family car to get somewhere I could use the restroom.

I don’t know, maybe that tendency has something to do with ASD.  I wonder if it could be some sort of sensory sensitivity.  I’m probably overthinking it.

Anyway, this’ll do for now.  Sorry for the delay, and please have a good day.

*Sorry, I couldn’t resist.

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It’s Saturday now

And I’m in the office.  I haven’t come to the office this time, of course, I’ve just been here since yesterday, as I noted in my confusing and single-paragraph post yesterday evening.  I slept at the office, on the floor, and it was just as comfortable in many ways as if I had been at the house.  True, I couldn’t shower, but I’ve buzzed my hair down to 1/4 inch after seeing how it looked after I was in the hospital, and so it’s impossible to tell just by looking that I’ve not showered.  I usually have deodorant and other toiletries at the office, but those are already moved to the new office now, so I’m going to need to go over to the convenience store and get some deodorant and mouthwash this morning.

As for the house, well, there’s a reason I don’t refer to it as home.  It’s not a home to me.  I haven’t felt like I have a home since before I went to FSP.  No, it’s just a place I can hide for a while at a time, and not have to interact with anyone, and where it’s just my stuff inside, such as it is.  But I don’t feel at home there, I don’t feel comfortable, it’s just a place I’m existing.  I don’t even have a real chair there, though I have a piano bench and a folding metal chair tucked into a corner.  When I’m at the house, I just recline on a pile of pillows on the futon on the floor.  It’s good for my back in the short term, though after I stay there for a while it tends to backfire*.

Everything in my existence orbits around pain.  I guess it’s no irony that one of the two songs I have had memorized on piano for decades now is the Police’s King of Pain (the other is Eleanor Rigby by the Beatles).  Maybe it’s because I memorized that song that my life took on its current aspect.

I don’t really believe that, of course.  That’s absurd, magical thinking, and there’s no evidence that it’s the way the real world works, except through confirmation bias and the like.

Right now it still hurts to urinate, with spasms up in my right side and flank, which lingers a little even in between.  It’s nothing compared to the acute onset of the issue, but it’s still there.  And my back and hip and leg pains haven’t ceased to exist out of some strange courtesy.

I’m overwhelmed, and not in a good way.  There is too much happening in my head and around me right now, too many stupid little, annoying changes, too many deeply unpleasant surprises, too much chaos and randomness even in the day-to-day routines.  I am overwhelmed.

I used to be a person who could accomplish things, at least partly because I had people around me whom I loved and for whom I wanted to make things good as much as I could.  I cannot do good for myself.  I cannot live for myself.  But I used to be able to do good and make good things and relieve suffering.  I’ve saved people’s lives and even helped ease people’s deaths when it was appropriate.  Some of the most copious thanks I’ve ever received were from the families of patients who had died.  I was told by one family that, before he died, their 96 year old father/grandfather said I was the first doctor he’d had that he felt that he could trust.

Now look at me.  Or rather, don’t look at me.  I’m disgusting to start with, with my teeth that used to be good but have been ravaged by years of pain killers and prison and then just an inability to have the energy to take the very good care of them I used to take.  Also, I’m currently crying, and there’s snot on my face.  I don’t look great at the best of times anymore, and certainly no one is going to want to look at me now.

I’m caught in the pincers of some kind of weird metaphorical tweezer.  I cannot stand the thought of trying to change my situation; the idea of moving, of trying to change jobs, of trying to find something, is literally horrifying–imagine needing to wade through a swimming pool filled with roaches and centipedes and maggots and other larvae, above which soars a nearly-opaque cloud of mosquitoes, all female.

But staying where I am, doing what I’m doing, is just as horrifying, and now there are a bunch of new stressors, not the least of which is my fresh, new pain problem, which hopefully will be temporary, though it isn’t gone yet.  I guess a week is a relatively short time, and maybe I’m expecting too much, but it’s a fucking huge level of discomfort, and I don’t have the mental resources to deal with it, not on top of everything else.  Why I am I continuing to endure my already-existing chronic pain, my anxiety, my depression, all the other things associated with my hitherto undiagnosed ASD, and then now dealing with newly discovered problems?

I’m overwhelmed.  I cannot summon the will to make a change, or even the conviction that I ought to do so, because I cannot really think straight.  I cannot imagine what to do.  I don’t know that there is any way at all to escape, except by dying.  And I am always afraid.

You might think that after having pain every day for decades and having lost basically everything that ever mattered to you and for which you had worked so hard for so long you wouldn’t have any need to be afraid anymore.  What do you have to lose, after all?  But fear is not a rational thing, it’s not the conclusion of a thought process, it’s an emotion, one in which nature has invested heavily, and having pain after pain for a long time, of various kinds, can cause a “learned-helplessness” reaction related to depression, but even then, fear doesn’t go away.  One is always afraid of yet more pain.  One is afraid of facing another day with the same old pain.  One is a afraid that one is going to live a long, long life and never for one day of the rest of it not be in significant pain.  One is afraid that one will also be alone for the rest of that long life, with no comfort and little joy.

