ASD

by

It seems appropriate that coughin’ and coffin sound alike.

It’s Monday again, though I know of no one who asked it to be.  I am not going to write much today (I suspect) because I am quite under the weather‒I’ve been dealing with some form of bronchitis that started Friday, and I’m not feeling much better yet, though my oxygen saturation seems good, and I have no fever (but then again, I am always on NSAIDS and acetaminophen, so it’s hard to be sure I haven’t just suppressed a fever).  By rights, I should probably not be going into the office today, but my coworker is out of town until tomorrow, so basically, I’ve got to keep the office running.

I do have masks to wear, and I don’t just mean fun and/or scary ones.  Neither do I refer to “autistic masking” which is what many autistic people do to fit in with other, neurotypical people.  Lord knows I’ve always tried to fit in, and I definitely put on “masks” and tried to shape myself to please those around me.  I feel almost that my autism presented a little more the way it does in girls than in “traditional” autistic boys, at least as discussed by other people with autism.

Anyway, I’m not really doing this blog as a venue via which to discuss ASD.  That must be the case, since I didn’t even consider the possibility before the last few years, and this blog has existed for much longer.  I suppose it might be interesting for someone (but not me!) to look back at my older posts and see if there are any hints about ASD in the way I write or discuss things.  I doubt that I’m interesting enough for anyone ever to do that, though‒I certainly don’t find myself interesting enough.

It may go without saying that I did not play guitar or go for any walks except to the convenience store this weekend.  I was mostly just laying around and trying to rest.  It’s a bit annoying that I still didn’t sleep well, and only stayed asleep for a while under the effects of delta 9 gummies and 2 Benadryl.  I slept a little more than usual, but of course, it’s not really restorative sleep.

I wonder what it is about the autistic brain that leads to the tendency to sleep poorly.  Is it atypia in the hypothalamus, or are the effects on the amygdala leading to hypervigilance which is consistent with my tendency?  I don’t know for sure how well the neuroscience of autism is progressing, but I guess I could get on Google Scholar and/or check the preprint servers.

Anyway, I think I’m pretty much done for right now.  I’m really very tired and worn down.  I guess I’ll be talking to you all tomorrow, though it’s less likely that you’ll be talking to me.  In the meantime, if you’re able, please try to have a good day.

by

When we fight reality, reality always wins.

It’s Tuesday morning now‒which, fortunately, as far as I know, has never been described as “never-ending”.  Alas, the same cannot be said of Tuesday afternoon.  However, since we are not still stuck in the last Tuesday afternoon‒or indeed in the very first Tuesday afternoon‒then we have to conclude that the line “Tuesday afternoon is never-ending” from the Beatles song Lady Madonna is a poetic figure of speech.

That’s weirdly frustrating for me.  It reminds me a bit of how I remember reading that Tolkien was frustrated with the play Macbeth because Birnam Wood didn’t actually come to Dunsinane, signaling Macbeth’s imminent defeat*.  Tolkien didn’t see why, in a play that clearly involved the supernatural, the wood could not literally come to Dunsinane.

Of course, in the fullness of time, in his own work, the Forest of Fangorn really did come to Isengard, and to Helm’s Deep.  It’s one of the best moments in The Lord of the Rings.

How did I get onto that subject?  Or, as Théoden asked, “How did it come to this?”

Now I’m suddenly thinking about the moment when Théoden, despairing, asks (in the movie) “What can men do against such reckless hate?”  It’s a real moment of doubt and pain, but Aragorn is there to support his spirit.

And that makes me think of doing a “parody” version of Sympathy for the Devil, in which we would have the line, “I was ‘round when Théoden had his moment of doubt and pain / Made damn sure that the uruk hai met our swords and sealed their fate.”  It could be called, perhaps, Sympathy for the Ranger or Sympathy for the Strider or something like that.

We could have lines like “Just as every Noldor is a kinslayer, and all the Nazgul slaves / as East is West just call me…Aragorn, ‘cause Minas Tirith I will save,” or something along those lines.  It’s a bit silly and cheesy, I guess, but that’s okay; it’s a parody.  Anyway, I don’t think I’m actually going to try to produce a whole set of lyrics for it, but who knows?  I’ve done weirder things for more frivolous reasons.

As for what to do about relatively more serious things‒i.e., my diagnosis of ASD level2‒I still don’t know.  I don’t know how I’m going to go about following the recommendations in the report, such as they are.  Knowing at least some of the explanations for many of the difficulties I’ve had in my life, including my relatively intractable troubles with depression and with insomnia and social anxiety, is a good thing in and of itself, but it doesn’t necessarily give me any idea how to approach things from here.

