I’m writing today’s blog post on my phone in the back of an Uber.  I could not sleep and figured I’d just head into the office, since it feels slightly more like home to me, at least when no one else is there, than does the house in which I sleep, .  I have my laptop (computer) with me, so I could write this post on it, but I think I would feel more awkward doing that.  It can be trying enough writing on it when riding the train, and the shifts and bumps and other minor accelerations in a regular car tend to be more irregular and pronounced than those in a railroad car.  There’s no track, for one thing, and also a car is much less massive, so it is more prone to lurch noticeably than a train is.

It’s a stupid waste of money to take an Uber, of course, but it’s not as though I’m saving up for the future.  I don’t expect any significant future, and to be honest, I don’t really want one, at least the way I feel most of the time lately.  Even the present is barely worth it, moment to moment.

I’ve recently learned that, in the UK at least, the average lifespan (the arithmetic mean, remember?) is only 55 years for people with autism spectrum disorder.  This average is no doubt weighted down by those who die quite young, but still, this is the UK, where there is a National Health Service.  Here in the US, where the average lifespan, at least for men, has actually recently begun to fall for the first time in any of our lifetimes, the average autistic lifespan is very likely to be lower than in the UK.  I’m 54 now.

I realize that there’s nothing magical about a statistical average when applied to an individual instance of a circumstance, but numbers mean a lot to me at least, and frankly, right now, the idea that there is a maximum predicted cutoff for my lifespan‒and that it is arriving soon‒is more of a relief and even a comfort than it is a horror.

Of course, I don’t carry an “official” diagnosis of autism spectrum disorder, but as one who has, as part of his now-dead career, given who-knows-how-many thousands of “official diagnoses”, I know there’s nothing magical about them.  They are educated, best-available descriptions of what’s happening in particular instances in a medical situation.  They are useful for steering thought and decision making, but because they cannot address all details of an individual case, they can also shackle one’s thought processes and lead one astray.

One thing is clear:  I have some manner of atypical neurology.  I certainly have trouble with dysthymia and depression; I have little doubt about those diagnoses.  I have rotten chronic insomnia, which may be a symptom/sign of that probable neurodevelopmental disorder.  I also had a secundum atrial septal defect, and I have a slight cavum septum pellucidum cyst in my brain, and these things both occur more frequently in people with the neurodevelopmental version of ASD (as opposed to the cardiac Atrial Septal Defect, see above).  They are far from diagnostic thereof, but their presence does shift my Bayesian estimates.  They can also be associated with other diagnoses as well, of course, but I don’t have nearly as many hallmarks of those disorders…at least as far as I’m aware.

Of course, each thing can also happen and stand on its own, being indicative of nothing but itself.  But I think we can all agree that there’s something atypical and dysfunctional happening in my brain, even if it doesn’t actually connect causally in any way to those other findings.

I did write a bit more than a page yesterday on Extra Body, which I guess is a worthwhile accomplishment.  I know it hasn’t been all that long, but I feel as if this only-one-page-a-day pattern is not giving me the benefit that I used to get from writing fiction.  Maybe it’s that I just get my juices going and then shut them down.  Maybe it’s that the story is taking so long to get on with itself.  I don’t know.  Maybe I’m just hoping for too much.  Hope is dangerous stuff.

I don’t know how to adjust my behavior, though.  I already tried to cut back on doing this daily blog, but found that not doing it made me very tense and stressed, since I’ve gotten into the habit of doing it.  It’s almost an OCD-like pattern.

I wouldn’t call it exactly anxiety that I feel if I think about not writing the blog (or doing any of a number of other things that I do by habit). It’s more of a kind of tension, a stress, and it can rapidly escalate into hostility.  Of course, all of these are associated with the sympathetic nervous system, the whole fight-or-flight mode, so maybe one could call my experiences anxiety.  Certainly, the physiological responses are related and quite similar.  But my mental state doesn’t feel fearful as much as angry, and even hateful.

Maybe that’s all just part of Yoda’s cliché little response to young Anakin admitting he was afraid in The Phantom Menace:  “Fear leads to anger; anger leads to hate; hate leads to suffering.”  I always wished Anakin would reply, “Yeah…the suffering of the people who made me afraid and angry.”  Oh, well, much of the Jedi philosophy in the prequels is kind of stupid, and it contributed to their downfall, but they’re fictional anyway.

Speaking of fiction, I’m not sure what I’m going to do about my fiction writing.  I intend to keep writing at least a page a day, but writing it after I write my blog is stressful.  But not writing my blog is stressful.  And writing only one page a day of fiction is stressful.  And dealing with people being late to work and the noise and nonsense and the internally created rules that are not enforced when it’s inconvenient is stressful.  And commuting is stressful, and neither of the places between which I commute are places of comfort to me.

A large contributor to these problems is that, no matter where I go, there I am, and I am not comforting to me.

The Buddhists are supposed to have said that life is suffering‒or was that the Dread Pirate Roberts?  I suppose they might have agreed on that statement.  Still, you’d think that would be enough to counter Yoda’s little admonition, with the reply, “Everything leads to suffering.  What’s your pointy-eared point?”