I don’t know what’s going on.  I mean, I’m writing this post, of course, that’s going on.  But I don’t know what else.  I’m falling apart, I think.  I’m breaking down.  Like I said yesterday, I can practically smell the melting plastic and circuitry in my mind.

Whatever.  Nothing I do or say matters, nothing I am matters.  I don’t know what I expect to happen because I’ve written about this.  I feel a bit like Frodo crying out for his friends in “Fog on the Barrow Downs” after they’ve been separated, but the only answer I will probably get will be from some foul undead spirits.  There’s no Tom Bombadil out there to come rescue me.  I wish there were.  And I could really use Elrond’s healing power, or even Aragorn’s.

That’s enough.  Go on, go read something else.  No one wants to feel miserable, and that’s how I tend to make people feel, so you should probably find something comical or at least entertaining to explore, and just try to have a good weekend.

*Honestly, no pun intended.  I didn’t even notice it until the editing process.

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You blogs, you stones, you worse than senseless things!

Hello and good morning.

It’s Thursday, and here I am writing another blog post to prove that yesterday’s was not a fluke nor a false flag nor any other term beginning with “f” other than perhaps “fair play”.

By the way, I may have previously used the Shakespeare-based title above‒it’s just so easy to make, and I’ve always loved that line from Julius Caesar‒but I don’t care.  It’s too perfect for my current circumstances to miss the chance now.  I mean, blogs and stones?  Come on!

I’m on my way to the office, and speaking of stones, I am far from being over the process of having, let alone passing, my kidney stone.  I’m trying not to overuse my pain meds, largely because they tend to have diminishing returns, and I want them to work when I really need them.  Also, they are quite…well, constipating.  Now, it’s true that I didn’t eat all that much over the course of the early part of this week, and of what I did eat, much of it didn’t stay down.  Still, I went Sunday through Wednesday without doing anything but peeing.

I have been doing a lot of that of course, deliberately.  It is not pleasant.  The pain is not like it was Saturday night, Sunday, and Monday, but it still doesn’t let me forget.  And, of course, we’re moving office this week, and that adds extra hecticity*.  

I don’t know how much you all would want to hear (that I haven’t already said) about what went on in the hospital.  I did talk about it a great deal yesterday.  I suppose I’ll play it by ear and just bring up things that occur to me as interesting.

I have not yet made my follow-up appointments, but I need to try to do so today, if I can.  Even writing about it makes me feel very tense and anxious.  I know there’s no good reason for feeling anxiety and resistance toward such things, but at least now I know something of the cause:  It has to do with ASD, with possibly some pathological demand avoidance, but also just with associated, fairly severe, social anxiety.

But I have to try, and I want to try.  I’ve been rather impressed by the hospital and its associated staff and attending physicians and their network and such, and I would like to get myself plugged into their system if I am able to do so.

They seem quite generous and caring as a tendency and policy.  They do everything from providing free meds for when you go home to getting you a Lyft if you don’t have a ride.  I think that’s pretty nice.

It was oddly nostalgic, being in the hospital.  Well, I suppose it’s not so odd.  I spent much of my earlier adult life in and around hospitals, from med school to residency to medical practice, nineteen years in total.  I guess I miss it.  It was nice working with intelligent, disciplined, professional people at all levels and being able to relieve and even prevent suffering, all while getting a good amount of intellectual stimulation in the form of understanding and solving complex problems.

I don’t expect that I will ever do it again, though.  There are ways, I am sure, to fight to try to get my license back and so on, but it’s not the sort of process for which I have any avidity.  When civilization falls apart, as it appears to be about to do, I can perhaps find a time and reason to lend my skills to the survivors, if I am one of them, which seems unlikely.  Otherwise, I don’t feel a lot of enthusiasm for supporting the world as it is.  Humans have revealed themselves over and over‒by and large‒to be inadequate to tasks that require actual cooperation and consideration and compassion and humility.

It’s ironic that humility is so challenging for humans.  Given how profound their limitations and failings are (despite undeniable strengths, as well) you might imagine that humility would be easy.

But somehow, the default setting even of those who try to be humble is to characterize themselves as absolutely worthless‒which from a certain point of view is always true, but which misses the point of real humility.

Humility is not self-hatred or self-contempt or self-destruction (from which, to some, the only rescue is through some imaginary supernatural being); it is a recognition that one is and will always be limited, capable of error, and incapable of being perfectly objective about oneself and the nature of one’s existence.  With such self-knowledge, one will tend to be better able to make good choices about oneself and others.

Maybe I should try meditating again, to try to keep myself calm when possible.  It might help with my serious social anxiety.  It would probably also help me to get less upset over the idiocy of the current administration**.  And perhaps my mind would then be more useful overall.