In some sense, it is a little discouraging, especially regarding my depression and insomnia, since there is no cure for neurodevelopmental disorders; they are a product of the fundamental structure and function of the brain.  At best, they can be managed.  This also explains why many traditional or typical treatments for such things do not work well in those with ASD; evidently, for instance, cognitive behavioral therapy doesn’t tend to work as well for people with autism as it does for “neurotypical” people.  And I know that antidepressants have more limited efficacy as well.

This makes sense.  We commonly hear of how many of the treatments and scientific understanding of major illness were for a long time only studied in men, and women were treated the same way as males, until slowly, gradually, the medical community realized that many diseases present differently in women, and respond differently to treatment.

Well, autistic and other “neurodivergent” people are a much smaller portion of the population than women are, and we don’t know as much as we would like about psychiatric and related disorders and their treatment even in the neurotypical.  It makes sense that we should be somewhat behind the curve in even understanding, let alone knowing how to treat, psychological and neurological disorders in those with underlying neurodevelopmental conditions.

The universe is complicated.  Any attempt to make it seem or feel less so, as by following the “ideas” of demagogues and demonizing those who might disagree, is just going to leave one vulnerable to underlying, actual reality‒which is not merely a matter of perception.

The universe at large does not care what you believe.  You can definitely be killed by forces and things that you not only don’t understand, but in which you don’t believe, or about which you have not the slightest inkling.  As a particularly gruesome example, it didn’t matter whether JFK ever knew he was being shot at, let alone that he had been hit.  A person can die before they even know that anything is happening; they can be just snuffed out and gone.  Probably most people, and nearly all other animals, die not understanding at all what is killing them or how or why or what death is.

Such is the evenhanded dealing of the world, to paraphrase Ebenezer Scrooge.  The only thing we can do to armor ourselves is to try to understand as much about the universe as we can.  For one never knows what knowledge will be useful or even essential before one has that knowledge.  Greater knowledge is always worthwhile, all other things being equal.

Of course, all other things never really are equal, but that’s why it pays to learn how to solve partial differential equations.

That’s enough for now.  Have a good day if you can, please.

*Macbeth’s reaction when he receives the news that, apparently, Birnam Wood really has come to Dunsinane Hill, is to hit the messenger and yell “Liar and slave!”  I know I’m not the only one who thinks it’s kind of funny and also is an instance of one of the cardinal failures of literary and dramatic (and real life) villains:  they discourage their own people from giving them information by punishing them for delivering accurate but bad news.

by

(ASD 2) x 2

It’s Monday morning now, and it’s a new month, and I’m writing a new blog post, one that will‒or should‒not be like the old post.  Though, of course, superficially it will look like most of the others, and for someone perusing a bunch of them who does not happen to read English, there will almost certainly be no distinguishing characteristics.  Certainly there will be no meaningful ones.

Be that as it may, as of Friday evening, I have now received my autism assessment report.  It is official; I have been diagnosed as having autism spectrum disorder, level 2.

The level 2 part of that surprised me a little bit.  In case you don’t know‒and for most of you, there’s no reason why you would‒the levels of autism, not in order, are:

Level 1:  What would be called “high-functioning” autism by the hoi polloi, though that term is frowned upon by the “neurodivergent” community by and large, because it judges the quality of a person with autism by how well they can pretend to be someone without autism.  In any case, those with level 1 are people who have autism but are not significantly disabled by it, and are able to do okay on their own with minimal or at least fairly easy accommodation.

Level 3:  These are people who are more severely impaired by their autism, and are more or less dependent upon support from others; they cannot really function on their own at all.

Level 2 is mid-range (duh!) and is characterized by needing “substantial” or “considerable” support.  Here’s a quote from a web-search:  “Autism Level 2 means a moderate level of autism spectrum disorder (ASD), where an individual requires substantial support to manage social communication and daily activities, exhibiting more noticeable challenges in social interaction and repetitive behaviors compared to Level 1, but not as severe as Level 3.”

I guess my bias was that, if diagnosed, I would be level 1, since I do live on my own and I don’t really have any support.  On the other hand, there’s little argument but that my life is a complete mess, and it’s not improving.  So I guess I really don’t do so well on my own.  But it’s not as though I have any health insurance or any other access to support services to help me improve things.  Still, at least it explains a little bit about my intractable insomnia and depression and anxiety and so on, as well as all my many failed interpersonal relationships.

I don’t yet know whether this knowledge will make any difference for me.  I don’t yet know what I’m going to do with the result.  I am still digesting it.

There is, however, an amusing coincidence, if you enjoy such things*.  I was born with an atrial septal defect (a hole between the upper chambers of the heart) “secundum type”, that was repaired when I was 18.  In other words, that was “ASD” secundum type.  So, one might say, ASD type 2.

And now I have Autism Spectrum Disorder, level 2, so:  ASD level 2.