Anyway, that’s enough for now.  I hope you all have a good day and try not to get too upset, yourselves.  The world is going to end soon, but that has always been the case‒it’s just a matter of time scales.  On other scales, even a single mayfly’s life is practically eternal.

TTFN

*I think I made that word up, but it seems too good not to use.

**It would be nice to administer a fair amount of current to the members of this US administration, though‒alternating current, with enough voltage and amperage to cause serious discomfort, but not enough to kill them…at least not quickly***.

***See?  Upset.

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I am not Thorin, son of Thrain, son of Thror…

…nor am I King Under the Mountain.

Nevertheless I return.

I hope no one was too worried about me these last few days, though I have probably given you cause to worry.  Honestly, though, I was in a fairly dire situation.  On Saturday night/Sunday morning I woke up just after midnight with what started as right lower quadrant abdominal pain, which at first I thought was some “normal” GI cramping, maybe from something I ate that I shouldn’t have eaten.

As it rapidly worsened, I became more concerned.  I checked myself for fever (didn’t have one) and for abdominal tenderness, including rebound tenderness.  That wasn’t really there either.

If you are a medical professional, you might recognize that I was worrying about my appendix.  And though the location was right (lower quadrant, ha ha), there were some things missing.  Still, I was concerned, and the pain was worsening.

To make sure I wasn’t being reckless or silly, I bothered my poor sister with a phone call in the middle of the night (she was very kind about it).  She asked me a few questions, tried a little light-hearted banter to try to relax me (I was, regrettably, not amenable, and I fear I might’ve been rude).  The final thing she said was to point out that I have chronic, often severe, pain.  If this was much worse than that‒and it was‒then I needed to get it looked at.

She is wise, my sister.

I had to finish the call quickly and call 911 because the pain continued to increase.  There was no other credible option but an ambulance.  I don’t have a car, but even if I did, I was not capable of driving at all, let alone safely.  There was no one who could drive me, nor was I going to call an Uber or Lyft.  The delay in that, both at pre-pickup and at the hospital, would be intolerable.

As I tried to keep speaking with the 911 operator, I went outside, onto the back patio, where I eventually laid down on the concrete, confusing at least one cat to a level that would have made Monty Python proud.  I figured it would be easier to get to me there, outside.  The lying down part was because I didn’t want to sit or stand, and didn’t care about getting dirty.  I also didn’t have any shoes on.

Then it occurred to me that I didn’t want to awaken my housemates, who have dogs that would bark if people walked up beside the house with a stretcher, so I made my awkward way to the front of the house, to the sidewalk, where I sat down, first with my back to the gate post.  Then the first real right mid-back (or flank) pain added itself to the mix and I think I cursed as quietly as I could and slumped to my side, trying to ease the pressure.

The 911 operator told me the EMTs were just arriving, and she was right.  I thanked her and said goodbye (my Mom and Dad did not raise their children to be rude to those who legitimately and professionally help others in emergencies).

The EMTs were very professional, and they were the first to recognize what turned out to be the case, though the ER doc also took one look at me and ordered an immediate non-contrast abdomen and pelvis CT which revealed the specifics of what he and the EMTs had clearly recognized:  I had a kidney stone in my right ureter.

So, to bring an already drawn-out explanation to a provisional conclusion, that’s why I’ve not written a blog post either on Monday or Tuesday of this week.  I’ve been in a torture chamber of my own body’s making.

Still, there are some compensations.  One gets pretty thorough evaluations when in hospital.  I learned, for instance, that though my blood sugar was rather high at first, largely due extreme physical stress, it came down to just above normal.  A hemoglobin A1C that was added on showed that I was high normal/low abnormal, or pre-diabetic.  Diabetes does run in my family, and also, I’m sure I have chronically elevated levels of cortisol and related hormones in my body that make such things worse.

Of more mild interest was that I had lowish hemoglobin and hematocrit, and my blood concentrations of hemoglobin and RBCs were low.  In other words, I was borderline anemic.  This was a mild surprise until I thought about how much aspirin I take.  As part of taking that aspirin, I also take acid blockers to protect my stomach (and to combat GERD).  So, from two ends, that can explain a bit of anemia:  some low-level blood loss over time from aspirin’s antiplatelet effects and probably chronic gastritis, and somewhat decreased iron absorption, since the acid in one’s stomach facilitates that absorption.

I know this much in such detail because of a cool service the hospital offers, which is an app on which you can access your test results and (to some degree) other medical records.  It’s really quite nice, because too often, people have only vague ideas of what their tests mean, and they arrive when the occasion might already be fading in their minds.  That doesn’t happen to me, of course‒mine is the superior mind, like Khan, who was even more in his own way than I tend to be.

Ha ha.  I am of course exaggerating, and not just about Khan being more in his own way than I am.  This app’s data is great information to have.  They even give you little notification dings when new stuff is added.  It can be handy.

I’ll go more into what happened in the hospital at another time, but I will give a spoiler or two now:  I have not passed the stone, but I have a stent in my right ureter and I am on meds to try to help that to let the stone pass.  My pain is not completely gone, but there is only a bit of right flank ache and spasm sometimes when I use the bathroom*, and a fair amount of blood and irritation in the urethra from the stent placement.  That’s always fun.

Also, I kind of pushed to get out earlier than they really wanted me to leave, because I have to do payroll for the office today.  It would be possible for my coworker or my boss to do it, but when you’re doing something you don’t usually do, there are much more likely to be errors, and I don’t want people to be accidentally underpaid (or overpaid).

Even before I finished the first draft of this blog post, I already found two places where that would have happened had I not come back.  So, while I was probably somewhat foolish‒I’ll tell you later about another extremely foolish thing I considered doing when my pain first subsided a bit on Sunday‒I am also confirmed in my judgement.  And the needs of the many (ceteris paribus***) outweigh the needs of the few or the one.

One final thing, the most important of all things, before I go.  While I was in the hospital, my youngest, Ezra, having followed my little comments on Threads or Instagram, realized that I was in the hospital and why and contacted me and came to visit me in the hospital!  That’s right, for the first time in almost 13 years, I got to hug my child.  They also made plans to get together with me more regularly.  

So, let me address the notorious question:  Is a kidney stone the worst pain I’ve ever experienced?

Absolutely.  And I’ve been through open-heart surgery and fractured my right scapula and had back surgery and “failed back surgery syndrome”.  We ASDers, supposedly, do not like to exaggerate if we can avoid it, but there was at least one time, and I think several, when I was asked what my pain was on a scale of 1 to 10, and I said 10 with no hesitation.  Sometimes I only said 7 or 8.5 or 9 or 9.5.  I try to be as precise as feasible.  But there were 10s in there, and I normally treat 10s on such scales like massive objects trying to go the speed of light, or probabilities in the real world trying to get to 1.

Was it worth it to get to see my child again?  Well, I would be afraid to offer to experience it again with that outcome in mind, but I would be willing.  Yes, it was worth it.

I will speak more about this tomorrow.  Thank you for your patience and apologies for any anxiety you might have had on my behalf.

*Perhaps because I’m not using it for that for which it is intended, which is, obviously, to bathe**.

**That’s an attempted joke.

***In the real world, ceteris is almost never paribus.

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The blogger, learning, physic, must all follow this, and come to dust.

Hello and good morning.

It’s Thursday.

I was inclined to make that the whole post today, just, “Hello and good morning.  It’s Thursday.  TTFN.”

I still don’t think I’m going to make it much longer than that.  I don’t have anything new to say.  Everything I have to say has surely already been said here.

Nothing is any better than yesterday, or the day before, or the year before, or the decade before.  I have no reason to expect that anything will be better tomorrow.  It’ll just be another day gone by, so I’ll be a little more used up and fatigued and probably a little more pessimistic.

I’m waiting for the train now.  I expect today to be pretty much as always.  There is nothing to which I look forward.  Music isn’t interesting, whether playing or listening.  I can’t eat foods that give me any kind of even momentary surge of pleasure, because those foods also tend to give me GI problems (and then apparent metabolic problems).

I don’t really even know the full state of my physical health; I haven’t been to see any kind of doctor for several years, maybe almost 10, not since the time when I went to an urgent care because a respiratory infection I had was persisting longer than expected.  They found that I was desatting* a bit, so they told me to go to the ER, where I was admitted.  While I was there, they did an echocardiogram, and supposedly (I never saw the actual echo myself) there had been a slight…I don’t know, a recurrence, a reopening, a relapse of the ASD** that I had that required open heart surgery when I was 18.

I was supposed to follow up on that recent echo, but after my infection was treated, I felt much better, and I didn’t and don’t have insurance.  Honestly, the thought of going through all that shit with my heart again now, almost 40 years after the first ordeal, is not acceptable.  Besides, honestly, there wasn’t and isn’t any reason for me to try to preserve my life and/or health.  I’m disappointed the thing hasn’t caused me any problems so far.

Many days I wish I would just have a heart attack or something, or get a severe infection.  After my little semi-humorous footnote yesterday, I thought about just trying to inject some shall we say less-than-sterile liquid into myself, and I even ordered some syringes from Amazon for that purpose.  If I do still have any kind of irregularity in my heart, that would provide a good nidus for the beginning of an endocarditis.

I may do that.  It’s simple and straightforward, but it could be a very long process.  It’s probably not a very rewarding option.  It’s too slow and too reversible.

I’m so exhausted.  I’m so tired, mentally, physically, and “spiritually”.  I wish I could just go into a field somewhere and collapse and just lie there not moving until the elements took me.  And I feel so tense and angry so much of the time.