These are both official acronyms used by the medical community.  It’s nothing but a coincidence, of course, but it is a peculiar and slightly amusing one.  I have been diagnosed with ASD 2 in two different ways.  There’s only one of the two for which there was a surgical intervention that was essentially curative.  The other is something for which one just has to adjust and deal as well as one can.  Fortunately, I’m really good at adjusting to and dealing with just about anything that comes at me.

Ha ha ha ha ha!  That was a lie, obviously.  I don’t think I’ve ever been particularly good at adjusting to things, except perforce, which has certainly happened a fair number of times.

Anyway, again, I don’t know at all what I’m going to do with this information.  I don’t know how I could possibly actually seek, let alone obtain, any manner of support and/or accommodation, other than the basic stuff that happens more or less on its own.  I’m going to tell a few people at work, I think‒certainly the owner, though I feel a bit shy about that, but also my two coworkers with whom I am closest, one of whom has a child with autism.

I don’t know how much will change otherwise.  But I figured I would share this information with those of you who read this blog regularly‒a rarefied few individuals, I must say.  I guess I’ll be writing a post tomorrow, too, barring the unforeseen (a caveat that always applies).  In the meantime, I hope you all have as good a day as you possibly can.

*Well, the councidence’s existence isn’t actually conditional upon you enjoying it, but I think you know what I mean.  Please let me know in the comments below if you do not know what I mean.  I don’t like not being clear.

by

“…my mind is on the blink.”

It’s Monday.  I almost don’t know what more needs to be said.

I’m probably going to make this relatively short, because I’m having quite a bit of pain in the bases of my thumbs as I write this on my smartphone.  I took three aspirin* already this morning, but it certainly hasn’t kicked in.  If it’s not going to help my pain, I wish at least the anti-platelet action would make me have a massive GI bleed or something.  I know, it’s kind of gross, but it’s one of those things where no one can claim you’re malingering or lazy or whatever.  If you’re vomiting blood, only a fool could say, “It’s all in your head.”

Speaking of it being all in your head, though, it’s of course a worry that aspirin could cause a hemorrhagic stroke instead of a GI bleed.  Obviously, since my brain is my greatest strength, I would prefer not to have that happen.

On the other hand, it’s not as though my brain is my friend or anything.  It’s where my greatest difficulties lie, as well as my strengths, and those difficulties dominate most of my days and‒to say the least‒my nights.  I’m depressed and “anxious” and angry and pessimistic, and I cannot sleep properly, and I am in constant pain, and I also have all these attributes that led me to have my assessment done last Friday to try to determine if I have the second kind of ASD or not.  So I can’t exactly feel too worried about my brain.  I don’t even wear a helmet when I ride my bicycle.  If I get brain damaged, it seems like the least my brain deserves.

I’m tired.  I’m so tired.

I know there are people out there who are able to try to put the best possible spin on events, and who can honestly say that they love themselves, and that’s great.  I envy and admire that.  And I have tried very hard to develop those habits, through self-hypnosis and autosuggestion and meditation and even pharmacology, but I have not been able to alter my programming so far.  Maybe I need a factory reset or something.

Anyway, I’m supposed to receive my report about my autism assessment within a week, so I should have it by this Friday at the latest.  I can’t say I’m not nervous about it.

Well, I can say it, I guess.  “I’m not nervous about it.”  See?  But saying it doesn’t make it so, no matter how loudly you say it, or how often you repeat it, or what oaths you proclaim, or what authority you cite.  It doesn’t even matter if you really believe it, even if you believe it so fervently that you’re willing to die for the belief.

If that were any measure of truth, then suicide bombers would be more likely to be right than Nobel Prize winning scientists, and such people are not more likely to be right.  They are almost certainly wrong about everything important that led them to blow themselves up.  In fact, certainty of anything beyond literal mathematical and deductive, logical conclusions is the hallmark of a mind less likely to be right than would be a mind that is full of doubt and willing to criticize itself.

So, I am nervous, but there’s nothing I can do for now but wait.  In the meantime, I really should start writing on my laptop computer again.  This phone writing is losing what charm it had, since it’s making my thumbs hurt worse over time.

With that said, I’m going to end the first draft of this now.  I don’t have more to say that I’m sure I haven’t said elsewhere, before, probably eight-thousand times.  I tend to repeat myself a lot.

I hope you have a good day and a good week.

*Sometimes I feel that the plural of aspirin should be “aspirins”, but I think it’s generally just “aspirin”, like “deer” and “fish”** being both singular and plural.

**Sometimes one sees the word “fishes”, but that is generally used, I believe, when one is discussing more than one kind of fish.

by

It’s not the size of the blog post, it’s what you do with it

Well, it’s Saturday, and here I am writing a post of sorts, which means I am working today and‒of course‒I am still alive, at least by some definitions of the word.  I don’t think I could write if I were not alive.