Never mind, this is all stupid.  Sorry, again.  I’m sorry that I’m whining so much.  Yeah, yeah, life is hard, the universe is hard, the world is idiotic and no one is in charge or in control of much of anything, but it’s nothing new.  Humans‒at least some of them‒do have the potential to do great and relatively enduring things, but all the other idiots who want to think of themselves as special and important to some divine creator, but who are, ironically, much more akin to chimpanzees and savages than are those who reject superstition, get in the way almost inevitably.

Anyway, enough of this.  Again, I’m sorry.  You’ve been kind and optimistic to read my daily excretions, so here’s a slight break for you.  I hope I won’t write a post tomorrow, but I probably will.

TTFN

*Short for desaturating:  when the percentage oxygenation in the blood drops below normal, healthy levels.

**Atrial Septal Defect in this case, not Autism Spectrum Disorder.  Apparently it wasn’t much more than a patent foramen ovale at this recent stage, but that still shouldn’t be there.  I mean, my heart surgery was done by the guy who literally wrote the textbook on the procedure.  That was in 1988, of course, so things have surely improved, but still.

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Morose, meandering musings of a misautonomous moron

Every time I write a blog post on a Wednesday morning, I feel the urge to include a reference to the Beatles song She’s Leaving Home, as in “Wednesday morning at five o’clock as the day begins…”

There, see, I just did it again.  At least it was self consciously done, not some quote put in as if it were my own words, intended only for those “in the know” to recognize.  I guess that’s a way for me to feel vaguely clever‒and sometimes funny‒while actually just following the often irresistible compulsion to quote shit* at every turn.

In high school, when I was a senior (and maybe when I was a junior?) I was pretty confident in my place as one of the “leaders” of our school orchestra, and I used to go to the orchestra room first thing in the morning before school, usually arriving before the teacher, and then I hung out there (with other orchestra members and friends who arrived a bit later) until time for classes to start.  While there, pretty much every day, I would write a quote from something‒Shakespeare**, Tolkien, Stephen R. Donaldson, Poe, etc.‒on the board.  I even won the “Dusty Cello Award” at our end of the year orchestra party because of it.

I’ve always had that habit of quoting books and movies and plays and shows and so on, and even doing the voices of people when I could.

I think reading fiction in particular was very good for helping me to understand what goes on in other people’s minds, at least in principle.  But I also just liked being able to go to those other worlds and other lives.  It’s better in general than watching TV or movies, though the latter are easier and also easier to enjoy with other people, if you have other people with whom to enjoy them.

Anyway, that’s neither here nor there.  My past and my thoughts about it are of no moment to anyone but me, and even I find them boring.  It’s just that they’re all I really have.

I’ve tried to interact with people to some degree online, but that just gets me weird feedback, like getting almost 3,000 “likes” in less than 24 hours for pointing out in a comment that the biblical Jesus would not approve of a particular, supposedly religion-based, exclusion reported in a thread about a shopkeeper toward a trans woman (ironic for a nonbeliever to be pointing out Jesus’s very clear attitudes, but I am one who remembers characters and quotes).

On the other hand, when I noted yesterday on the same site that the office where I work was 3.4 miles from the nearest “beach” (and a fishing pier) and I thought it might be good to walk down to the shore, kick off my shoes and socks, and just start swimming east into the Atlantic and not come back (pointing out that it would leave no need for cleanup, and it wouldn’t mess up anyone’s day, or anything of that sort) I got 3 likes (after quite a while) and only one comment by a person saying she doesn’t like to dwell on such thoughts.

This is, supposedly, Mental Health Awareness month, but I don’t know what good such a thing does, especially if such is the response to someone expressing suicidal ideation.  I’m aware of mental health in general, but it’s been a long time since I had any personal experience of mental health (if I ever have).  It’s been at least 13 years since I’ve had even moments of mental pseudo-health.  That was the last time I saw my kids in person, for one afternoon.

I’ve only recently realized that it’s now been a longer time since I saw my children than how old they were when I last saw them.  So, I’ve missed more than half of their lives now, and that fraction is only going to get bigger.

What would I possibly know about mental health?

Physical health is not my biggest attribute either (not many people had open-heart surgery at age 18).  But I know it gets very boring for people to hear about‒for instance‒the fact that I feel right now as if my entire right side from the lower ribs on down to the ball of my foot feels as though it’s filled with molten lead, which is quite painful, in case you were wondering.  But that’s always the way it is, for much longer than 13 years (more than 20, actually) and though it waxes and wanes and shifts locations, pain never fully goes away while I’m conscious (and probably contributes to the worsening of my insomnia).

Anyway, I know, Waah, waah, waah, shut the fuck up, Robert, no one wants to hear all this shit*** over and over again!  It’s tiresome to face nothing but complaints.  I’m sorry.  I’m very, very sorry.  I really am.  To everybody.

I really should just try that swim.  There isn’t much to prevent it.  I’m not particularly afraid of drowning (other than in an instinctive sense) though I do have misgivings about sharks and other sea creatures.  That’s probably silly, since, even in shark infested waters, statistically people are far more likely to drown than to be attacked by a shark.