I’m not going to make this very long today, since I’m quite fatigued.  I had my assessment yesterday.  It wasn’t any kind of ordeal or anything, but I was quite nervous.  I don’t have any idea what my results will be.  Well, okay, at some level they’re just going to be either positive or negative, but I can’t give any kind of objective assessment of the probabilities.  I’m too much in the middle of it, so I’m disrupted by my emotions.

I guess I’ll have to wait and see what the outcome is.  I don’t know what I’ll do (if anything) if it’s positive and I really don’t know what I will do if it’s negative.

As for other things, I don’t know.  I haven’t been walking really in the last couple of days, except of course basic getting around a room or something.  I’ve been having a lot of pain in my joints and as always my back.  I also haven’t played guitar in a while.  I guess it’s good that I didn’t buy a new acoustic, huh?  Anyway, with the evaluation, I spent more money than I usually do, so I don’t need the added expense.

I don’t really have much else to say right now, I think.  Maybe I’ll add some more in the edit, but as far as I’m concerned, the first draft is over.  Have a good weekend if you can.

by

“I’ve seen that road before”

Well, I’ve already walked about 5 miles this morning‒that’s the distance from the house to the train station.  I gave myself a break yesterday, since I had exercised pretty seriously for 4 days before that, but it seemed a shame not to take advantage of at least the slight improvement in my condition over the past several days.  I considered biking, which would have taken about a third as much time as walking, but I just get nervous when I’m biking.

No matter how much I do it‒and there have been times when I did it a lot‒biking always feels profoundly unnatural and uncomfortable to me, and I’m always worried about getting a flat tire or having some kind of accident, like the time I flipped over on a bike and fractured my right scapula.  I also worry about locking the bike up at the train station, because even if I secure it thoroughly, with the two thick cables and the U-lock that I have, it can still be vandalized.

At least with walking, there is no serious maintenance other than maintaining my body, and to that end I have spandex braces on both ankles and my left knee, and these seem to be helpful.  My boots are good quality, so they’re not going to give out all of a sudden (like even a good bike tire can do) and I’m trying hard to keep from exacerbating my underlying arthroses‒thus the spandex.

My feet and ankles and knees are less troubled now than they were on Monday, and if I can keep this up, they should adapt more and more, asymptotically approaching some optimal configuration.

It didn’t hurt‒so to speak‒that I woke up at about 2 am today, and after a while decided I might as well just get up, get ready, and walk the 5 miles to the train.  It wasn’t as though I was going to be late, just later than I usually am.

Yesterday at work was pretty stressful, and I felt very tense, especially for the first part of the day, when a few people asked how I was.  I mean, my boss called it a vacation, but it was not that.  It was an emergency mental health break, and it was far from adequate, though it did provide some help.

I like to say that I don’t need a vacation, I need a dirt vacation, which is like a dirt nap but longer, if that’s even possible.

I finished filling out the pre-appointment questionnaires for my autism assessment this Friday, and now all I can do is wait.  I’ve not really done a video appointment before; I’m not sure that I will like it.  Or, rather, I’m not sure how natural it will feel to me.  I mean, I guess it really isn’t “natural” in a certain sense of the word.  But from another point of view, it is natural, because everything is natural.  Anything that actually exists is part of nature.  Nothing unnatural exists, not can it exist.

I intend, at least half-heartedly, to walk back from the train station this evening.  This would mean that, even if I get a lift to the station from work, I would (will) have walked about 11 miles today.  That’s something of a long distance, though it’s not as far as I walked Monday, and then I only took three 19-minute breaks, whereas today I have the train ride(s) and, of course, work in between the two main legs of the journey.

I want to get to the point where I’m fit (and thin) enough that my joints and so on are no longer bothered by the walking, but have adapted well enough that I can walk indefinitely.  Of course, it would be nice also to be able to do a little jogging now and then.  And if I have trouble, I can always hop on one of those horses that wishes turn into and which beggars ride.

I am also receiving a pair of “trek poles” today, which are being delivered to the office.  I’m hoping these will help me avoid overtaxing my lower body and will make walking more of a total body workout.  We’ll see.  I may hate using them.  I may love using them.

The latter would obviously be nice, because then I would be more inclined to stick with my “program” and keep exercising regularly.  I’d like to get used to it all at least before the weather down here gets truly hot and humid.  I can readily handle that if I’m already in shape, but if not, it just makes things more difficult.

I sound relatively optimistic, at least for me, this morning, don’t I?  Perhaps I have already begun to develop some of that “runner’s” high‒or walker’s high in this case.  I used to get that in spades when I ran longish distances.  By the end of my runs, I felt like a superhero.

We’ll see if I ever get that feeling again, or any other truly positive feelings like joy, friendship, love, enthusiasm, positive anticipation…what have you.  Or will I just need to take that dirt vacation after all?  I suppose I can only wait and see.

by

“Pull me out of the air crash…”

Well, it’s been a short while since I posted here.  I intended‒vaguely‒to write a post on Friday and then Monday (which was yesterday), but I had a surprise situation happen that I haven’t really discussed with anyone yet, though I might have mentioned it on Threads.

It seems at least some of my underlying distress was evident to some people at work‒I certainly know that I’ve been feeling like I’m coming apart at the seams, and at times in between the seams.  So, on Thursday morning, my boss somewhat quietly came to me and “suggested” that I take a bit of time off.  He suggested 5 days, but if I had come back tomorrow, there would be too much backed up work, so I got it down to 4 days (plus Thursday afternoon).

He said he could tell that I was really getting stressed out and irritable, and that I needed a break; I hadn’t taken any non-sick time off since my mother died.  In and of itself, this was truly kind of him, and that’s completely in character.  On the other hand, he doesn’t understand me all that well.  It’s hard to blame him; I’m a weirdo, after all.

Anyway, he suggested all sorts of absurd things, like getting a hotel room on the beach, drinking cocktails, getting laid, and so on.  Imagine that:  me getting laid on short notice!  I wouldn’t have the comfort level with strangers even to pay to have sex with someone, let alone to pick up or be picked up.  When he made those suggestions, I started to giggle hysterically‒it was a sound that worried and sort of even frightened me‒and I had to suppress it pretty quickly, because if I didn’t, I knew I was going to start to cry.  In any case, I left the office at noon and went back to the house.

As for the beach…

Well, I did do some biking, trying to get used to riding so I could do more, and after riding around the local area a total of about 9 miles on Friday, I decided on Saturday to ride out to the beach and (of course) back, about six miles each way.  It was quite a ride for only my second day back on the bike, but I managed it.  Then I walked down to the beach and saw that at least every human in the western hemisphere was there, so there was no way I was going to remain for long.

I didn’t bring beach gear anyway, having no intention of swimming.  The waves on the Atlantic coast make swimming at the beach there irritating.  The beaches on the Gulf of Mexico are much more pleasant.  Also, I’m about as fond of sand as is Anakin Skywalker.

So, I stopped at a 7-11 for some Gatorade, drank it, and rode back.  Then, on Sunday I biked to the train station and back, which is only about 10 total miles, but it was harder than the day before, probably because I hadn’t fully recovered.

Yesterday, on the other hand, I took a very long, 12-mile walk.  I wore spandex braces on my ankles and my left knee, and these seem to have helped a lot.  I do have a minor blister and a half on my left foot, but otherwise there were no real ill effects.

I probably look as though I partied in some fashion, because I am pretty sunburned.  That’s okay; for some reason, sunburn doesn’t really hurt me much.

So, anyway, I at least got some exercise.  I bought junk/comfort food for a few meals (deliberately) but even my old comfort foods are becoming unappetizing.  That would be okay with me.  In fact, yesterday I ate only a total of around 1000 calories, despite my long walk, because I just wasn’t hungry.  I didn’t even finish all that I “cooked” myself for dinner yesterday.

Being off from work has been at least somewhat fruitful for me, in this at least:  that I have worked on improving my physical condition and have tested my endurance a bit.  Otherwise really, what mostly happened was a harsh, undiluted confrontation with just how empty my life is.

Work is in some ways the most positive part of my current existence; I have to be productive to be worthy of staying alive, and I can interact with my coworkers in ways that are couched in work-related situations.  It is far from fully positive; the noise alone is terribly frustrating.  But then again, I’m pretty much a net negative wherever I am, so it’s hard for me to be judgmental.

When I am at the house, I am fully immersed in how alone I am*.  And things like being at the beach just cement that even more for me.  I do not feel like the same species as everyone else out there.  I don’t know what I am or should be‒I’ve had great past success in all the ways I thought were success, but that all just blew up in my face in the end.

Honestly, I was more than half hoping for a heart attack or some other health crisis or life-threatening occurrence while I was biking and walking over this surprise long weekend.  Perhaps it would have been good to be hit by a car.  One thing I did note was that there are a lot of tall buildings with balconies down along the beach.  That’s something at least a bit interesting.  The bridge over the intercoastal, unfortunately, is rather low there, so it’s not much use.

In all honesty, speaking as a physician about myself, I think what I needed was not a “vacation”.  What on Earth would such as I do on a solitary vacation other than be solitary?  Instead, I would probably recommend that I be hospitalized, if that were available, or at least get some intensive kind of treatment.  But of course, I don’t have insurance, and whatever my boss might think about my finances, I don’t have the wherewithal to pay for much of any medical or psychiatric care.  I also don’t have the mental wherewithal to seek out any such help.