I have to do something, or at least to have something done to me.  I don’t have the will or the wherewithal to take action to save myself in any way (and wouldn’t know where to start if I could) but I don’t have the strength to keep living, not for much longer.  And I don’t have any good reason to keep living.

But that same problem with “executive function” or whatever it is makes it hard for me to take action to kill myself.  So, for the moment, I just hurt myself to try to distract myself from other pain and to punish myself for being such a lame and shitty person, but weirdly, I have a hard time making such things hurt very much anymore.  Maybe I’ve always got too much pain medication in me, but I just don’t realize it because it doesn’t do all that much for my back and joint pains.  It’s weird.

Then again, I’m weird, so I guess I shouldn’t be surprised.  Like the song says, “I’m a creep.  I’m a weirdo.  What the hell am I doing here?  I don’t belong here.”

I don’t belong here.

*This is the nonjudgmental version of the word “shit”.  It’s more or less synonymous with “stuff” but it flows better (so to speak).  I don’t mean to imply that the song to which I refer is in any way shit.  It’s one of the most beautiful songs I know.

**Yes, I loved Shakespeare even back then.

***Here, the use of “shit” is much more in the derogatory, excrement-related vein.  Though if someone had excrement in their veins, they would be in big trouble, because that excrement would be carried to the lungs and then heart and could cause horrible endocarditis and pneumonias and so on.

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No songs or pictures, just pathetic words of despite and destruction and despair

Well, it’s Tuesday.  I think my stunt (or whatever you might call it) yesterday has failed miserably.  I don’t know why I’m surprised, let alone disappointed.  I’m either just not good at that sort of thing, or I’m just not worthy of that sort of thing.

I don’t know if that quite made sense just now.  I’m apparently very bad at getting my feelings across, on top of the fact that, a lot of the time, I’m not quite sure specifically what I’m feeling.  They’re just a bunch of swirling, overpowering sensations that don’t ever seem to show on my face or in my voice.

Anyway, I have no subject on which to speak (so to speak) today, and it doesn’t really matter, because I seem incapable of conveying anything important to anyone for whom it could possibly matter.  It’s fine.  As Thomas Covenant said (before he ever went to the Land) this is what people are like:  futile.  He would change his point of view on that after many grueling and heartbreaking yet inspiring experiences, but I think he was onto something.

I’ve always had a bit of sympathy for Lord Foul in those books.  Part of this was just because he was so eloquent‒I’m a bit of a sucker for a good speaker‒but especially after I learned that he was trapped inside the arch of time, inside the Land, and he literally cannot possibly die or be permanently defeated while trapped there.  He hates everything in the Land and its world not just because it’s his nature to hate, but because he is trapped by and with everything there, potentially forever.  So if he is ever to be free to go anywhere else‒even to die‒he has to destroy the arch of time and thus that world.  It is personal to him, of course‒he’s not called the Despiser for nothing‒but it needn’t be.

Anyway, I am not trapped in the arch of time, or at least I’m not constrained from ever dying within it.  Or maybe my own arch of time is just that span of moments that began at birth (or conception) and will reach its other end at my death.  If that’s the case, I wouldn’t need to destroy the arch, just…complete it.

This is all metaphorical bullshit, I know.  Don’t misunderstand me.  I don’t have any misgiving that any of that could be real.  But the stories were good, at least the first two trilogies; I’ve never finished the last 4 books.  There is no denying that The Lord of the Rings is better, and much more inspiring and uplifting.  But the Thomas Covenant books do a better job of capturing the horror and despair and terror of not just fighting evil, but of being evil.

That’s probably why it appealed to me.  My innate tendency is to be, well, perhaps not evil, but destructive.  I feel terribly angry so much, so often, and I just want to break and burn this world, this life, that is so bloody uncomfortable.  But I know that I don’t have any business hurting other people, almost none of whom are ever deliberately hurting me.  So I bottle it up and try to calm it, and I don’t act on it.

But like I said in my reversal of Nebula’s last line to Drax in Guardians of the Galaxy Volume 3, I wasn’t born to be a dad, I was born to be a destroyer.  I’ve just always tried to fight against that, and I have in some small ways succeeded.  I even swung things in the other direction at times, becoming a doctor and a dad.  Of course, I eventually failed miserably at both of those things, as usual, but I did some good in the meantime.

And there is one being I have a proprietary right to destroy.  I just need to quit the foreplay.

Anyway, this has been weird, I suspect, but what else is new?  I hope you all have a good day.

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Six songs to try to express a little bit of how I am doing

I don’t have the energy or will or “spoons” to write much today.  I’m just about ready to tap out.  My “executive function” is so low that I think the only thing I’m capable of executing is myself, and even that is difficult.  I certainly don’t have the capacity to act to save myself.  I keep trying to express just how fucking horrible I am doing, but I don’t think it’s coming across.  I guess it doesn’t matter much.