I am finally getting an autism assessment this Friday, and I’m slightly anxious about it.  I fear that it’s going to be utterly negative, and that I’m not autistic, I’m just a defect.

I do find that, even when I try to lurk around autism based sites and feeds and so on, I feel that I still do not fit in with any of them.  Maybe if I get assessed and it’s positive, I will feel differently.  I don’t know.

In any case, I am back to work today, and if I survive until tomorrow, I will punish you all with another stupid blog post.  In the meantime, I hope you have a good day.

*I did have a very nice phone call with my sister on Sunday night.  That’s always enjoyable.

by

And I looked, and behold a pale cat

Well, I have some relatively good news, which is why I decided to write a post today instead of just leaving it:  Dorian, the light gray cat, has returned.  Well…he was back last night, at least, though this morning he was nowhere to be seen once again, which is itself somewhat unusual.

He was a bit scraggly, with some traces of dried blood around his fur on the side of his head and neck, but it didn’t look like it was his blood.  He actually looked lean and healthy, moving very much like the hard-ass stray cat that he is.

I’m guessing that he got into a pretty big fight at some point‒he seems prone to them‒and then hid away somewhere while he recovered his strength.  Then, that pale grey shadow took a new shape* and grew again.

I think stray cats, like defective and damaged people, don’t like to show any weakness to those around them.  Perhaps it’s more accurate to say that they are unable to show their weakness, even though they may crave acceptance and support.  There are good, sound biological motivations for this in stray cats and other mammals; showing weakness or injury can invite further aggression from other cats and even encourage predators.

Of course, human males (or anthropoid creatures living among humans, such as I) are no exceptions to that tendency.

It’s also been said that, in many ways, people on the autism spectrum are like cats, at least in some ways, and I can see the point, though it is an oversimplification.  Still, it leads me to speculate that, sometime in the relatively deep past, perhaps two separate subspecies of humans (maybe the legendary Neanderthals and Cro-Magnons) existed, one being more naturally ultrasocial, the other more constrained but with other capacities that aided their survival.  We know that Neanderthals, for instance, had bigger brains than so-called modern humans, but the structure appears to have been slightly different.

Perhaps it’s the genes from such a separate subspecies that led to some people having ASD or other versions of “neurodivergence”.  To be clear, I don’t know that there’s any good evidence that this is the case.  I did encounter at least one study that looked for markers known to be associated with the autism spectrum and the DNA residua of Neanderthals present in people of European descent.  There seemed to be some correlation, but I didn’t think it was particularly impressive.  So there’s not a lot of data to support the hypothesis.

It would be nice‒in some ways‒to think of oneself as just a different kind of human, not as something alien.  But I think that’s probably a silly dream for me.  I do not belong here in any serious sense; I am an alien, a mutant, a replicant, a stranger.  And to humans, of course, a stranger is presumptively an enemy unless and until proven otherwise.

Anyway, Dorian was back last night, but gone again this morning.  We’ll see if he returns.  There are other cats who come around.  But, of course, there is no real affection from most of them.  They come to me opportunistically, because I put food out for them.  I am useful to them.  Similarly, I am often useful to humans in the world.  I have many skills and abilities, so I have frequently found that people like to have me around to help them get things done.  But eventually, the negatives of my presence outweigh the positives, and people go away (or send me away).

I don’t blame them.  I want to go away from myself, though I have never had any desire to be anyone else.  I would prefer oblivion.  Or maybe I would just prefer rest.

Speaking thereof, I slept almost four hours last night, and of course, I awakened and couldn’t go back to sleep in the wee hours of the night, and I am now at the office finishing this post.  I don’t look forward to the weekend‒there’s nothing good about it‒but at least I can collapse and try to recuperate.  I don’t know if I’ll write anything next week, or just leave everything be.

I feel perched on the borderland between life and death, and the Undiscovered Country beckons.  It must be really great there, because no one who goes ever comes back.

*To be honest, it’s pretty much exactly the same as the old shape.

by

And thus the native hue of resolution is sicklied o’er with the pale blog of thought

Hello and good morning.  It’s Thursday again—the first Thursday of the new year, the first Thursday of the month, and the second day of 2025 (AD or CE depending upon your preference).

I’m heading in to the office already this morning.  It’s not the first day back to work in the new year, though; we worked yesterday, as well, and it was quite a longish day.  We also worked on New Year’s Eve, though we got out an hour earlier than we would have because I shook my head and expressed some outrage (I was in an even more foul mood than usual) that we were not getting off early.  I didn’t have any celebration to attend nor anyone waiting for me, but I thought others might want to get to something of the sort, and anyway, I just really wanted to escape the noise.

It was ridiculous that we worked yesterday (though unfortunately it turned out to be a successful business day).  In the plaza in which our office sits, we were the only business open, and this is a full-scale strip mall with dozens of shops and restaurants and offices.  The people at work who wanted vapes or to get something from the bakery or from the nearby restaurant were all out of luck.  The only places open were gas stations and our office.

Oh, and also my coworker, the one with whom I share various duties, was out sick Tuesday and left early yesterday.  This is not his fault, obviously, unless you mean it’s a design fault, but that fault is true of everyone, and my coworker certainly didn’t design himself.  But it meant that, especially on Tuesday, when I had to do payroll in addition to the other stuff, I was particularly frazzled.

It didn’t help that I knew, quite painfully, that I was not going to be “celebrating” the new year.  Why would I celebrate it when I had wished or yearned throughout the year for 2024 to be my last year?

In fact, on Tuesday—that was New Year’s Eve, in case you didn’t put that together and/or you’re reading this well after it was written—when I was feeling more horrible and stressed out and angry and sad than even I have felt in a long time, I developed a plan, if it merits that term.  I was not hungry during the day, and so I did not eat anything at all.  It occurred to me that I had a half a bottle of Jack Daniels at the house and about half a bottle of vodka as well.  They have both been there for quite some time, since I rarely drink.

My thought was this:  I’ve been on a relatively low carb diet for a few weeks, so I have relatively little stored glycogen relative to the usual amount; what glucose was in my system was probably largely the product of gluconeogenesis, which is the creation of sugar from various amino acids, mainly by the liver.  I figured on stopping at a gas station near the train station when I was heading back to the house and picking up some bottles of Diet Coke (which also has no sugar, of course) and then that evening drinking vodka and Diet Coke and Jack and Diet Coke, all on an empty stomach.  This would have not only the obvious effects of alcohol in disinhibiting behavior, but ethanol also suppresses gluconeogenesis—this fact is responsible for at least some of the typical effects of a hangover.

My thought process, if it merits those words, was basically to hope to get drunk enough and hypoglycemic enough either maybe to have a seizure (unlikely) or just to loosen my inhibitions enough that I would have the courage to use one of the means of suicide that I keep always nearby nowadays*.

When I thought about my plan, though, as the day went on and I finally headed back to the house, it seemed like a pain to stop in the gas station.  I was already exhausted.  I figured, okay, well, I can just drink liquor straight.  Once you get started, once the alcohol begins to take effect, drinking it becomes easier.  However, the thought of being drunk felt very unpleasant, and more importantly, I knew that if I did not work up the strength to go through with my “plan”, drinking the alcohol, especially with no food, would probably lead to a severe exacerbation of my chronic pain.

So, instead, I watched some stupid videos, feeling regretful but not willing to risk worse pain in an attempt to do an end run around the bastard urge for self-preservation and escape my constant physical and psychical pain.  I took something to help me go to sleep (which I don’t usually do on work nights), and I puttered around listening to the sound of all the amateur fireworks going off, feeling annoyed by them, for several hours, and I did not die—not even of natural causes.  And despite my attempts, I slept less than usual, largely because of the noise, but also partly due to my (very inner and apparently unrecognizable to others) turmoil.

And here I am, writing the first blog post of the new year.  I’m alive, and I’m not happy.  I have no friends, my family is far away, and I certainly have no capacity to try to upend and alter where I am, anyway, not on my own—the very prospect of trying to change my life, to move, to go somewhere else, these things are horribly stressful inherently, and I have no strong reason to think any of them would make any difference for me.  I am fundamentally alone, and I probably have always been so, despite past temporary delusions to the contrary.

Of course, so is everyone else, I guess, depending on how you mean it.

Anyway, here we are.  I’m working this Saturday, so I guess I’ll probably write a post then, too.  How lucky for you and for me, right?

yippee.

Well, my train’s about to arrive.  I hope you enjoyed this little, shitty blog post, and that you’re having just a wonderful new year already.  Yeah, right.

TTFN

*I have no fewer than two good lengths of rope, both tied into quite good nooses; a goodly supply of flammable liquids (more than three gallons) with which I could self-immolate; of course I have numerous blades, including very sharp razors and scalpels and box cutters and the like, with which I could open up some arteries; and I have various OTC medications that, especially in combination, could be toxic enough to be lethal.  Also, I’ve been scouting the area for easily accessible high places without closed-in roofs (mainly parking structures) which are high enough that, if I jumped, it would probably be fatal.  I have no guns anymore, alas, but there’s always the nearby Atlantic Ocean, always within sensible walking distance, and then again, there’s always just the long, open road.

by

I’m too tired to think of a good title for this post

I’m writing today’s blog post on my phone in the back of an Uber.  I could not sleep and figured I’d just head into the office, since it feels slightly more like home to me, at least when no one else is there, than does the house in which I sleep, .  I have my laptop (computer) with me, so I could write this post on it, but I think I would feel more awkward doing that.  It can be trying enough writing on it when riding the train, and the shifts and bumps and other minor accelerations in a regular car tend to be more irregular and pronounced than those in a railroad car.  There’s no track, for one thing, and also a car is much less massive, so it is more prone to lurch noticeably than a train is.