Anyway, today I figure I’ll embed some songs I’ve recorded myself performing that do something to convey my difficulties.  Some are originals, some are covers.  I don’t know if they will work, either.

It doesn’t really matter.  I don’t have the will to take any action about anything.  I can only do what I do every day, automatically, and I am getting closer and closer to being unable to do even that.  I think I’m pretty nearly completely out of gas, and I am basically only a burden to the world.  It doesn’t help that we’re moving offices this month, which I hate, but that’s just a little insult to add to the injuries that are leading to the end of things.

Anyway, here are the songs.

It’s not a perfect expression or set of expressions, but it’s about all I’m capable of, even after a weekend “off”.  It doesn’t matter.  I’ve basically given up.  I’m so tired already and it’s just Monday morning.

I hope you each have a great day, individually, and that you all have a great day, collectively.

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Dolly on the trolley found a seat, by golly

It’s Friday, and I am not expecting to work tomorrow.  In fact, I think if I were asked to work tomorrow, I would have to refuse.  If someone tried to coerce me with a gun to my head, I would probably just tell them to pull the effing trigger.  I might just try to fight them, frankly, and force their hand, because if someone threatened me with deadly force, I wouldn’t feel any real compunction about doing my best to kill them, instead.

My point is, I’m not going to work tomorrow unless lives depend on it (which seem quite unlikely).  Even then, it would very much matter whose life was in the balance; there’s a moral triage that would need to be done.  There are people whom I would not be willing to put myself to any significant effort to save, even if I were the only one able to do it.

That’s not true of most people, though.  Despite my talk in yesterday’s post, I wouldn’t be inclined to let any of the vast majority of people on the planet die just so I could avoid going to work.  But there are people about whom I would consider it a lovely opportunity, if it happened.

This is all so stupid, I’m sorry.  It’s just an absurd notion, though I know that sometimes one can imagine physically unlikely situations in order to clarify moral concerns, such as in the truly blunt thought instrument of the “trolley problem”.  I think that scenario is so absurd and contrived that I have a hard time taking it seriously when I hear or read it.

I mean, how did I come to be put in charge of this trolley lever?  I certainly didn’t ask for the responsibility.  And then there’s the whole “fat person” variation, where you can push a heavy person onto the track to stop the trolley, saving the 5 people down the way.  But if a trolley can be stopped by one person, however large, then how could it have the power to kill all 5 people working down the track?  Is that one person literally larger than five track workers?  And are the track workers really so oblivious that they can’t see or hear the trolley coming?  It can’t be going very fast, since kinetic energy scales as velocity squared, and if it was going very fast, the heavy person wouldn’t stop it.

Also, what about the people in the trolley?  What about the driver?  Are they all just oblivious?  If I can see the problem, why can’t the driver?  If the heavy person is pushed and stops the trolley, will it derail?  How many injuries and potential deaths will be caused by the sudden, catastrophic stopping of the trolley?  And where are those responsible for the scheduling and routing of these trolleys?  And where is the foreman (foreperson?*) responsible for scheduling the track work?  Why am I being thrust into a situation where I need to fix their failures?

More importantly, how did I get sidetracked (ha ha) onto the stupid trolley problem?  What is my idiot mind doing today, anyway?

I’m so beat right now.  We’re going to be moving offices within this next week, and I hate the process of moving and the need to adapt to a new place.  It’s so irritating and stressful.  It would be one thing if there were compensations of some kind‒not monetary, but perhaps an improvement in my commute.  Unfortunately, the new location is barely different from the old, just a block or two away.

I also have accumulated a fair amount of stuff in the office.  I’m tempted just to throw all of it away, including my guitar, my science books, my drawing supplies, all of it.  It’s all just going to lie fallow, and will simply act as a constant reminder and reproach about all my various failed endeavors, which are legion.

Yesterday morning, I forced myself to pick up and strum around on my guitar at the office and sing.  I literally had to force myself.  I got bored after about three or four songs, though it was nice that I didn’t need to look at the chord sheets or anything for most of them.  The tuning didn’t require much adjustment, which points toward how consistent the temperature in the office is.

And here I go again, just meandering in my thoughts, not giving any kind of consistent output.  I’m not sure if any of this even makes sense.  It’s almost like free association, as in the old Freudian style psychoanalysis.  I suppose this blog provides a slightly pertinent data point about just how useless that endeavor was, since doing this has clearly not helped my mental health (well, maybe I would be even worse otherwise, but at the very least it has failed to get me into a healthy mental state).

Okay, that’s enough idiocy.  I’m past 800 words, and I doubt more than one or two people will really read this whole thing (you have my admiration, oh intrepid souls).  I hope you all have a good day, a good weekend, and as good an every day after that as you can.

*I raise the question because I’m led to understand that, in its origins and original use, the word “man” was sex/gender neutral, and just referred to a person.  I may be wrong about that, though.