It’s a stupid waste of money to take an Uber, of course, but it’s not as though I’m saving up for the future.  I don’t expect any significant future, and to be honest, I don’t really want one, at least the way I feel most of the time lately.  Even the present is barely worth it, moment to moment.

I’ve recently learned that, in the UK at least, the average lifespan (the arithmetic mean, remember?) is only 55 years for people with autism spectrum disorder.  This average is no doubt weighted down by those who die quite young, but still, this is the UK, where there is a National Health Service.  Here in the US, where the average lifespan, at least for men, has actually recently begun to fall for the first time in any of our lifetimes, the average autistic lifespan is very likely to be lower than in the UK.  I’m 54 now.

I realize that there’s nothing magical about a statistical average when applied to an individual instance of a circumstance, but numbers mean a lot to me at least, and frankly, right now, the idea that there is a maximum predicted cutoff for my lifespan‒and that it is arriving soon‒is more of a relief and even a comfort than it is a horror.

Of course, I don’t carry an “official” diagnosis of autism spectrum disorder, but as one who has, as part of his now-dead career, given who-knows-how-many thousands of “official diagnoses”, I know there’s nothing magical about them.  They are educated, best-available descriptions of what’s happening in particular instances in a medical situation.  They are useful for steering thought and decision making, but because they cannot address all details of an individual case, they can also shackle one’s thought processes and lead one astray.

One thing is clear:  I have some manner of atypical neurology.  I certainly have trouble with dysthymia and depression; I have little doubt about those diagnoses.  I have rotten chronic insomnia, which may be a symptom/sign of that probable neurodevelopmental disorder.  I also had a secundum atrial septal defect, and I have a slight cavum septum pellucidum cyst in my brain, and these things both occur more frequently in people with the neurodevelopmental version of ASD (as opposed to the cardiac Atrial Septal Defect, see above).  They are far from diagnostic thereof, but their presence does shift my Bayesian estimates.  They can also be associated with other diagnoses as well, of course, but I don’t have nearly as many hallmarks of those disorders…at least as far as I’m aware.

Of course, each thing can also happen and stand on its own, being indicative of nothing but itself.  But I think we can all agree that there’s something atypical and dysfunctional happening in my brain, even if it doesn’t actually connect causally in any way to those other findings.

I did write a bit more than a page yesterday on Extra Body, which I guess is a worthwhile accomplishment.  I know it hasn’t been all that long, but I feel as if this only-one-page-a-day pattern is not giving me the benefit that I used to get from writing fiction.  Maybe it’s that I just get my juices going and then shut them down.  Maybe it’s that the story is taking so long to get on with itself.  I don’t know.  Maybe I’m just hoping for too much.  Hope is dangerous stuff.

I don’t know how to adjust my behavior, though.  I already tried to cut back on doing this daily blog, but found that not doing it made me very tense and stressed, since I’ve gotten into the habit of doing it.  It’s almost an OCD-like pattern.

I wouldn’t call it exactly anxiety that I feel if I think about not writing the blog (or doing any of a number of other things that I do by habit). It’s more of a kind of tension, a stress, and it can rapidly escalate into hostility.  Of course, all of these are associated with the sympathetic nervous system, the whole fight-or-flight mode, so maybe one could call my experiences anxiety.  Certainly, the physiological responses are related and quite similar.  But my mental state doesn’t feel fearful as much as angry, and even hateful.

Maybe that’s all just part of Yoda’s cliché little response to young Anakin admitting he was afraid in The Phantom Menace:  “Fear leads to anger; anger leads to hate; hate leads to suffering.”  I always wished Anakin would reply, “Yeah…the suffering of the people who made me afraid and angry.”  Oh, well, much of the Jedi philosophy in the prequels is kind of stupid, and it contributed to their downfall, but they’re fictional anyway.

Speaking of fiction, I’m not sure what I’m going to do about my fiction writing.  I intend to keep writing at least a page a day, but writing it after I write my blog is stressful.  But not writing my blog is stressful.  And writing only one page a day of fiction is stressful.  And dealing with people being late to work and the noise and nonsense and the internally created rules that are not enforced when it’s inconvenient is stressful.  And commuting is stressful, and neither of the places between which I commute are places of comfort to me.

A large contributor to these problems is that, no matter where I go, there I am, and I am not comforting to me.

The Buddhists are supposed to have said that life is suffering‒or was that the Dread Pirate Roberts?  I suppose they might have agreed on that statement.  Still, you’d think that would be enough to counter Yoda’s little admonition, with the reply, “Everything leads to suffering.  What’s your pointy-eared point?”