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It’s the end of the month as we know it

It’s the last day of April in 2025, which means tomorrow is the beginning of May.  This is also the last day of the official Autism Awareness Month, and tomorrow begins the official Mental Health Awareness Month.

That last term is a bit odd.  If mental health is the norm, we don’t really need to be aware of it, except perhaps to be thankful if we have it (I certainly don’t).  It’s the lack of mental health‒you know, mental illness or even mental injury‒that we would like to be aware of and make better.  But I guess some people feel that’s too stigmatic or negative or something.

I think that’s silly.  Do we euphemize cancer?  Not really, not when we’re dealing with it seriously.  All the cancer awareness things slap you in the face, and they more or less say, it’s cancer, take it seriously, we want to fight it.  But what does it mean to be aware of mental health?  We don’t want to fight that, we want to fight for it.

I’m aware of mental health as a concept, of course, though even there, things can be a bit nebulous.  I guess health in general is just the notion that things are functioning more or less as they are supposed to function.  But that allows a fair bit of leeway.  It’s also somewhat relative.  If it were “normal” to be as healthy as Captain America, for instance, Usain Bolt might be considered a bit sickly, and most of the rest of us would be functionally disabled.

It’s hard to convince oneself that the average person, in America, at least, is as mentally healthy as one would like them to be.  I suppose that shouldn’t be too surprising.  Mental health (or the relative lack thereof) is measured largely by its interactions with the surrounding civilization, and that has been changing quite rapidly, from any kind of evolutionary standpoint, especially in the last few centuries, and especially in the last few decades.

Small wonder our brains/nervous systems often don’t function optimally in this realm.  The human (and humanoid/replicant/changeling/alien) brain is remarkably adaptable, but it is not a blank slate upon which just anything can be written at will.  There’s plenty of hardware that’s specific to certain kinds of functions, and there are read-only aspects of the operating systems and even the user interface (which we call consciousness when it’s combined with something akin to the Windows task manager).  We can’t rewrite the firmware yet, and we may never be able to do so.  We have trouble even changing current programs or loading new ones.

Well, that was an unplanned digression…which may be a redundant term.  Are planned digressions even truly digressions?

I was mostly just thinking this morning about what such a pair of months might mean to me.  Both of them are pertinent, since I have issues relating to both “awareness” subjects.  But so many of the things I see shared, particularly about “mental health”, are things I already know, but which have obviously not been adequate to improve my mental health.

Heck, I remember paying real attention in high school in our psychology lessons, reading all the abnormal psychology stuff, knowing that there was something off about me, but not seeing any good answers.  Of course, this was in the 80s, in a public high school, so the material was pretty simplistic and out of date even for the time.

I also used to own books about psychology, self-hypnotism, self help, lots of related stuff.  I didn’t know what it was with me, but I knew that I was strange.  I was pretty good at pretending to be “normal” in a sense, but a lot of even that was just me owning and sometimes exaggerating my odd habits as if they were normal things.

It helped that I was known to be smart, and also that I was raised to be polite and not to be mean or cruel or condescending to people.  That was pretty easy; while I was good at some things, there were many things with which I had difficulty, and I knew that only too well.  I still don’t feel very comfortable riding a bike, for instance, and many athletic pursuits requiring agility have always been hard*.  I also was truly abysmal at dealing with girls/relationships.  I had no idea how really to interact in any kind of would-be romantic way, nor to recognize if someone liked me, nor to let anyone know that I liked them.  I’ve not grown out of that problem.

Anyway, so I’ve been dealing with issues of mental health for as long as I can remember, including a time when I was really quite young and I almost made myself unable to talk after getting upset about some interaction and telling myself that I just wouldn’t talk anymore.  When I finally (after several hours) decided to talk again…I almost couldn’t do it!  I really had to force myself, and almost panicked before I finally was able to squeeze out some words.  That was frightening.

I don’t know if I’ve ever mentioned that to anyone before.

So, anyway, I’ve been weird my whole life, and I’m no less weird now, but now I am alone, and I have lost pretty much everything I worked very hard to get or be or create as well as nearly everyone I care about most**.  I recognize that it’s not impossible that good things will happen for me in the future.  But I can see pretty clearly that it’s really unlikely.  What could lead me to think otherwise?  Only some profound delusions could do that, and though I cannot rule out delusions in myself, if I have them, they are not of the optimistic variety.

Geez Louise, this is such a pointless post‒just like my pointless life.  I need to wrap it up and be done already.  I hope you have a good day.

*It turns out at least some of this was related to my congenital heart defect, which was discovered when I was 18, and for which I had open heart surgery in the summer after my freshman year in college.

**By this I mean they’re not around, and most of them don’t want to be around me, not that they’ve died‒except my parents, of course, but that was basically natural.  Still, there was a long stretch when I didn’t even interact with them.  It wasn’t as long as the time since I last saw my own children, but it was still very painful.